M-CM Network is a 501(c)(3) nonprofit that provides comprehensive medical information about macrocephaly-capillary malformation syndrome to aid in diagnosis and treatment decisions. Our goal is to establish a disease registry to collect data about affected individuals so that we can greatly expand the scope of what is known about M-CM.
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M-CM Network: Macrocephaly-Capillary Malformation Syndrome Support and Information (M-CMTC, MCAP) | archive.m-cm.net Reviews
https://archive.m-cm.net
M-CM Network is a 501(c)(3) nonprofit that provides comprehensive medical information about macrocephaly-capillary malformation syndrome to aid in diagnosis and treatment decisions. Our goal is to establish a disease registry to collect data about affected individuals so that we can greatly expand the scope of what is known about M-CM.
archive.m-cm.net
Links | M-CM Network
http://www.archive.m-cm.net/links
Brain, Tissue, and CSF Donation. Brain, Tissue, and CSF Donation. M-cm ( Macrocephaly - cmtc ) Group. This Facebook group was founded by families in the UK and pre-dates the M-CM Network. We encourage affected families to join. Parents denfant M-CM (Macrocéphalie Malformation Capillaire). Association M-CM France website. Grupo de apoyo para las familias con miembros que tienen Macrocefalia - CMTC (ahora llamado M-CM, Macrocefalia Malformación Capilar). M-CM UK Facebook page. Brochure PDFs in English.
Medical Advisory Board | M-CM Network
http://www.archive.m-cm.net/about/medical_advisory_board
Brain, Tissue, and CSF Donation. Robert Conway, MD. William B. Dobyns, MD. Has made major contributions to the field of human genetics, particularly the nature and genetic causes of developmental disorders. As both a medical geneticist and pediatric neurologist, Dr. Dobyns offers a rare combination of expertise. He examines patients with all types of genetic diseases, emphasizing children with complex developmental problems. Board Certification(s): Medical Biochemical Genetics and Psychiatry. The materia...
Blog | M-CM Network
http://www.archive.m-cm.net/blog
Brain, Tissue, and CSF Donation. A Summer Campaign: Send Jordan to England. Two weeks ago, we launched a crowdfunding campaign. To fund a trip to England for Jordan, a young American woman with M-CM. The purpose of the trip will be to connect with the M-CM community there. After the trip, Jordans father will be making a short video about Jordans experiences. Without much publicity, our campaign is over 30% funded, and we are hoping to get it to 75% by the time Jordan leaves on August 23rd. The M-CM Netwo...
Introduction | 2012 M-CM Survey | M-CM Network
http://www.archive.m-cm.net/survey2012
Brain, Tissue, and CSF Donation. Skin and Connective Tissue. Ear, Nose, Throat, Mouth. Integument (hair, skin, and nails). 2012 M-CM Survey: Introduction. In 2011, M-CM Network board member Marielle Kulling developed the following anonymous survey as part of her master’s work at MSU. The survey was run online on SurveyMonkey in 2012 and invites were sent to families enrolled in our contact registry. Please feel free to contact us. If you have any questions about specific results of this survey.
Acknowledgements | M-CM Network
http://www.archive.m-cm.net/about/acknowledgements
Brain, Tissue, and CSF Donation. Wed like to thank a few of the people and companies that made the establishment of the M-CM Network possible. Is a result of the extraordinary efforts of Daniela Iacoboni, MS, CGC. In 2002, Gaye and Keith Mulliner. Started a family support website devoted to M-CM (originally known as M-CMTC). For many years it was the only website devoted exclusively to M-CM. It recently was closed in favor of a Facebook Group. Or her tumblr, Unique You Nork. S high performance web hosting.
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Acknowledgements | M-CM Network
http://www.m-cm.net/about/acknowledgements
Brain, Tissue, and CSF Donation. Wed like to thank a few of the people and companies that made the establishment of the M-CM Network possible. Is a result of the extraordinary efforts of Daniela Iacoboni, MS, CGC. In 2002, Gaye and Keith Mulliner. Started a family support website devoted to M-CM (originally known as M-CMTC). For many years it was the only website devoted exclusively to M-CM. It recently was closed in favor of a Facebook Group. Or her tumblr, Unique You Nork. S high performance web hosting.
Links | M-CM Network
http://www.m-cm.net/links
Brain, Tissue, and CSF Donation. Brain, Tissue, and CSF Donation. M-cm ( Macrocephaly - cmtc ) Group. This Facebook group was founded by families in the UK and pre-dates the M-CM Network. We encourage affected families to join. Parents denfant M-CM (Macrocéphalie Malformation Capillaire). Association M-CM France website. Grupo de apoyo para las familias con miembros que tienen Macrocefalia - CMTC (ahora llamado M-CM, Macrocefalia Malformación Capilar). M-CM UK Facebook page. Brochure PDFs in English.
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M-CM Network: Macrocephaly-Capillary Malformation Syndrome Support and Information (M-CMTC, MCAP)
Brain, Tissue, and CSF Donation. The M-CM Network works to improve the lives of families affected by M-CM. Macrocephaly-capillary malformation (M-CM) is a rare, genetic syndrome first identified by researchers in the late 1990s. Many medical providers are unfamiliar with M-CM and affected children and their families face more questions than answers regarding the course of this condition. M-CM Network provides comprehensive medical information. To help us meet this goal. 2017 M-CM Network Contact Us.
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