beyond-frame.blogspot.com

For Isabella Joy

Saturday, October 1, 2011. The journey begins, our new normal. Wednesday, September 21, 2011. Our first Fundraiser to help find a cure! All the support we can get is appreciated. 3. Help us find a cure. No matter how many times I am asked if Izy is walking yet, I always struggle with answer. First thing that comes to my head is, “really again? Along with these appointments in the following weeks we will be having a birthday party! Wednesday, August 31, 2011. Subscribe to: Posts (Atom).

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For Isabella Joy | beyond-frame.blogspot.com Reviews

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Saturday, October 1, 2011. The journey begins, our new normal. Wednesday, September 21, 2011. Our first Fundraiser to help find a cure! All the support we can get is appreciated. 3. Help us find a cure. No matter how many times I am asked if Izy is walking yet, I always struggle with answer. First thing that comes to my head is, “really again? Along with these appointments in the following weeks we will be having a birthday party! Wednesday, August 31, 2011. Subscribe to: Posts (Atom).

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For Isabella Joy | beyond-frame.blogspot.com Reviews

https://beyond-frame.blogspot.com

Saturday, October 1, 2011. The journey begins, our new normal. Wednesday, September 21, 2011. Our first Fundraiser to help find a cure! All the support we can get is appreciated. 3. Help us find a cure. No matter how many times I am asked if Izy is walking yet, I always struggle with answer. First thing that comes to my head is, “really again? Along with these appointments in the following weeks we will be having a birthday party! Wednesday, August 31, 2011. Subscribe to: Posts (Atom).

INTERNAL PAGES

beyond-frame.blogspot.com

1

For Isabella Joy: Finding Hope

http://beyond-frame.blogspot.com/2011/08/finding-hope.html

Wednesday, August 31, 2011. When Izy was around 5 months we noticed that she was not sitting up correctly. Her legs were not “frogging “out but instead her knees seemed stuck pointing up instead of out to the side. September 5, 2011 at 6:58 PM. Keep writing, keep believing. We know exactly how you feel. The Castens. Subscribe to: Post Comments (Atom). View my complete profile. Ethereal template. Powered by Blogger.

2

For Isabella Joy: October 2011

http://beyond-frame.blogspot.com/2011_10_01_archive.html

Saturday, October 1, 2011. The journey begins, our new normal. Subscribe to: Posts (Atom). The journey begins, our new normal. View my complete profile. Ethereal template. Powered by Blogger.

3

For Isabella Joy: Our first Fundraiser to help find a cure!

http://beyond-frame.blogspot.com/2011/09/our-first-fundraiser-to-help-find-cure.html

Wednesday, September 21, 2011. Our first Fundraiser to help find a cure! All the support we can get is appreciated. 3. Help us find a cure. Subscribe to: Post Comments (Atom). Our first Fundraiser to help find a cure! View my complete profile. Ethereal template. Powered by Blogger.

4

For Isabella Joy: Realization

http://beyond-frame.blogspot.com/2011/09/realization.html

Wednesday, September 21, 2011. No matter how many times I am asked if Izy is walking yet, I always struggle with answer. First thing that comes to my head is, “really again? Along with these appointments in the following weeks we will be having a birthday party! Subscribe to: Post Comments (Atom). Our first Fundraiser to help find a cure! View my complete profile. Ethereal template. Powered by Blogger.

5

For Isabella Joy: The journey begins, our new normal

http://beyond-frame.blogspot.com/2011/10/journey-begins-our-new-normal.html

Saturday, October 1, 2011. The journey begins, our new normal. October 4, 2011 at 7:10 PM. Sounds like you have a good handle on things. Know that we are here anytime if you need to contact us. Our Ella has Type 2 as well. We know EXACTLY how you feel. Subscribe to: Post Comments (Atom). The journey begins, our new normal. View my complete profile. Ethereal template. Powered by Blogger.

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oursmajourney.blogspot.com

Our SMA Journey: What's Happened, What's Coming Up.....

http://oursmajourney.blogspot.com/p/timeline-of-events.html

Our life since our perfect little Noah was diagnosed with SMA type 2. What's Happened, What's Coming Up. 2/29/2012- Meeting with orthotic specialist to get Noah casted for a RGO brace. 2/27/2012- Went to DME supply and picked up Bi-pap. 02/21/2012- Results are in- Baby Eli is SMA FREE! 2/16/2012- New stander is in! 2/1/2012- Meeting with Donota (Dr. Swoboda's team PT). 1/6/2012- Getting AFO's and meeting vendor to get Noah a stander. 12/19/2011- Noah has gained 2 pounds! 9/29/2011- Met Neurologist (Dr&#4...

oursmajourney.blogspot.com

Our SMA Journey: Our Story- coming to a diagnosis........

http://oursmajourney.blogspot.com/p/our-story-coming-to-diagnosis.html

Our life since our perfect little Noah was diagnosed with SMA type 2. Our Story- coming to a diagnosis. It has been a hard road, he uses a feeding tube to eat and relies on many other machines to keep him healthy. These machines that I hated in the beginning I am thankful for. They keep my baby strong and healthy. Subscribe to: Posts (Atom). Accessible Van Fundraiser for Noah. Our Story- coming to a diagnosis. What's Happened, What's Coming Up. Nightly routine- A glimpse at a portion of our day.

oursmajourney.blogspot.com

Our SMA Journey: August 2013

http://oursmajourney.blogspot.com/2013_08_01_archive.html

Our life since our perfect little Noah was diagnosed with SMA type 2. Friday, August 2, 2013. August is SMA awareness month! What does it mean to be aware? Per Webster being aware is: having or showing realization, perception, or knowledge. While most people in our lives know that Noah has SMA, but how many REALLY know what SMA is? While most aren't aware of what exactly SMA is, know that it's much more than a little boy being in a wheelchair. Awareness is key to a cure! Lauren, Lane, Noah and Eli.

oursmajourney.blogspot.com

Our SMA Journey: Bad at updates :)

http://oursmajourney.blogspot.com/2013/07/bad-at-updates.html

Our life since our perfect little Noah was diagnosed with SMA type 2. Monday, July 1, 2013. Bad at updates :). So I have been sitting here thinking at how much has happened since I last updated our blog. Time is majorly lacking and I am exhausted all of the time. In March, Noah finally got his very own power wheelchair. He loves it and I am so proud of him. He does amazing in it and I love that he has his independence. Lauren, Lane, Noah and Eli. August 2, 2013 at 8:47 AM. I have some questions for you!

oursmajourney.blogspot.com

Our SMA Journey: May 2012

http://oursmajourney.blogspot.com/2012_05_01_archive.html

Our life since our perfect little Noah was diagnosed with SMA type 2. Thursday, May 3, 2012. Please at the very least tell everyone you know about SMA. Awareness is the key. It could happen to you! Please spread the word. 183; SMA is the #1 genetic killer of children under 2. 183; SMA is estimated to occur in nearly 1 out of every 6,000 births. 183; 1 in every 40 people, or nearly 10 million Americans, UNKNOWINGLY carry the gene responsible for SMA. Few have any known family history. Growing Pains.(b...

oursmajourney.blogspot.com

Our SMA Journey: April 2012

http://oursmajourney.blogspot.com/2012_04_01_archive.html

Our life since our perfect little Noah was diagnosed with SMA type 2. Monday, April 2, 2012. Does it ever get better. I laugh at the title of this entry because if I don't laugh, I'll cry. So back to the real reason for this blog.Noah. Friday, Lane took him and had new AFO's made. We have noticed that the are starting to get tight around his calves and leaving impressions. Since we are in our 90 days period of getting his first set, then he gets a new set at no charge. Woohoo. Lauren, Lane, Noah and Eli.

oursmajourney.blogspot.com

Our SMA Journey: July 2012

http://oursmajourney.blogspot.com/2012_07_01_archive.html

Our life since our perfect little Noah was diagnosed with SMA type 2. Sunday, July 8, 2012. The Birth of Eli. Lane and I had wanted to do a natural birth with Noah, but laws in Alabama made it impossible to have an out of hospital natural birth with a midwife. This time around we got what we wanted. I remember him repeating you can do this, and telling me how great I was doing. He was an amazing supporter. Eli was born at 10:06 pm 1 hour and 26 minutes after we got to the birthing center. Noah was born o...

oursmajourney.blogspot.com

Our SMA Journey: August is SMA awareness month!

http://oursmajourney.blogspot.com/2013/08/august-is-sma-awareness-month.html

Our life since our perfect little Noah was diagnosed with SMA type 2. Friday, August 2, 2013. August is SMA awareness month! What does it mean to be aware? Per Webster being aware is: having or showing realization, perception, or knowledge. While most people in our lives know that Noah has SMA, but how many REALLY know what SMA is? While most aren't aware of what exactly SMA is, know that it's much more than a little boy being in a wheelchair. Awareness is key to a cure! Lauren, Lane, Noah and Eli.

oursmajourney.blogspot.com

Our SMA Journey: Noah's Equipment

http://oursmajourney.blogspot.com/p/noahs-equipment.html

Our life since our perfect little Noah was diagnosed with SMA type 2. Subscribe to: Posts (Atom). Accessible Van Fundraiser for Noah. Our Story- coming to a diagnosis. What's Happened, What's Coming Up. Nightly routine- A glimpse at a portion of our day. Lauren, Lane, Noah and Eli. Noah was born on October 4, 2010. This is our story since he received the diagnosis of SMA type 2 on October 5, 2011. View my complete profile. University of Utah SMA clinic. Growing Pains.(by Michael). Where did March go?

oursmajourney.blogspot.com

Our SMA Journey: July 2013

http://oursmajourney.blogspot.com/2013_07_01_archive.html

Our life since our perfect little Noah was diagnosed with SMA type 2. Monday, July 1, 2013. Bad at updates :). So I have been sitting here thinking at how much has happened since I last updated our blog. Time is majorly lacking and I am exhausted all of the time. In March, Noah finally got his very own power wheelchair. He loves it and I am so proud of him. He does amazing in it and I love that he has his independence. Lauren, Lane, Noah and Eli. Subscribe to: Posts (Atom). Lauren, Lane, Noah and Eli.

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For Isabella Joy

Saturday, October 1, 2011. The journey begins, our new normal. Wednesday, September 21, 2011. Our first Fundraiser to help find a cure! All the support we can get is appreciated. 3. Help us find a cure. No matter how many times I am asked if Izy is walking yet, I always struggle with answer. First thing that comes to my head is, “really again? Along with these appointments in the following weeks we will be having a birthday party! Wednesday, August 31, 2011. Subscribe to: Posts (Atom).

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