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BBS GRANDPARENTS

This blog is intended for Bardet-Biedl grandparents and other family members, although friends and BBS folks are welcomed, too. I want this blog to help family members with the challenges and victories that are a part of having a loved one with BBS. See previous articles, research and other helpful links below right side. Friday, December 16, 2011. GO TO THIS: http:/ www.plosbiology.org/article/info%3Adoi%2F10.1371%2Fjournal.pbio.1001219. Posted by by a Lady with an Orphan Disease. Links to this post.

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BBS GRANDPARENTS | bbsfamilies.blogspot.com Reviews
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This blog is intended for Bardet-Biedl grandparents and other family members, although friends and BBS folks are welcomed, too. I want this blog to help family members with the challenges and victories that are a part of having a loved one with BBS. See previous articles, research and other helpful links below right side. Friday, December 16, 2011. GO TO THIS: http:/ www.plosbiology.org/article/info%3Adoi%2F10.1371%2Fjournal.pbio.1001219. Posted by by a Lady with an Orphan Disease. Links to this post.
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BBS GRANDPARENTS | bbsfamilies.blogspot.com Reviews

https://bbsfamilies.blogspot.com

This blog is intended for Bardet-Biedl grandparents and other family members, although friends and BBS folks are welcomed, too. I want this blog to help family members with the challenges and victories that are a part of having a loved one with BBS. See previous articles, research and other helpful links below right side. Friday, December 16, 2011. GO TO THIS: http:/ www.plosbiology.org/article/info%3Adoi%2F10.1371%2Fjournal.pbio.1001219. Posted by by a Lady with an Orphan Disease. Links to this post.

INTERNAL PAGES

bbsfamilies.blogspot.com bbsfamilies.blogspot.com
1

BBS GRANDPARENTS: CAREGIVERS SURVEY

http://www.bbsfamilies.blogspot.com/2010/11/caregivers-survey.html

This blog is intended for Bardet-Biedl grandparents and other family members, although friends and BBS folks are welcomed, too. I want this blog to help family members with the challenges and victories that are a part of having a loved one with BBS. See previous articles, research and other helpful links below right side. Tuesday, November 9, 2010. PLEASE TAKE JUST 5 MINUTES TO FILL OUT THIS BRIEF SURVEY, IF YOU HAVEN'T ALREADY. Click here to take survey. THANK YOU SO MUCH! Posted by Teresa Scruton.

2

BBS GRANDPARENTS: ADVOCACY

http://www.bbsfamilies.blogspot.com/2011/11/advocacy.html

This blog is intended for Bardet-Biedl grandparents and other family members, although friends and BBS folks are welcomed, too. I want this blog to help family members with the challenges and victories that are a part of having a loved one with BBS. See previous articles, research and other helpful links below right side. Monday, November 21, 2011. One of my personal physicians said that even she. With LMBBS the medical personnel often don't have the training to understand that obesity is a part of the s...

3

BBS GRANDPARENTS: PS

http://www.bbsfamilies.blogspot.com/2011/11/ps.html

This blog is intended for Bardet-Biedl grandparents and other family members, although friends and BBS folks are welcomed, too. I want this blog to help family members with the challenges and victories that are a part of having a loved one with BBS. See previous articles, research and other helpful links below right side. Sunday, November 6, 2011. Posted by by a Lady with an Orphan Disease. Subscribe to: Post Comments (Atom). There was an error in this gadget. My Grandson, Ian. Ian Oct. 24, 2011.

4

BBS GRANDPARENTS: Meeting Another Parent Going Through the Diagnostic Process

http://www.bbsfamilies.blogspot.com/2011/11/meeting-another-parent-going-through.html

This blog is intended for Bardet-Biedl grandparents and other family members, although friends and BBS folks are welcomed, too. I want this blog to help family members with the challenges and victories that are a part of having a loved one with BBS. See previous articles, research and other helpful links below right side. Sunday, November 6, 2011. Meeting Another Parent Going Through the Diagnostic Process. I think we need a BBS support group in Omaha! Posted by by a Lady with an Orphan Disease.

5

BBS GRANDPARENTS: I Don't Usually Post Poetry

http://www.bbsfamilies.blogspot.com/2011/11/i-dont-usually-post-poetry.html

This blog is intended for Bardet-Biedl grandparents and other family members, although friends and BBS folks are welcomed, too. I want this blog to help family members with the challenges and victories that are a part of having a loved one with BBS. See previous articles, research and other helpful links below right side. Thursday, November 10, 2011. I Don't Usually Post Poetry. You are who you are for a reason. You're part of an intricate plan. You're a precious and perfect unique design,. The night we ...

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whittemorefamily.blogspot.com whittemorefamily.blogspot.com

Whittemore Wanderings: February 2011

http://whittemorefamily.blogspot.com/2011_02_01_archive.html

Monday, February 21, 2011. A few weeks ago Zac had surgery to remove the extra finger and toe on his left hand and foot. He had a previous SURGERY. For the same thing on his right side when he was 18 months old so we kind knew what to expect this time around. Below are some pictures of the bone structure on his left hand and foot. Here are some more pictures pre-surgery. Our camera is MIA so they are taken by my cheap but trusty Nokia. Watching "PB" (Translation: TV). Thank goodness for Bear! Funny becau...

whittemorefamily.blogspot.com whittemorefamily.blogspot.com

Whittemore Wanderings: Some Mothers Get Babies with Something More...

http://whittemorefamily.blogspot.com/2011/09/some-mothers-get-babies-with-something.html

Monday, September 19, 2011. Some Mothers Get Babies with Something More. A few months after filling out all these applications, it was brought to my attention that some think us moms who have children with special needs are. Kind of amazing. A friend of a friend (or something like that) posted this on her blog. And now I post it for you:. SOME MOTHERS GET BABIES WITH SOMETHING MORE…. That doesn’t run in our family. Can this really be happening in our lifetime? I’ve got what it takes.”. I loved reading th...

whittemorefamily.blogspot.com whittemorefamily.blogspot.com

Whittemore Wanderings: Where am I?

http://whittemorefamily.blogspot.com/2011/01/where-am-i.html

Friday, January 7, 2011. Confession: Sometimes I think about the universe. This is coming from someone who thinks that Physics is magic. But on occasion, I wonder: What's really out there? Are we humans really alone in the universe? A long time ago, my Dad (a former aerospace engineer) sent me an email with the following pictures. He thinks about this type of thing a lot more frequently than I do. I believe the pictures came from an article found HERE. Found in the Bible}. And yet sometimes, I get this s...

whittemorefamily.blogspot.com whittemorefamily.blogspot.com

Whittemore Wanderings: Big Boys

http://whittemorefamily.blogspot.com/2010/10/big-boys.html

Saturday, October 23, 2010. Zac keeps saying more and more words (or attempting to) so we are extremely pleased with that. He loves going to school and insists on being such a big boy lately! I am really happy that he musters up the courage and confidence to do things on his own. I think this will be an invaluable gift in his life as he will encounter challenges he'll need to overcome. (Oh and it's okay to laugh at this next picture, we know he looks kind of "special" in it.). He loves drawing pictures a...

whittemorefamily.blogspot.com whittemorefamily.blogspot.com

Whittemore Wanderings: Two

http://whittemorefamily.blogspot.com/2011/03/two.html

Tuesday, March 29, 2011. But then I thought back to my friend's comment about skydiving before she had kids. I knew Eddie didn't mind, I already talked to him about it. His response was, "You have insurance." Ha! Love him. Later I found out that he was referring to health insurance in the event of an accident whereas I thought he was referring to my life insurance policy in the event of my death. Can you tell who is more optimistic? Subscribe to: Post Comments (Atom). Sex and Santa Claus. Jadon: Mom, if ...

whittemorefamily.blogspot.com whittemorefamily.blogspot.com

Whittemore Wanderings: December 2010

http://whittemorefamily.blogspot.com/2010_12_01_archive.html

Monday, December 27, 2010. One of these things is not like the other. Hint: It's not Eddie's stocking. I have no clue. He doesn't live here. I have no boy named Craig. We had a really good laugh about it last year. Jadon thought it was really funny that he had a stocking with Craig's name on it {whoever Craig is} and he even set it out for Santa to fill. But not without some reassurance that Santa would in fact know that the stocking was really meant for him and not some kid named Craig. Disclaimer: This...

whittemorefamily.blogspot.com whittemorefamily.blogspot.com

Whittemore Wanderings: L-O-V-E

http://whittemorefamily.blogspot.com/2010/08/l-o-v-e.html

Monday, August 2, 2010. I love this guy. This is Ed. He's my husband. I think he's handsome, don't you? Look at his smile. It's HUGE. I love it. We just celebrated our 8th anniversary. We do things low-key around here. I said no gifts [because I don't need one from him to know that he loves me] but he got me one anyway. He's an ESFJ, that's why. He knows how to make special occasions even more significant. He gave me a copy of Himnos. Seriously, what other guy would have given me a second chance? But not...

whittemorefamily.blogspot.com whittemorefamily.blogspot.com

Whittemore Wanderings: Sex and Santa Claus

http://whittemorefamily.blogspot.com/2010/11/sex-and-santa-claus.html

Thursday, November 18, 2010. Sex and Santa Claus. Jadon: Mom, if Santa Claus and St. Nicolas are the same person, but you can only become a saint after you die, how is Santa Claus even alive? Yes, that would be my kid using deductive reasoning to conclude that Santa does not exist. Well, he was open to my explanation and I wasn't about to stifle his logical thinking.}. Me: That's a good question. I don't really have an answer for it because you're absolutely correct. So do you believe in Santa Claus?

whittemorefamily.blogspot.com whittemorefamily.blogspot.com

Whittemore Wanderings: New Year's Letter

http://whittemorefamily.blogspot.com/2009/12/new-years-letter.html

Monday, December 28, 2009. Greetings friends and family! We love you all and wish you a fruitful and blessed New Year! I included our address but if you want it you'll have to email me since I don't keep this thing private emily.whittemore@gmail.com. You can also check us out on facebook. It's much easier for me to update my status with some little quip of the day.}. Im still here, funny i just checked your blog yesterday! Anyway sounds like everything is great and you have a beautiful family. Autumn: Ed...

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BBS GRANDPARENTS

This blog is intended for Bardet-Biedl grandparents and other family members, although friends and BBS folks are welcomed, too. I want this blog to help family members with the challenges and victories that are a part of having a loved one with BBS. See previous articles, research and other helpful links below right side. Friday, December 16, 2011. GO TO THIS: http:/ www.plosbiology.org/article/info%3Adoi%2F10.1371%2Fjournal.pbio.1001219. Posted by by a Lady with an Orphan Disease. Links to this post.

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