caloriesandcreon.blogspot.com
Calories and Creon: November 2012
http://caloriesandcreon.blogspot.com/2012_11_01_archive.html
Thursday, 8 November 2012. Guest Blog - Smart Snacking :). Everyone with CF knows the relationship with food is very much a love/hate thing so here is a guest blog from the lovely Laura. With a little guide on how to pack in the high calorie snack when not really feeling the love! I think we all have those moments when we don't want to eat anything, but know we should. Too full, too sick, too fed up. Me? Crispy bacon (300 cals a pack). Coke (142 cals per 330ml can). Sainsbury's peanuts, raisins and choco...
cftrust.blogspot.com
The CF Trust Blog: May 2015
http://cftrust.blogspot.com/2015_05_01_archive.html
Thursday, 7 May 2015. There's 24 hours to go until the ballot for next year's Virgin Money London Marathon. It's the leading mass-participation charity fundraising challenge event in the UK, and this year we had more #TeamCF runners than ever. My marathon journey has been one unforgettable experience and one of the most memorable days of my life (so far). It has taken more courage and willpower than I thought possible. I woke on Sunday 26 April 2015 with excitement (much to my amazement). I arrived a...
cftrust.blogspot.com
The CF Trust Blog: February 2015
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Saturday, 28 February 2015. My successful SRC grant application. As the Cystic Fibrosis Trust announces a call for applications to form up to three more Strategic Research Centres, Dr David Sheppard of the University of Bristol explains how he went about submitting a successful SRC application. When the CF Trust announced its new research strategy in April 2013, I began to think about how to apply for a Strategic Research Centre (SRC) grant. What problem to address? Thursday, 26 February 2015. From acros...
cftrust.blogspot.com
The CF Trust Blog: March 2015
http://cftrust.blogspot.com/2015_03_01_archive.html
Thursday, 26 March 2015. Things I learned on a summer studentship. Kate Ryan, an undergraduate medical student at Keele University, took part in the Cystic Fibrosis Trust’s Summer Studentships programme in 2014, where she worked on a PhD project on cystic fibrosis-related diabetes. Following her placement in the academic holidays, Kate won first prize for her poster presentation at the UK CF Conference. Although I have had some experience in medical school, working in a lab was a relatively new experienc...
cftrust.blogspot.com
The CF Trust Blog: July 2014
http://cftrust.blogspot.com/2014_07_01_archive.html
Thursday, 31 July 2014. Understanding Median Predicted Survival. This year’s UK CF Registry Report. Shows that the median predicted survival for people with cystic fibrosis. Is a bit lower this year. To explain this change, Dr. Director of Research and Care, explains what we mean by median predicted survival and how “wobbles” happen. By way of an analogy, it may help to think of a country’s economy. These are complex calculations and are not calculated every year. The last report for the. Was over 20 yea...
cftrust.blogspot.com
The CF Trust Blog: November 2014
http://cftrust.blogspot.com/2014_11_01_archive.html
Friday, 14 November 2014. A cystic fibrosis 'cure'? Understanding this week's research news. Following recent news reports of a ‘cure’ for cystic fibrosis being within reach, Cystic Fibrosis Trust Chief Executive Ed Owen discusses the promising research at the centre of the story, and the need to think big but stay grounded. Nothing is more guaranteed to get all of us excited than stories of a possible ‘breakthrough’ or ‘cure’ for cystic fibrosis. In a blog on Tuesday accompanying the news piece. Are tha...
cftrust.blogspot.com
The CF Trust Blog: Our Financial Support for the CF Community
http://cftrust.blogspot.com/2015/04/our-financial-support-for-cf-community.html
Monday, 13 April 2015. Our Financial Support for the CF Community. As the Cystic Fibrosis Trust’s grants panel gets ready to consider applications for the second round of health and wellbeing grants, Support Service Manager Becky Kilgariff discusses why the Trust offers grants, and the kinds of financial assistance available. Sometimes we are asked: “Why does the Cystic Fibrosis Trust offer grants to people and families affected by CF? Our programme of health and wellbeing grants. Finally, we also fund h...
tomakeachoice.blogspot.com
To Make A Choice: 5/27/12 - 6/3/12
http://tomakeachoice.blogspot.com/2012_05_27_archive.html
To Make A Choice. My journey to become a non-directed living kidney donor and everything that came after donating. Its easier and safer than you might think. With over 3000 Canadians waiting for a kidney, increasing awareness of organ donation is critical. Friday, June 1, 2012. Dialysis isn't a cure. Because kidney disease can happen to any of us. It currently effects over two million Canadians and many of us don't even know we're part of that group. There are a number of factors that influence how a pat...
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