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A Concrete Way of Love | Our adventures as a forever family

Our adventures as a forever family

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A Concrete Way of Love | Our adventures as a forever family | aconcretewayoflove.wordpress.com Reviews
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Our adventures as a forever family
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1 main menu
2 glossary
3 meeting luke
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A Concrete Way of Love | Our adventures as a forever family | aconcretewayoflove.wordpress.com Reviews

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Our adventures as a forever family

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Mary’s foot | A Concrete Way of Love

https://aconcretewayoflove.wordpress.com/2012/11/14/marys-foot

A Concrete Way of Love. Our adventures as a forever family. Skip to primary content. November 14, 2012. So Mary dropped a heavy flashlight on her foot today. I tried to make her stay on the couch with foot elevated and ice on it…yeah that worked for maybe 5 minutes. Nothing slows that girl down! I wish I was that resilient! This entry was posted in Matt's Posts. Our adventures as an adoptive family. View all posts by MommaMikki →. One thought on “ Mary’s foot. November 14, 2012 at 11:32 AM.

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Glossary | A Concrete Way of Love

https://aconcretewayoflove.wordpress.com/glossary

A Concrete Way of Love. Our adventures as a forever family. Skip to primary content. This is a(n incomplete) list of terms and abbreviations as they apply to Prader-Willi syndrome. I stole it from Ali at “Diving Into the Waves”. Aspiration (or pulmonary aspiration). An amino acid used in fatty acid metabolism that many individuals with PWS take in supplement form (typically either carnitor/levocarnitine or carnitine fumarate). 8211; Continuous Positive Airway Pressure machine. Used for the treatment ...

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November: National Adoption Awareness Month | A Concrete Way of Love

https://aconcretewayoflove.wordpress.com/2012/11/02/november-national-adoption-awareness-month

A Concrete Way of Love. Our adventures as a forever family. Skip to primary content. November: National Adoption Awareness Month. November 2, 2012. Each year, November is recognized as National Adoption Awareness Month. While all adoption-related issues are important, the particular focus of this month is the adoption of children currently in foster care. I will try to post ideas throughout this whole month of how to participate. Below are few ways to get started:. 8211; You can start an adoption blog.

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Meeting Luke | A Concrete Way of Love

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A Concrete Way of Love. Our adventures as a forever family. Skip to primary content. A woman involved in the adoption picked Mikki and I up from the airport, and drove us directly to meet Luke at the foster parents’ house. Words can’t express the joy in our hearts, but this video will try. One thought on “ Meeting Luke. January 1, 2012 at 6:07 AM. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public).

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A Concrete Way of Love | Our adventures as a forever family | Page 2

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A Concrete Way of Love. Our adventures as a forever family. Skip to primary content. Skip to secondary content. Newer posts →. October 5, 2012. The past 2 weeks have been crazy…but nothing could have prepared me for the flood of chaos that came over the past few days. 8220;Hi, Mrs. Sciba it’s your social worker. I am on my way to your house for the final home visit for Luke’s adoption.” WHHHAAATTT! I didn’t know she was coming, or did I and forgot. Oh man what do I do? September 17, 2012. The day before ...

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Bread of Life: What is Prader-Willi Syndrome?

http://breadoflifealvarado.blogspot.com/p/what-is-prader-willi-syndrome-pws.html

Then Jesus declared, “I am the bread of life. Whoever comes to me will never go hungry, and whoever believes in me will never be thirsty." John 6:35. Our Story, Our Gift. What is Prader-Willi Syndrome? What is Prader-Willi Syndrome? From the National Institute of Child Health and Human Development: http:/ www.nichd.nih.gov/health/topics/Prader Willi Syndrome.cfm. What is Prader-Willi syndrome? What are the symptoms of Prader-Willi syndrome? Stage 1- As newborns, babies with Prader-Willi can have low musc...

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Bread of Life: Disclosure

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Then Jesus declared, “I am the bread of life. Whoever comes to me will never go hungry, and whoever believes in me will never be thirsty." John 6:35. Our Story, Our Gift. What is Prader-Willi Syndrome? This policy is valid from 21 April 2012. This blog does not contain any content which might present a conflict of interest. To get your own policy, go to http:/ www.disclosurepolicy.org. Subscribe to: Posts (Atom). Amazing Adventures of Ayden Jane. Diving Into the Waves. She will amaze you. Happy First Bir...

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Bread of Life: June 2012

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Then Jesus declared, “I am the bread of life. Whoever comes to me will never go hungry, and whoever believes in me will never be thirsty." John 6:35. Our Story, Our Gift. What is Prader-Willi Syndrome? Saturday, June 2, 2012. And we know that in all things God works for the good of those who love Him.even Pitocin. I’m thinking.not so much. So easy, lemon squeezy. I ordained this. You may not understand it, but I do. And I am in control of it so you need not fear.”. It was simply amazing to think that the...

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Bread of Life: Rock 'n Roll

http://breadoflifealvarado.blogspot.com/2012/08/rock-n-roll.html

Then Jesus declared, “I am the bread of life. Whoever comes to me will never go hungry, and whoever believes in me will never be thirsty." John 6:35. Our Story, Our Gift. What is Prader-Willi Syndrome? Wednesday, August 15, 2012. And the PT who wrote it was able to describe it within the context of us regular-toned folks:. It's just so very hard not to compare her to other sweet babies and, at those times, the discouragement is so very tangible it hurts. Will help give Aerin more proprioceptive feedback ...

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Bread of Life: May 2012

http://breadoflifealvarado.blogspot.com/2012_05_01_archive.html

Then Jesus declared, “I am the bread of life. Whoever comes to me will never go hungry, and whoever believes in me will never be thirsty." John 6:35. Our Story, Our Gift. What is Prader-Willi Syndrome? Tuesday, May 29, 2012. Riding the Roller Coaster. Well, its been a couple of weeks since I last posted and after this post, I think you’ll understand why. Since writing last, we have ticked the following off of our “to do” list:. 1 Visited Aerin’s pulmonologist and gastroenterologist in Orlando. Admittedly...

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Bread of Life: Sweet Sounds

http://breadoflifealvarado.blogspot.com/2012/08/strength-for-day.html

Then Jesus declared, “I am the bread of life. Whoever comes to me will never go hungry, and whoever believes in me will never be thirsty." John 6:35. Our Story, Our Gift. What is Prader-Willi Syndrome? Thursday, August 30, 2012. We talked about starting solids soon (ack! Speech delays are a common issue in PWS. Many children develop speech apraxia and remain nonverbal for a long time. It is another hurdle that we face, not knowing if it will affect Aerin or how severe it might be. It brought tears to my ...

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Bread of Life: October 2012

http://breadoflifealvarado.blogspot.com/2012_10_01_archive.html

Then Jesus declared, “I am the bread of life. Whoever comes to me will never go hungry, and whoever believes in me will never be thirsty." John 6:35. Our Story, Our Gift. What is Prader-Willi Syndrome? Wednesday, October 17, 2012. I have sat down to write an update several times and each time I have had to abandon my mission for some pressing matter or another. Well, today I am determined to get something up on this blog! After the second miscarriage, I came across the book One Thousand Gifts. I am a ful...

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Bread of Life: Black Friday

http://breadoflifealvarado.blogspot.com/2012/11/black-friday.html

Then Jesus declared, “I am the bread of life. Whoever comes to me will never go hungry, and whoever believes in me will never be thirsty." John 6:35. Our Story, Our Gift. What is Prader-Willi Syndrome? Friday, November 23, 2012. I had it in my mind to write up this great post on how Thanksgiving came and served to reinforce the sense of gratitude that has bloomed (sometimes through disciplined care) in the face of this hardship. But it just didn't happen that way. It just hurt so much. Only the Good Stuf...

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Bread of Life: April 2012

http://breadoflifealvarado.blogspot.com/2012_04_01_archive.html

Then Jesus declared, “I am the bread of life. Whoever comes to me will never go hungry, and whoever believes in me will never be thirsty." John 6:35. Our Story, Our Gift. What is Prader-Willi Syndrome? Thursday, April 26, 2012. I was reading over yesterday's post and marveling at how excited we were over 27 mls. I mean, think about it. 27 milliliters. It's not even an ounce! And then I read this, posted by fellow PWS mom Ali, on her blog Diving Into the Waves. Our kids are freaking champions. Yesterday w...

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A Concrete Way of Love | Our adventures as a forever family

A Concrete Way of Love. Our adventures as a forever family. Skip to primary content. Skip to secondary content. January 28, 2013. Luke and Mary have come a long way since our last update. Luke now eats three meals a day by mouth, and only takes formula though his tube once a day. His balance has improved tremendously, and he is happy as can be. He loves Bear in the Big Blue House so much that the mere mention causes laughter through his entire body. January 18, 2013. Happy National Adoption Day. So Mary ...

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