aealliance.org
Autoimmune Encephalitis AllianceThe AE Alliance improves the lives of patients with autoimmune encephalitis by creating a community of patients, families and caregivers.
http://www.aealliance.org/
The AE Alliance improves the lives of patients with autoimmune encephalitis by creating a community of patients, families and caregivers.
http://www.aealliance.org/
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Autoimmune Encephalitis Alliance | aealliance.org Reviews
https://aealliance.org
The AE Alliance improves the lives of patients with autoimmune encephalitis by creating a community of patients, families and caregivers.
aealliance.org
Share Your Knowledge - Autoimmune Encephalitis Alliance
https://aealliance.org/clinical-care/share-your-knowledge
A New Model of Care. Doctors, clinicians and researchers are encouraged to share your experiences treating autoimmune encephalitis, including any success stories or frustrations. We are looking to connect with medical professionals who want to share their experiences or learn from other clinicians and researchers. A member of the Alliance’s Scientific Planning Committee or Board of Directors will review each submission. However, we might not respond to all entries. And we CAN NOT. Join our mailing list?
Clinicians Directory - Autoimmune Encephalitis Alliance
https://aealliance.org/clinicians
A New Model of Care. About the Clinician Network. The Autoimmune Encephalitis Alliance. Has created the AE Clinicians Network to connect families, patients and medical professionals with clinicians who have experience diagnosing, treating and caring for autoimmune encephalitis. The AE Clinicians Network provides a listing of doctors and medical professionals who have self-selected as an AE expert. Click on a clinicians name (below) to see contact and experience information. Please email the AE Alliance.
Recovery - Autoimmune Encephalitis Alliance
https://aealliance.org/living-with-ae/recovery
A New Model of Care. The recovery process is unique to each patient. Early and aggressive treatment leads to the best recovery. A recent study. In Lancet Neurology by Dr. Titulaer, Dr. Dalmau and colleagues found that 50% of autoimmune encephalitis (AE) patients show substantial improvement within four weeks of receiving treatment. Many patients have total recovery, including patients who are severely ill. For example, see the memoir by Susannah Cahalan,. Brain on Fire: My Month of Madness. Aggressive tr...
Disseminating Knowledge - Autoimmune Encephalitis Alliance
https://aealliance.org/clinical-care/disseminatingknowledge
A New Model of Care. One core mission of the Autoimmune Encephalitis Alliance is to share the latest research to improve the clinical diagnosis and treatment of AE. A list of symptoms. And a brief discussion of diagnosis. Are provided in the Living with AE. Section of this website. In January 2013, the AE Alliance coordinated a Grand Rounds at Duke University Medical Center. In the coming months. See recent AE Alliance blog post with updated literature review. And his research group. Section of this webs...
A New Model of Care - Autoimmune Encephalitis Alliance
https://aealliance.org/clinical-care/new-model
A New Model of Care. A New Model of Care. The Autoimmune Encephalitis Alliance envisions a new model of care that is truly multidisciplinary and collaborative across medical specialties including neurology, rheumatology, psychiatry, neuropsychology, immunology, pediatrics, internal medicine, rehabilitation medicine, infectious disease and allied specialties including nursing, clinical social work, occupational therapy, speech therapy, physical therapy. All of these specialties play a critical role in...
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thedarlingbibliophile.wordpress.com
ANMDARE | The Darling Bibliophile
https://thedarlingbibliophile.wordpress.com/andmare
Anti-NMDA Receptor Encephalitis is an autoimmune encephalitis discovered by Dr. Josep Dalmau in 2007 at the Hospital of the University of Pennsylvania in Philadelphia. For my story: Today Show. Susannah Cahalan’s best-selling memoir: Brain on Fire. Click to share on Twitter (Opens in new window). Share on Facebook (Opens in new window). Click to share on Tumblr (Opens in new window). Click to share on Google (Opens in new window). Click to email (Opens in new window). One thought on “ ANMDARE. Create a f...
Misdiagnosis - Hashimoto's Encephalopathy SREAT Alliance
http://www.hesaonline.org/hesreat-101/misdiagnosis
Understanding the Brain and the Immune System. Disability Benefits in the US, UK, and Canada. Filing an Insurance Appeal. Tips for the Undiagnosed. The Second Edition of "Understanding Hashimoto's Encephalopathy" is coming soon. You can learn more about HE/SREAT with us on Facebook, Twitter, Google , and more . I believe you.". Misdiagnosis in HE/SREAT is common due to the lack of information about this serious and potentially life threatening condition. 8211; Dr. Josep Dalmau. The Autoimmune Encephaliti...
Tips for the Undiagnosed - Hashimoto's Encephalopathy SREAT Alliance
http://www.hesaonline.org/tips-for-the-undiagnosed
Understanding the Brain and the Immune System. Disability Benefits in the US, UK, and Canada. Filing an Insurance Appeal. Tips for the Undiagnosed. The Second Edition of "Understanding Hashimoto's Encephalopathy" is coming soon. You can learn more about HE/SREAT with us on Facebook, Twitter, Google , and more . I believe you.". Laquo; How to Find a Specialist. Tips for the Undiagnosed. June 6, 2015. Connecting Rare Disease Patients Globally". Alone we are rare. Together we are strong. ". Provides informa...
internationalencephalitisconsortium.org
Advocacy and Recovery - INTERNATIONALENCEPHALITISCONSORTIUM
http://www.internationalencephalitisconsortium.org/advocacy-and-recovery.html
Diagnostic Algorithm for Initial Evaluation of Encephalitis in Adults. Diagnostic Algorithm for Initial Evaluation of Encephalitis in Children. Back to Resources for Patients and Families. After the acute phase of encephalitis has passed, many survivors wonder, “Is this as good as it gets? Several organizations focus on raising awareness. They seek to increase the profile of encephalitis so as to improve treatment, fund research and create a greater sense of community. These organizations include:. Due t...
internationalencephalitisconsortium.org
About Encephalitis - INTERNATIONALENCEPHALITISCONSORTIUM
http://www.internationalencephalitisconsortium.org/about-encephalitis.html
Diagnostic Algorithm for Initial Evaluation of Encephalitis in Adults. Diagnostic Algorithm for Initial Evaluation of Encephalitis in Children. Back to Resources for Patients and Families. Is an organization that offers support and information on various types of encephalitis, including research, books and publications, newsletters, and stories from survivors, among others. Their work is supported by leading doctors and professionals in the field. The Centers for Disease Control. Several organizations fo...
thedarlingbibliophile.wordpress.com
The Darling Bibliophile | Page 2
https://thedarlingbibliophile.wordpress.com/page/2
The Florence Forth Road Race 2015. February 7, 2015. February 8, 2015. There is one month left until the Florence Forth Road Race! Last year I posted. This year my spirit for the race is invigorated by memories of last year. I wrote about some of those memories for the Autoimmune Encephalitis Alliance blog. For those of you who missed exactly what this event is, here’s a breakdown from the site:. The Florence Forth race is organized by and for the Autoimmune Encephalitis Alliance. February 4, 2015. And a...
Outreach - Tobacco Trail Church
http://www.tobaccotrailchurch.com/outreach.html
ATT Bridge Video- Running. TTC IS COMMITTED TO SUPPORT THE FOLLOWING Outreach Projects. The Florence Forth race is organized by and for the Autoimmune Encephalitis Alliance. Proceeds from Florence Forth allow the AE Alliance to raise awareness, educate doctors and improve clinical care so that no one faces autoimmune encephalitis (AE) alone. The Bull City Race Fest and Food Truck Rodeo is the culmination of a world-class running experience, in a world-class eating experience all in a world-class city!
AE Archives - Hashimoto's Encephalopathy SREAT Alliance
http://www.hesaonline.org/tag/AE
Understanding the Brain and the Immune System. Disability Benefits in the US, UK, and Canada. Filing an Insurance Appeal. Tips for the Undiagnosed. The Second Edition of "Understanding Hashimoto's Encephalopathy" is coming soon. You can learn more about HE/SREAT with us on Facebook, Twitter, Google , and more . I believe you.". Autoimmune Encephalitis: Call to Action. June 4, 2015. Autoimmune Encephalitis: Treatment and Expected Outcomes. June 4, 2015. Autoimmune Encephalitis: Patient Perspective. This v...
Finding Support - Hashimoto's Encephalopathy SREAT Alliance
http://www.hesaonline.org/for-patients/finding-support
Understanding the Brain and the Immune System. Disability Benefits in the US, UK, and Canada. Filing an Insurance Appeal. Tips for the Undiagnosed. The Second Edition of "Understanding Hashimoto's Encephalopathy" is coming soon. You can learn more about HE/SREAT with us on Facebook, Twitter, Google , and more . I believe you.". The diagnosis of a rare disease or chronic illness can be frightening. When patients hear the words treatable but not curable. This group is for those who have been given a. There...
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Amy Allara | Author
For a few days went home to see. At once acquainted with and not so. Step into the carpet. Press upon the novel fibers. Have I been here. Can home mean potential. I don’t actually care. For the tone of the walls. I think while being held between the linens. Volume 11, Issue 1, 2014). April 16, 2015. But instruction in the science is easy*. Yes I can see. Your trouble with gravity. And what might I do. Woody Allen’s final inquiry in. Why is life worth living? 8220;Tracy’s face”. OR: A Literary Tabloid.
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Autoimmune Encephalitis Alliance
A New Model of Care. Is a rare and serious condition in which the immune system attacks the brain, resulting in impaired brain function. The Autoimmune Encephalitis Alliance. Promotes collaboration to improve care, find a cure and create community so that no one faces autoimmune encephalitis alone. Looking for a doctor? Check the AE Clinicians Network. Across the Starting Line. Is an emotional short film about families and doctors connecting to start the Autoimmune Encephalitis Alliance. Dr Russell Dale ...
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