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CLL Topics Updates » PCI-32765 (ibrutinib): What We Know Thus Far
http://updates.clltopics.org/4606-pci-32765-ibrutinib-what-we-know-thus-far
PCI-32765 (ibrutinib): What We Know Thus Far. July 7th, 2012. There were three papers on PCI-32765. You might as well start getting familiar with it). After discussing the three abstracts, I decided to write a longish editorial section. On stuff I am hearing as anecdotal stories from members. Since some of my concerns arising out of member feedback are not based on official clinical trial results. These are best discussed in an editorial section. Single agent PCI-32765 in chemo naive patients. I would de...
howsdave.blogspot.com
How's Dave Doing?: Brave New World of Cancer Therapy
http://howsdave.blogspot.com/2014/11/brave-new-world-of-cancer-therapy.html
Tuesday, November 11, 2014. Brave New World of Cancer Therapy. Actually, these are AmoxKClav - the Ibrutinib hasn't arrived yet.). An excellent development for someone whose main complaint is fatigue and shortness of breath. And whose immune system is so shot, a handshake is more feared than welcomed.). Now we await the Fed Ex delivery of the drugs - I just tracked it online and it’s on a truck, somewhere between South San Francisco and here. Should be here by noon. Wow, some things *are* getting better.
howsdave.blogspot.com
How's Dave Doing?: Treatment done, for another 5 years?
http://howsdave.blogspot.com/2012/12/treatment-done-for-another-5-years.html
Sunday, December 2, 2012. Treatment done, for another 5 years? Dave finished 6 rounds of chemo (Dexamethasone, Treanda, and Rituxan) in November and his hematologist/oncologist said he should be good for another 5 years. That first dose, in June, was a doozy - with a severe "shake 'n bake" reaction, followed by a pneumonia that landed him in the hospital. But since then, he tolerated this regimen much better than the Fudarabine/Mitoxantrone that he got back 2007. Conference, in San Francisco, in February.
howsdave.blogspot.com
How's Dave Doing?: Imbruvica (Ibrutinib) Day Five, and CLL Networking
http://howsdave.blogspot.com/2014/11/imbruvica-ibrutinib-day-five-and-cll.html
Sunday, November 16, 2014. Imbruvica (Ibrutinib) Day Five, and CLL Networking. Dave started the Imbruvica (Ibrutinib) five days ago. So far the main side effects have been mild nausea and extreme fatigue. Nothing else seemed to change, good or bad, until yesterday afternoon, when we noticed that the lymph nodes in his neck seemed a little smaller. And the National Institutes of Health estimates. That 15% of Leukemia patients were misdiagnosed before coming to the cancer center. Suddenly, you realize you'...
howsdave.blogspot.com
How's Dave Doing?: October 2010
http://howsdave.blogspot.com/2010_10_01_archive.html
Saturday, October 2, 2010. It seems as if each year is busier than the last. That's very good in a way: I have the energy to keep up and I actually add items to our calendar. After quite a few years of constantly feeling run down and so out of shape, it's amazing to be able leave the office after a day of work and head downtown, meet a group of friends, go gallery hopping, then out to dinner and enjoy long debates and discussions about art and photography and publishing. David W. Sumner. Subscribe to: Po...
howsdave.blogspot.com
How's Dave Doing?: July 2011
http://howsdave.blogspot.com/2011_07_01_archive.html
Wednesday, July 6, 2011. Kicked to the Curb by Kaiser. Dave has been a Kaiser member for 17 years, via two different workplaces. The company he was recently working for went belly-up so now he's looking for full-time work and looking for health care. You could get Cobra through your employer . . . oh, your company employed less than 20 people? Then they weren't required to carry Cobra. You could apply for individual coverage but you'd probably be denied for having a pre-existing condition. You could use ...
howsdave.blogspot.com
How's Dave Doing?: December 2012
http://howsdave.blogspot.com/2012_12_01_archive.html
Tuesday, December 18, 2012. New Therapies Coming up. We've been hearing quite a bit about a new therapy called Ibrutinib (eh-BRU-teh-nib.) It's a BTK inhibitor,. Not chemotherapy, and it is administered in pill form instead of infusion. We hope to learn more about it in February at the Emerging Therapies Conference. But for now, here's a little preview from the ASH press conference on this drug. Posted by Anna L. Conti. Sunday, December 2, 2012. Treatment done, for another 5 years? Was an extraordinary e...
howsdave.blogspot.com
How's Dave Doing?: December 2009
http://howsdave.blogspot.com/2009_12_01_archive.html
Monday, December 14, 2009. David the nurse and David the patient give two thumbs up to the end of Dave's 2.5 years of treatment for B-cell chronic lymphocytic leukemia. (He'll be monitored every 3 months until he needs treatment again.). Things are going great now and we're living for today, focusing on what's really important to us, in ways that we couldn't imagine before this all came down. Dave asked me to post this message from him:. Based on my history and my good response to treatment, I expect to ...
howsdave.blogspot.com
How's Dave Doing?: New Treatment Plan
http://howsdave.blogspot.com/2014/11/new-treatment-plan.html
Thursday, November 6, 2014. Dave, at lunch today, between appointments. The next hurdle is getting our insurance to approve the treatment, and then affording the co-pay. And then obtaining the drug (apparently it has to be shipped here from Texas? Luckily, Dave's oncologist has a staff person assigned to help us through these issues. We met with her this afternoon and she was very optimistic and reassuring. It might be a week or so before it's all figured out and he actually starts the drug. National Can...
howsdave.blogspot.com
How's Dave Doing?: April 2010
http://howsdave.blogspot.com/2010_04_01_archive.html
Thursday, April 22, 2010. 5 months of chemo. 2 years of Rituxan therapy. I never stopped shooting. Photo: Anna L. Conti. David W. Sumner. Subscribe to: Posts (Atom). Written by Anna L. Conti. And David W. Sumner. At first, Anna was the only one writing the posts here, but now Dave weighs in fairly regularly. Friends and family can contribute in the comments sections (and we thank you for the many good wishes.). Links to us all. Dave and Anna's home page. Alan Knight's CLL Diary. Dave Arrenson's CLL Diary.
