theleonardfamilyblog.com
Grieving a Future Loss | The Leonard Family Blog
http://theleonardfamilyblog.com/grieving-a-future-loss
Grieving a Future Loss. I have not been in this space for over two months, mainly because I have been unable to put what I’m about to write into words. On Monday, April 8th, our son Leo was diagnosed with muscular dystrophy. Six weeks later a genetic test confirmed his diagnosis – Duchenne Muscular Dystrophy. 8221; and “Will he always be Leo? 8221; The answer to both questions is yes. Two months and a world of knowledge later, those are probably still the two most important questions. Duchenne results in...
waverlysjourney.blogspot.com
Waverly's Journey: September 2014
http://waverlysjourney.blogspot.com/2014_09_01_archive.html
So that the works of God might be displayed." -John 9. Wednesday, September 10, 2014. Heart Thoughts-Is this the name? I first heard of it on a radio segment at the beginning of the week. A bad virus that was going around. I didn't think much of it until later that evening when I saw a link online, and read about it being a respiratory virus. As I read that first article, my stomach turned into knots. Is this the name of it? Is this what will take her from us? Lord, help me trust You. Hear.
waverlysjourney.blogspot.com
Waverly's Journey: Heart Thoughts-Beginning Concerns
http://waverlysjourney.blogspot.com/2012/04/heart-thoughts-beginning-concerns.html
So that the works of God might be displayed." -John 9. Sunday, April 1, 2012. Posted by The Sinks. Subscribe to: Post Comments (Atom). Heart Thoughts-High Risk Appointment- Faithful For. What's up with the Kendrick's. The Many Adventures of The Albaugh Family. A Hope to Remember.
waverlysjourney.blogspot.com
Waverly's Journey: Medication Changes Not Going Well
http://waverlysjourney.blogspot.com/2015/04/medication-changes-not-going-well.html
So that the works of God might be displayed." -John 9. Wednesday, April 22, 2015. Medication Changes Not Going Well. We can't even remember the last time she did that! It seemed to be working, and she was smiling a TON. But, the smiles were a little too much. Like she couldn't STOP smiling. And then it just got worse and worse. I snapped this picture last night of her meds while I wondered, "Am I poisoning my daughter? Posted by The Sinks. Subscribe to: Post Comments (Atom). Update for this week. What's ...
waverlysjourney.blogspot.com
Waverly's Journey: Too many seizures = hospital stay
http://waverlysjourney.blogspot.com/2015/04/too-many-seizures-hospital-stay.html
So that the works of God might be displayed." -John 9. Wednesday, April 8, 2015. Too many seizures = hospital stay. Posted by The Sinks. Subscribe to: Post Comments (Atom). Update for this week. Medication Changes Not Going Well. Too many seizures = hospital stay. What's up with the Kendrick's. The Many Adventures of The Albaugh Family. A Hope to Remember.
waverlysjourney.blogspot.com
Waverly's Journey: Been a while...
http://waverlysjourney.blogspot.com/2015/08/been-while.html
So that the works of God might be displayed." -John 9. Wednesday, August 12, 2015. I know, I know. I've been even more terrible than lately with updating here. I've missed updating about her seizures (or mostly lack thereof! Her birthday, the summer. I'm sorry. And then I got overwhelmed with catching up. So, instead of continuing to wait and not update, I'll just jump in now and maybe catch up later! Anyway, here we are! After the terrible bout with new meds and seizures back in April, she's done great!
waverlysjourney.blogspot.com
Waverly's Journey: April 2015
http://waverlysjourney.blogspot.com/2015_04_01_archive.html
So that the works of God might be displayed." -John 9. Tuesday, April 28, 2015. Update for this week. After last week's update, things have improved. She finally slept some on Friday morning, and has been sleeping at night and napping some during the day since. We stopped the Onfi completely, and it's working its way out of her system. So far her seizures haven't returned either, although the past few days she's been more twitchy, so I wonder if they are finding their way back possibly. She now has not s...
waverlysjourney.blogspot.com
Waverly's Journey: December 2014
http://waverlysjourney.blogspot.com/2014_12_01_archive.html
So that the works of God might be displayed." -John 9. Thursday, December 25, 2014. We were so blessed to celebrate Christ's birth together this year. Enjoy some pictures from our day! Posted by The Sinks. Sunday, December 7, 2014. Mary, did you know? The blind will see, the deaf will hear, the dead will live again. The lame will leap, the dumb will speak, the praises of the Lamb! Posted by The Sinks. Thursday, December 4, 2014. So Much To Do. So, this is my PLEA. If you are local to us, WE NEED HELP!
waverlysjourney.blogspot.com
Waverly's Journey: August 2015
http://waverlysjourney.blogspot.com/2015_08_01_archive.html
So that the works of God might be displayed." -John 9. Wednesday, August 26, 2015. Sorry for the blurry pics, but just wanted to update that we came home from the hospital yesterday late afternoon! Posted by The Sinks. Monday, August 24, 2015. August is NOT Awesome. So, August just seems to be a crummy month for our girl. One year ago at this very same time. Of the month, we were in the ER with Waverly with pnemonia. (We were able to avoid a hospital stay that time.) Two years ago. Posted by The Sinks.
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