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Curt Trowhill

Brett Sims – Blog. Donate to CureCHM.org. June 28, 2015. June 28, 2015. I went to Philadelphia for my 3. On June 8-10. This was in the middle of a busy travel month. For me. The prior week I was in San Diego for training and the week after I was in Mexico for work. This is why writing this post has taken longer than I would have liked. I got to have another functional MRI on this trip. What is more fun than hanging out in an MRI machine for a couple hours? When they asked about the procedure I said they ...

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Brett Sims – Blog. Donate to CureCHM.org. June 28, 2015. June 28, 2015. I went to Philadelphia for my 3. On June 8-10. This was in the middle of a busy travel month. For me. The prior week I was in San Diego for training and the week after I was in Mexico for work. This is why writing this post has taken longer than I would have liked. I got to have another functional MRI on this trip. What is more fun than hanging out in an MRI machine for a couple hours? When they asked about the procedure I said they ...

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Curt Trowhill | curttrowhill.wordpress.com Reviews

https://curttrowhill.wordpress.com

Brett Sims – Blog. Donate to CureCHM.org. June 28, 2015. June 28, 2015. I went to Philadelphia for my 3. On June 8-10. This was in the middle of a busy travel month. For me. The prior week I was in San Diego for training and the week after I was in Mexico for work. This is why writing this post has taken longer than I would have liked. I got to have another functional MRI on this trip. What is more fun than hanging out in an MRI machine for a couple hours? When they asked about the procedure I said they ...

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curttrowhill.wordpress.com

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My CHM History | Curt Trowhill

https://curttrowhill.wordpress.com/2015/01/20/my-chm-history

Brett Sims – Blog. Donate to CureCHM.org. January 20, 2015. January 25, 2015. Picture your world through a cardboard tube that slowly collapses over time, giving you pinhole vision and, eventually, preventing you from seeing anything. For some of us, that isn’t just an imaginary exercise, it is the life we are leading. My name is Curt and I have a rare genetic retinal degenerative disease called Choroideremia (CHM), which is pronounced Kuh-roid-er-emia. For more details about CHM go to curechm.org. Throu...

2

Final Testing before Surgery | Curt Trowhill

https://curttrowhill.wordpress.com/2015/02/22/final-testing

Brett Sims – Blog. Donate to CureCHM.org. Final Testing before Surgery. Final Testing before Surgery. February 22, 2015. February 22, 2015. Was on Tues. 2/10 through Thurs. 2/12. 2/10 – Goldman field, Humphrys field (30degree, 10 degree and horizontal line tests. OCT, color test. Contrast reading and several others tests. 2/11 – repeat the attribute tests. Humphrys field (30degree, 10 degree and horizontal line tests. Contrast reading), cannon high resolution photos and a few others. Then said, this is n...

3

Clinical Trial Phone Call | Curt Trowhill

https://curttrowhill.wordpress.com/2015/01/25/the-trial-phone-call

Brett Sims – Blog. Donate to CureCHM.org. Clinical Trial Phone Call. Clinical Trial Phone Call. January 25, 2015. January 25, 2015. We set up for me to travel out to Philadelphia to have an appointment on Thursday January 15th to review the consent paperwork. This phone call changed my life. For the first time in probably ever, I will be putting myself first. This is also the first time where there is legitimate potential for light at the end of the tunnel. Consent Review →. January 25, 2015 at 7:30 pm.

4

Consent Review | Curt Trowhill

https://curttrowhill.wordpress.com/2015/02/04/consent-review

Brett Sims – Blog. Donate to CureCHM.org. February 4, 2015. February 4, 2015. There is one potential side effects that states: “It is possible that if the treatment does work, you may be disturbed and uncomfortable having more vision”. My face was probably quite funny when we reviewed that and I asked “Isn’t that what we are shooting for here? 1 eye OK from trail, 1 eye Poor, but can get surgery to not get worse. Both eyes poor, but can get surgery to not get worse. Clinical Trial Phone Call. You are com...

5

curttrowhill | Curt Trowhill

https://curttrowhill.wordpress.com/author/curttrowhill

Brett Sims – Blog. Donate to CureCHM.org. Articles posted by curttrowhill. February 27, 2016. February 27, 2016. Started on 2/16/16. I can barely believe it has been a year. Since surgery. With surgery, checkups. And work travel I feel like I was on a plane for half the year. If you are wondering, yes I am writing this on my phone on my flight too at about 10-11pm(not sure what time zone I am in right now). This past year. And need to get pages added to it. If you have ever seen the movie “ Up. My treate...

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Brett Sims – Blog. Donate to CureCHM.org. June 28, 2015. June 28, 2015. I went to Philadelphia for my 3. On June 8-10. This was in the middle of a busy travel month. For me. The prior week I was in San Diego for training and the week after I was in Mexico for work. This is why writing this post has taken longer than I would have liked. I got to have another functional MRI on this trip. What is more fun than hanging out in an MRI machine for a couple hours? When they asked about the procedure I said they ...

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