babytatumtime.blogspot.com

Tatum Time

Sunday, April 5, 2015. BecauseHeLives I know that this picture will happen again, plus Trevin. One day our family will be reunited. No more missing, no more tears, no more feeling like two are missing, no more sadness. Just pure joy. I can't believe that it has been 4 months since I wrote last. i have composed several posts in my mind, but between school and life it just hasn't made it to the actual blog! Unbelievable. The good news is that it is almost over. These past four months have been filled with ...

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Tatum Time | babytatumtime.blogspot.com Reviews

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Sunday, April 5, 2015. BecauseHeLives I know that this picture will happen again, plus Trevin. One day our family will be reunited. No more missing, no more tears, no more feeling like two are missing, no more sadness. Just pure joy. I can't believe that it has been 4 months since I wrote last. i have composed several posts in my mind, but between school and life it just hasn't made it to the actual blog! Unbelievable. The good news is that it is almost over. These past four months have been filled with ...

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Tatum Time | babytatumtime.blogspot.com Reviews

https://babytatumtime.blogspot.com

Sunday, April 5, 2015. BecauseHeLives I know that this picture will happen again, plus Trevin. One day our family will be reunited. No more missing, no more tears, no more feeling like two are missing, no more sadness. Just pure joy. I can't believe that it has been 4 months since I wrote last. i have composed several posts in my mind, but between school and life it just hasn't made it to the actual blog! Unbelievable. The good news is that it is almost over. These past four months have been filled with ...

INTERNAL PAGES

babytatumtime.blogspot.com

1

Tatum Time: June 2014

http://www.babytatumtime.blogspot.com/2014_06_01_archive.html

Friday, June 27, 2014. Summer Has Taken Over My Life. Our first Timp cave hike of the year with the Grahams! I love our morning talks and walks. I am grateful that they allow me to come and be a part of their family. First rose bloom in Tatum and Trevins rose garden. These make me smile every morning. Hilary got to go to the zoo with my niece and her husband. I am not sure if she had any fun, judging from that enormous smile! This is a biggy. We have another driver! It wouldn't be Utah without some crazy...

2

Tatum Time: Have I Mentioned My Disdain for Change?....

http://www.babytatumtime.blogspot.com/2014/11/have-i-mentioned-my-disdain-for-change.html

Sunday, November 23, 2014. Have I Mentioned My Disdain for Change? I can never believe when I get a chance to sit down and blog, that it has really been a month since my last post. This month is no exception. It has been a wild one, filled with some really hard and glorious experiences. We had a good talk. It reminded me how raw those emotions are. In all of the time that the girls have been friends I have never run into her in a public place. Coincidence, NOPE! Are my teeth really that big? The last two...

3

Tatum Time: October 2014

http://www.babytatumtime.blogspot.com/2014_10_01_archive.html

Friday, October 24, 2014. Still Receiving Amazing Blessings and Miracles. There have been a lot of things going on around here:. What is the matter with our boys and taking pictures? Halea came to visit, and left this bit of advice for Hayden on his bathroom mirror. I think she meant to write Don't kiss ANY girls, not too many. Grandma and Grandpa came to visit and we had general conference. Lance is about to get passed up by Hayden? How did this happen. One more year til adulthood for this boy. The cott...

4

Tatum Time: The Struggle is Real....

http://www.babytatumtime.blogspot.com/2014/08/the-struggle-is-real.html

Tuesday, August 26, 2014. The Struggle is Real. Sunday we drove up and surprised Halea and brought her some things that she had forgotten and we found her a new bike, so we brought that up to her. It was fun to see her. We didn't stay long, but it was nice for everyone to just get to hug her and see her. He is such a crack up. So he was trying to get her to say that he was her brother for a few minutes, until finally she grumbled, "He's my brother". By the time I got home I was really overwhelmed at ever...

5

Tatum Time: #BecauseHeLives....

http://www.babytatumtime.blogspot.com/2015/04/becausehelives.html

Sunday, April 5, 2015. BecauseHeLives I know that this picture will happen again, plus Trevin. One day our family will be reunited. No more missing, no more tears, no more feeling like two are missing, no more sadness. Just pure joy. I can't believe that it has been 4 months since I wrote last. i have composed several posts in my mind, but between school and life it just hasn't made it to the actual blog! Unbelievable. The good news is that it is almost over. These past four months have been filled with ...

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compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: Time to Throw in the Towel

http://compatiblewithjoy-trisomy18.blogspot.com/2015/05/time-to-throw-in-towel.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Saturday, May 2, 2015. Time to Throw in the Towel. Yep, that kinda says it all. I called his ped yesterday morning and they changed his med to a different one, a hopefully better one. But by afternoon, "stuff" was just pouring out of him. Almost literally pouring out. But that's not where he is right now. Four weeks ago, he weighed 20&#...

compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: Trisomy 18 Awareness Day

http://compatiblewithjoy-trisomy18.blogspot.com/2015/03/trisomy-18-awareness-day.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Wednesday, March 18, 2015. Trisomy 18 Awareness Day. I've tried for days to come up with something "important" or "profound" to say about today, and it just hasn't happened. Words can't convey the sorrow we feel when a child passes on, even if we haven't met them in person, the grief that rips at our soul, or the niggling of guilt that ...

compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: We Just Don't Know...

http://compatiblewithjoy-trisomy18.blogspot.com/2015/05/we-just-dont-know.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Monday, May 4, 2015. We Just Don't Know. This kid is a mystery. He's not playing by the rules, which is often a good thing, but kinda perplexing. Here's what we know:. His first test was positive, his second (and third 'cause they were so surprised at the results) were negative. But this kiddo has a real sense of humor. The nasty di...

compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: Supports for Families Facing a Trisomy Diagnosis

http://compatiblewithjoy-trisomy18.blogspot.com/p/supports-for-families-facing-trisomy.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Supports for Families Facing a Trisomy Diagnosis. Trisomy 18 Medical Study published in Oraphant Rare Disease Journal Oct 23, 2012. Http:/ www.ncbi.nlm.nih.gov/pmc/articles/PMC3520824/. Https:/ www.facebook.com/groups/T18Mommies/. Living with Trisomy 13 Group Page. Https:/ www.facebook.com/groups/Trisomy13/. Trisomy 4 (and 9p deletion.

compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: For My Angel Mommy Friends

http://compatiblewithjoy-trisomy18.blogspot.com/2015/05/for-my-angel-mommy-friends.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Sunday, May 3, 2015. For My Angel Mommy Friends. I have a lot of angel mommy friends. Some are obvious, some less so. You'd expect that I have a lot in the Trisomy/Heart/Trach/Vent world. It's almost like we're afraid it might be catching. So if we don't acknowledge that it happens, it can't happen to us. So today, may I offer you a gif...

compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: The "Go" Bag

http://compatiblewithjoy-trisomy18.blogspot.com/p/the-go-bag.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Here's what we travel with for Aaron. It seems really complicated, but it's not, because we only had to organize it once. Then when we use something, we just make sure to replace it. Except there was the one time when I forgot to replace diapers and ended up without any. Arg! The one staple of EVERY baby's "go" bag. Suction catheters (B...

compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: Medical History Template

http://compatiblewithjoy-trisomy18.blogspot.com/p/medical-history-template.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Page 1 - this is the most important page. MEDICAL ACTION (full code, dnr, no cpr, whatever). In this text box put:. Insurance Co and policy #. EGA (gestational age @ birth). Birth weight and blood type. Current weight and date last weighed. Trach size, vent settings. G-tube size, etc that would. Be needed ASAP in an. Anytown, ST 00000.

compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: What Is Trisomy 18?

http://compatiblewithjoy-trisomy18.blogspot.com/p/what-is-trisomy-18.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. What Is Trisomy 18? Trisomy 18, also known as Edwards syndrome, is a condition which is caused by a chromosomal defect. It occurs in about 1 out of every 3000 live births. The numbers increase significantly when early pregnancy losses are factored in that occur in the 2nd and 3rd trimesters of pregnancy. Subscribe to: Posts (Atom).

compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: Happy 11 Months!

http://compatiblewithjoy-trisomy18.blogspot.com/2011/05/happy-11-months.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Friday, May 13, 2011. BUT, come Thursday, his tummy had stretched and his meds had kicked in and lowered his lung pressures. Lo and behold, we're back down low on his oxygen usage and high on the smiles! He's still taking his antibiotics, but those will be done tomorrow. The weather is also gorgeous so I'm going to try to take him t...

compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: Pertinent Medical History

http://compatiblewithjoy-trisomy18.blogspot.com/p/pertinent-medical-history.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. This is by no means exhaustive. It can be used to help others who want to know what can be done for our little ones. Aaron is a 25 month old male with full Trisomy 18 diagnosed prenatally. He was born via C-section at 37 weeks, 2 days due to persistent heart decelerations with delayed recovery. He was not breathing at birth. Intubation ...

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babytatumtime.blogspot.com

Tatum Time

Sunday, April 5, 2015. BecauseHeLives I know that this picture will happen again, plus Trevin. One day our family will be reunited. No more missing, no more tears, no more feeling like two are missing, no more sadness. Just pure joy. I can't believe that it has been 4 months since I wrote last. i have composed several posts in my mind, but between school and life it just hasn't made it to the actual blog! Unbelievable. The good news is that it is almost over. These past four months have been filled with ...

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