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Smith Family BReaK Thru Fund

Trent and Julie Smith started the BReaK Thru Fund in honor of their three children diagnosed with Niemann-Pick Disease Type C. The funds raised will go to research for a cure.

http://www.breakthrufund.org/

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CONTACTS AT BREAKTHRUFUND.ORG

Trent Smith

2024 O●●●●●● Drive

West ●●●●●yette , Indiana, 47906

US

1.76●●●●4859
uo●●●●●●●@comcast.net

View this contact

Trent Smith

2024 O●●●●●● Drive

West ●●●●●yette , Indiana, 47906

US

1.76●●●●4859
uo●●●●●●●@comcast.net

View this contact

Trent Smith

2024 O●●●●●● Drive

West ●●●●●yette , Indiana, 47906

US

1.76●●●●4859
uo●●●●●●●@comcast.net

View this contact

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Smith Family BReaK Thru Fund | breakthrufund.org Reviews
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Trent and Julie Smith started the BReaK Thru Fund in honor of their three children diagnosed with Niemann-Pick Disease Type C. The funds raised will go to research for a cure.
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1 Smith Family BReaK Thru
2 Niemann-Pick Disease
3 Type C
4 research
5 donation
6 Keaton
7 Riley
8 Braden
9 Bradon
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join our family,join our fight,ea k,website questions,alivierk@gmail com,raden r,iley k,eaton,more photos ahead
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Smith Family BReaK Thru Fund | breakthrufund.org Reviews

https://breakthrufund.org

Trent and Julie Smith started the BReaK Thru Fund in honor of their three children diagnosed with Niemann-Pick Disease Type C. The funds raised will go to research for a cure.

INTERNAL PAGES

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1

Niemann-Pick Disease Type C

http://www.breakthrufund.org/Disease%20info.htm

Helping find a cure for Niemann-Pick Disease. Niemann-Pick Type C Disease Facts. Niemann-Pick Type C (NP-C) disease. Is a genetic, neurodegenerative disorder which causes progressive deterioration of the nervous system. A person with NPC in unable to metabolize cholesterol and other lipids properly within the cell. The NPC1 gene on chromosome 18 is abnormally present with two copies in each cell of a person who is affected. Most cases of NPC are caused by mutations or changes in this gene. Other symptoms...

2

join our family

http://www.breakthrufund.org/photos.htm

Helping find a cure for Niemann-Pick Disease. Your browser does not support inline frames or is currently configured not to display inline frames. Your browser does not support inline frames or is currently configured not to display inline frames. Your browser does not support inline frames or is currently configured not to display inline frames.

3

BReaK Thru Fund Information

http://www.breakthrufund.org/Our%20Fund.htm

Helping find a cure for Niemann-Pick Disease. BReaK Thru Fund Information. The Smith Family BReaK Thru Fund is a donor directed research fund that has been established within the framework of the Ara Parseghian Medical Research Foundation ( APMRF. The Smith Family BReaK Thru Fund is 100% directed by us along with Chandlar, our oldest daughter, with input from the NPC Scientific Community to fund research to fight NPC. We again raised almost $40,000 in our second annual golf outing in August 2009!

4

Smith Family BReaK Thru Fund News

http://www.breakthrufund.org/Fund%20News.htm

Helping find a cure for Niemann. We are currently planning our 7th Annual Golf Outing. August 2, 2014. We will once again be holding an 18 hole. Scramble, Lunch, Dinner/Auction at the Lafayette Elks Country Club. If you would like to volunteer to help the day of the event, donate an auction item, purchase tickets. To all or part of the event or just to offer a financial donation. Please send us an email! We'd love to hear from you and anticipate another fantastic and fun day of golf and friends!

5

How to help the Smith Family BReaK Thru Fund

http://www.breakthrufund.org/help.htm

Helping find a cure for Niemann-Pick Disease. How Would You Like To Make A Difference? Every dollar makes a difference so each small amount can add up to making a big change in research funding! The support from local businesses has been a huge foundation of our Fund. If you are a business who would like to be notified of sponsorship opportunities. Us and we will get the information to you. If you are free for part of all of the day of Saturday, August 2, 2014! What would a golf outing.

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LINKS TO THIS WEBSITE

niemannpick.nd.edu niemannpick.nd.edu

The Children's Stories // Ara Parseghian Medical Research Fund // University of Notre Dame

http://niemannpick.nd.edu/the-childrens-stories

University of Notre Dame. Ara Parseghian Medical Research Fund. A Legacy of Hope. The following are the stories of the children and their families struggling against Niemann-Pick Type C. Will you help join the fight? When Ty was diagnosed with Niemann-Pick Type C, we were like a deer in headlights wanting to run but where to and why. Then my daughters friends stated, Let’s do something. This disorder cant keep us down. Visit Tys Site. On our worst days, she is so off-balance that she struggles to walk ac...

parseghian.org parseghian.org

Niemann- Pick Disease - Ara Parseghian Medical Research Foundation - Lysosomal Disease

http://www.parseghian.org/index.html

About Niemann-Pick Type C. VTESSE VTS-270 Clinical Trial. ND Cycling Team raising money. YouTube-Celebrating Ara's 90th B'Day. Legacy of Hope part 1. Legacy of Hope part 2. University of Notre Dame: Fighting For The Lives Of Children. Partnership with University of Notre Dame. The University of Notre Dame has launched the Ara Parseghian Medical Research Fund. We hope you will continue your support of the Ara Parsehian Medical Research Fund. For more information visit niemannpick.nd.edu. A Goal for Life.

parseghian.org parseghian.org

Links to Other Organizations - Ara Parseghian Medical Research Foundation

http://www.parseghian.org/links.html

About Niemann-Pick Type C. Notre Dame Publications that benefit the Ara Parseghian Medical Research Foundation:. A is for Ara, The ABCs of Notre Dame Football. By Sean Callahan. The perfect primer for Notre Dame fans, young and old! Go to: www.aisforara.com. Echoes Awakened: The Year That Changed The Face of Notre Dame Football,. Based on the book. Resurrection: The Miracle Season That Saved Notre Dame. By NY Times best-selling author Jim Dent. Go to: www.echoesawakened.com. Friends of the Foundation.

wbaanews.wordpress.com wbaanews.wordpress.com

The Story That Took Me Six Weeks To Write | wbaanews

https://wbaanews.wordpress.com/2015/04/24/the-story-that-took-me-six-weeks-to-write

Skip to main content. Skip to primary sidebar. Skip to secondary sidebar. The inside scoop on what makes WBAA News click. Larr; Whose Side Are You On, Anyway? Pardon Our Dust →. The Story That Took Me Six Weeks To Write. Posted by Stan Jastrzebski. Sometimes stories take a lot longer to assemble than you think they will. When I learned that Purdue men’s basketball coach Matt Painter had won the Infiniti Coaches’ Charity Challenge. WBAA News Director, trivia aficionado, long-suffering Cub fan. Pardon Our ...

inpda.org inpda.org

Useful Links - INPDA

http://inpda.org/useful-link

International Niemann Pick Disease Alliance. Follow us on Twitter. Rare Disease Umbrella Groups. Further information on NPD. As well as our members. There are groups and organisations all over the world working in the field of NPD. We list the ones we know about here. It’s not an exhaustive list and we’ll be adding to it shortly. Rare Disease Umbrella Groups. In New Zealand: www.ldnz.org.nz. In Europe: www.eurordis.org. In North America: www.rarediseases.org. In China: www.hanjianbing.org. 2016 Internati...

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Smith Family BReaK Thru Fund

Helping find a cure for Niemann-Pick Disease. GOLF OUTING AUGUST 2 2014. We have established the Smith Family BR. Thru Fund in honor of three of our children, Braden, Riley and Keaton, who have been diagnosed with Niemann-Pick Type C. Disease (NPC). Braden lost his fight with NPC in October 2006 at the age of 10. Riley and Keaton continue to battle the effects of NPC daily. Thanks for stopping by and please feel free to contact us at: info@breakthrufund.org. Trent and Julie Smith.

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