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Baby T's JourneyOur baby's journey with hypoplastic left heart syndrome
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Our baby's journey with hypoplastic left heart syndrome
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Our baby's journey with hypoplastic left heart syndrome
Baby T's Journey: July 2009
http://babytsjourney.blogspot.com/2009_07_01_archive.html
Our baby's journey with hypoplastic left heart syndrome. Thursday, July 23, 2009. He has now perfect the goodbye wave and crawl. Next are his attempts at pulling up and standing, soon enough he will be walking. What a long way we've come. Links to this post. Saturday, July 11, 2009. These are some wonderful days! Loves to squeeze him tight; much to the annoyance of little Mason, who in turn tries with all his might to escape her clutches. To take Mason, Matthew and Jaylen. And a swivel chair! Of July cam...
Baby T's Journey: August 2008
http://babytsjourney.blogspot.com/2008_08_01_archive.html
Our baby's journey with hypoplastic left heart syndrome. Saturday, August 30, 2008. Today, Ernie left back home. It is time that the kids know that we still exsist! Links to this post. Thursday, August 28, 2008. Starting out at 8 pounds 14 ounces sure must have come in handy,since now he looks so thin! Links to this post. Tuesday, August 26, 2008. Monday, August 25, 2008 was the day Mason's chest was closed! This morning during rounds, the Doctors all agreed that he should be weaned from some of his medi...
Baby T's Journey: December 2008
http://babytsjourney.blogspot.com/2008_12_01_archive.html
Our baby's journey with hypoplastic left heart syndrome. Monday, December 29, 2008. So this is Christmas. Santa Claus came by and took a picture with Mason and I and left several presents for him sometime during the night. At the Ronald McDonald house Mason received several presents as well. All in all, a good day. Poor boy, he has worked so hard at getting better. We have now fed him a couple of ounces in his favorite bottle. He is just going to continue proving to us he can overcome anything. Okay, eno...
Baby T's Journey: Mexico
http://babytsjourney.blogspot.com/2010/07/mexico.html
Our baby's journey with hypoplastic left heart syndrome. Friday, July 9, 2010. So the kids are in Mexico-including little Mason! The kids, my Mom and I left to Monterrey on June 17th and I stayed a few days to make sure Mason would be ok. I really didn't think he would have any problems but it made me feel better going and I love going to Mexico. The lower elevation seems to have made a difference in increasing his 02 sats. I just have to keep saying it in almost every post. God is so good.
Baby T's Journey: Superboy
http://babytsjourney.blogspot.com/2011/10/superboy.html
Our baby's journey with hypoplastic left heart syndrome. Friday, October 21, 2011. October 18, 2011. Daddy, Jaylen, Mason and Mommy flew to UNM to Mason's cardiology appointment. He was such a good little boy! He did everything he was asked, without hesitation. In the above photo he is getting an electrocardiogram and as you can see he was as happy as can be. The goal is to reach 15 kilograms, as this is the magic number for which candidates for the Fontan need to arrive at. For those of you who aren't a...
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London's HLHS Story
https://londonsheart.wordpress.com/2009/12/28/88
London's HLHS Story. December 28, 2009 at 5:17 am ( Uncategorized. We hope you all had a Merry Christmas! We all had a wonderful one. My oldest daughter Elizabeth turned 15 on Christmas Eve. Both her and Catherine got new laptops for Christmas. London got all kinds of stuff, but his favorite gift of all was his karate outfit that came with Karate lessons! December 28, 2009 at 7:22 pm. You al lok so grat and had lot of fun. I bet you had a wonderful christmas. February 2, 2010 at 4:06 pm. Hello, my 6 week...
London’s Story | London's HLHS Story
https://londonsheart.wordpress.com/2009/11/09/hello-world
London's HLHS Story. November 9, 2009 at 2:02 am ( Uncategorized. He did fine, except for the occasional blue spell, he would turn blue for no apparent reason, he did not stop breathing, just would turn blue. Not very often though. This was a cause of concern for the doctors. So instead of waiting, they wanted to do his Glenn, the 2nd stage of open-heart surgery, on Feb 1st, 2001 when he was 6 months old. We were released that afternoon. Leave a Reply Cancel reply. Enter your comment here. You are commen...
Prayers for our dear friend Chella | London's HLHS Story
https://londonsheart.wordpress.com/2009/11/12/prayers-for-our-dear-friend-chella
London's HLHS Story. Prayers for our dear friend Chella. November 12, 2009 at 6:35 am ( Friends. We have never actually met and I wish we had the chance to meet, but not only are we in 2 different countries, me the US, her Canada, but we are on totally different sides of the continent. But I keep her close to my heart and always in my thoughts and prayers. Becki (London’s mom). November 24, 2009 at 5:53 pm. Thnak you vry much for asking for thouts and prayers. Love you! November 25, 2009 at 8:09 am.
Chella (Angie) Update | London's HLHS Story
https://londonsheart.wordpress.com/2009/11/25/chella-angie-update
London's HLHS Story. November 25, 2009 at 8:12 am ( Friends. Chella is doing better! She is still in the hospital and slowly but surely improving. Today she was having trouble with her sats, she is currently on CPAP and having some problems with her breathing. Thank you for keeping her in your thoughts and prayers and please continue. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). Notify me of new comments via email.
London’s Story | London's HLHS Story
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London's HLHS Story. He did fine, except for the occasional blue spell, he would turn blue for no apparent reason, he did not stop breathing, just would turn blue. Not very often though. This was a cause of concern for the doctors. So instead of waiting, they wanted to do his Glenn, the 2nd stage of open-heart surgery, on Feb 1st, 2001 when he was 6 months old. London turned 1 on July 28th, 2001. He mastered crawling and climbing around the same time. He weighed 18 lbs and was 29 inches tall. Subscribe T...
Update | London's HLHS Story
https://londonsheart.wordpress.com/2009/11/09/update
London's HLHS Story. November 9, 2009 at 3:11 am ( Uncategorized. London is doing great! He turned 9 on July 28, 2009. He weighs 57 lbs. At his last cardiology appt in June we were told his heart is doing wonderful! We are seen by Dr Choy at UC Davis in Sacramento CA. London is in the 3rd grade this year. Here are some current pics. December 1, 2009 at 3:11 am. Hav i ever told you how much she loks like a canadian actress? December 1, 2009 at 4:01 am. December 1, 2009 at 3:11 am. Enter your comment here.
HLHS Angel~Connor Winchester | London's HLHS Story
https://londonsheart.wordpress.com/2009/12/14/hlhs-angelconnor-winchester
London's HLHS Story. HLHS Angel Connor Winchester. December 14, 2009 at 4:01 am ( HLHS Angels. Hypoplastic Left Heart Syndrome. Please keep Connor’s family in your thoughts and prayers, he lost his brave battle today. His carepage is www.carepages.com/carepages/ConnorWinchester. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. Join 3 other followers.
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Erin Grace
Saturday, November 30, 2013. Happy 7th birthday darling. Hello sweetheart I can't believe you're 7 today! Hope you are having a wonderful day and like the flowers that everyone has sent for you. We love you so much and still miss you everyday. God bless you darling x x x x x x. Wednesday, January 18, 2012. I miss you so much darling and still find it really difficult to live without you. I love you with all my heart x x x x. Sunday, December 25, 2011. Wednesday, November 30, 2011. As I'm sure you know.
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Baby T's Journey
Our baby's journey with hypoplastic left heart syndrome. Friday, March 1, 2013. It was this past July 2012 that we were scheduled for the Fontan. When I say we, it really is that Mason was scheduled, but where he goes, we go. Our debate and indecision of where to take him to complete the Fontan was finally ended when we decided that Mason's best chances lie in turning him back over to the surgeon who had already done all this magical work on his heart, Dr. Frank Hanley. On July 18, 2012 Mason went into s...
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