alicecdkl5.blogspot.com

My name is Alice

Wednesday, July 16, 2014. My Name is Alice. Saturday, March 16, 2013. My Name is Alice. Alice's Journey Movie Preview. My Name is Alice. Nicole, Josh and Alice Interview. My Name is Alice. Well I haven't written in a while - so much to do, so little time (isn't that what they say? Alice is now 7 years old and it's time I updated some photos and reviewed her progress. YES ALICE IS WALKING! Alice was walking fairly well, then regressed for a while in January, I think she probably fell and got scared? Some ...

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My name is Alice | alicecdkl5.blogspot.com Reviews

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Wednesday, July 16, 2014. My Name is Alice. Saturday, March 16, 2013. My Name is Alice. Alice's Journey Movie Preview. My Name is Alice. Nicole, Josh and Alice Interview. My Name is Alice. Well I haven't written in a while - so much to do, so little time (isn't that what they say? Alice is now 7 years old and it's time I updated some photos and reviewed her progress. YES ALICE IS WALKING! Alice was walking fairly well, then regressed for a while in January, I think she probably fell and got scared? Some ...

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My name is Alice | alicecdkl5.blogspot.com Reviews

https://alicecdkl5.blogspot.com

Wednesday, July 16, 2014. My Name is Alice. Saturday, March 16, 2013. My Name is Alice. Alice's Journey Movie Preview. My Name is Alice. Nicole, Josh and Alice Interview. My Name is Alice. Well I haven't written in a while - so much to do, so little time (isn't that what they say? Alice is now 7 years old and it's time I updated some photos and reviewed her progress. YES ALICE IS WALKING! Alice was walking fairly well, then regressed for a while in January, I think she probably fell and got scared? Some ...

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alicecdkl5.blogspot.com

1

My name is Alice

http://alicecdkl5.blogspot.com/2013/03/well-i-havent-written-in-while-so-much.html

Saturday, March 16, 2013. Well I haven't written in a while - so much to do, so little time (isn't that what they say? Alice is now 7 years old and it's time I updated some photos and reviewed her progress. Alice is in grade 1 at main stream school - She LOVES school and has lots of friends . Alice is so bubbly and happy, maybe a little too loud at times . but to see her walk up to her friends for a cuddle when she arrives in the morning brings tears to my eyes! YES ALICE IS WALKING! I have also included...

2

My name is Alice: September 2011

http://alicecdkl5.blogspot.com/2011_09_01_archive.html

Saturday, September 3, 2011. Research, Inspiration, Love, Trials and More! I recently returned from the Mindd. Conference in Sydney (www.mindd.org) The Mindd. Foundations mission statement is ' Mindd. To improving the lives of Australians by promoting Integrative Healthcare. That treats the source of illness in each individual with the aim of helping them to reach their full potential and enjoy a life of health and happiness. Is an acronym for Metabolic, Immunologic, Neurologic. One of my biggest battles...

3

My name is Alice: March 2009

http://alicecdkl5.blogspot.com/2009_03_01_archive.html

Monday, March 23, 2009. A quote which has always stuck in my mind comes from a doctor friend of mine who said “The worst thing about disabilities is … too many children have disabilities because they are misdiagnosed. And mistreated early on, their disability is exacerbated by or, is a direct result of this early intervention”. I have a story to tell which to begin with may sound familiar to some of you. This is a story about my struggle to save my sick child. I have worked intensively on a model of de-s...

4

My name is Alice: July 2014

http://alicecdkl5.blogspot.com/2014_07_01_archive.html

Wednesday, July 16, 2014. My Name is Alice. Subscribe to: Posts (Atom). My name is Alice. Alice has a rare genetic condition called CDKL5 (Mutation in exon 18 - C deletion at position 2503), with a diagnosis of intellectual and physical disability, severe seizures, and digestive dysfunction. This is the story of our journey so far * * * To find out more about Cyclin-Dependent Kinase-Like 5 see: www.cdkl5.com * * * P.S This blog is getting very long! I know what I know.

5

My name is Alice

http://alicecdkl5.blogspot.com/2013/03/blog-post.html

Saturday, March 16, 2013. Nicole, Josh and Alice Interview. My Name is Alice. Subscribe to: Post Comments (Atom). My name is Alice. So please check 'Older Posts' at the bottom of the page for Doctors reports and more medical information. I know what I know. Alices Journey Movie Preview. Nicole, Josh and Alice Interview. Well I havent written in a while - so much to do.

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My name is Alice

Wednesday, July 16, 2014. My Name is Alice. Saturday, March 16, 2013. My Name is Alice. Alice's Journey Movie Preview. My Name is Alice. Nicole, Josh and Alice Interview. My Name is Alice. Well I haven't written in a while - so much to do, so little time (isn't that what they say? Alice is now 7 years old and it's time I updated some photos and reviewed her progress. YES ALICE IS WALKING! Alice was walking fairly well, then regressed for a while in January, I think she probably fell and got scared? Some ...

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