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CCHS Support Group

We put families and professionals in touch to talk about CCHS. We support families who are affected by CCHS. Donate to help us run conferences and events for families. CCHS Support Group, 24 Larners Road, Dereham, NR19 1LE, UK. The CCHS Support Group is a charity in the UK.

http://cchssupport.co.uk/

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We put families and professionals in touch to talk about CCHS. We support families who are affected by CCHS. Donate to help us run conferences and events for families. CCHS Support Group, 24 Larners Road, Dereham, NR19 1LE, UK. The CCHS Support Group is a charity in the UK.
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CCHS Support Group | cchssupport.co.uk Reviews

https://cchssupport.co.uk

We put families and professionals in touch to talk about CCHS. We support families who are affected by CCHS. Donate to help us run conferences and events for families. CCHS Support Group, 24 Larners Road, Dereham, NR19 1LE, UK. The CCHS Support Group is a charity in the UK.

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cchssupport.co.uk cchssupport.co.uk
1

CCHS Support Group

http://www.cchssupport.co.uk/about.html

Congenital Central Hypoventilation Syndrome (CCHS) is a rare genetic condition which results in an abnormal development of the body’s automatic nervous system in early fetal life. The main consequence is a failure to automatically control breathing, which is always present during sleep, but may occur in some individuals when they are awake. There are thought to be over 100 affected families in the UK. For more information and connections with groups around the world, please browse our links.

2

CCHS Support Group

http://www.cchssupport.co.uk/events.html

Our next conference will be held on Saturday 3rd September 2016 at the Holiday Inn, Coventry. Click here to view the flyer. Click here to register. Social at Holiday Inn, Tamworth. Our second social event was held in Tamworth, Staffordshire (August 2015). Conference at Holiday Inn, Coventry (September 2014). View the programme (PDF). Social at Holiday Inn, Tamworth. Our first social event was held in Tamworth, Staffordshire (April 2013). Conference at Chessington World of Adventures (June 2012).

3

CCHS Support Group

http://www.cchssupport.co.uk/links.html

The below links, articles and publications have been collected here for further reading on CCHS and advancements in the field. Please note that some publications are written for an audience of medical professionals. We cannot guarantee the accuracy of any links. UK CCHS Information Leaflet. EU Patient Information Booklet. Contact a family Website (Link). US CCHS Family Network. US CCHS Family Network Website (Link). European CHS Network Website (Link). CCHS UK Facebook Group. CCHS UK Facebook Group (Link).

4

CCHS Support Group

http://www.cchssupport.co.uk/index.html

We put families and professionals in touch to talk about CCHS. We support families who are affected by CCHS. Donate to help us run conferences and events for families. CCHS Support Group, 24 Larners Road, Dereham, NR19 1LE, UK. The CCHS Support Group is a charity in the UK.

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blog.libertybishop.co.uk blog.libertybishop.co.uk

Charity doesn’t begin at home … for us it starts at CCHS and Willow | Liberty Bishop

http://blog.libertybishop.co.uk/charitywork

It may be our blog but. Don't Take The Liberty! Our opinions and insights into the payroll industry. Call 01582 461 444. Charity doesn’t begin at home … for us it starts at CCHS and Willow. The first event took place over Easter when we held a bake-off. A rather stupendous and gluttonous event. The team bakes included Katie’s. Victoria sponge cake with lemon icing and chocolate bunnies, the Snake Pit. Cake by Stuart, Nicky’s. Cheddar and sage scones, Kim’s. Bailey’s Mud Pie (Amazing), David’s. Pre-BBQ we...

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Undine Syndrom - Selbsthilfegruppe

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Das Kindernetzwerk e.V. bietet zu 1200 Krankheiten, darunter auch dem Undine Syndrom, Elternadressen, Informationen zu den Erkrankungen, Berichte, Fachartikel, Sekbsthifegruppen usw. Die Allianz Chronischer Seltener Erkrankungen (ACHSE) e.V. ist ein Netzwerk von Patientenorganisationen von Kindern und erwachsenen Betroffenen mit (chronischen) Seltenen Erkrankungen und ihren Angehörigen. Die Schirmherrschaft trägt Frau Eva Luise Köhler. Via Ungheria 8, 50126. Tel e Fax 39 055 6531900. NOTFALLAUSWEIS - Sam...

praxis-bell-cseke.de praxis-bell-cseke.de

Undine Syndrom - Selbsthilfegruppe

http://www.praxis-bell-cseke.de/links.htm

Das Kindernetzwerk e.V. bietet zu 1200 Krankheiten, darunter auch dem Undine Syndrom, Elternadressen, Informationen zu den Erkrankungen, Berichte, Fachartikel, Sekbsthifegruppen usw. Die Allianz Chronischer Seltener Erkrankungen (ACHSE) e.V. ist ein Netzwerk von Patientenorganisationen von Kindern und erwachsenen Betroffenen mit (chronischen) Seltenen Erkrankungen und ihren Angehörigen. Die Schirmherrschaft trägt Frau Eva Luise Köhler. Via Ungheria 8, 50126. Tel e Fax 39 055 6531900. NOTFALLAUSWEIS - Sam...

undine-syndrom.de undine-syndrom.de

Undine Syndrom - Selbsthilfegruppe

http://www.undine-syndrom.de/links.htm

Das Kindernetzwerk e.V. bietet zu 1200 Krankheiten, darunter auch dem Undine Syndrom, Elternadressen, Informationen zu den Erkrankungen, Berichte, Fachartikel, Sekbsthifegruppen usw. Die Allianz Chronischer Seltener Erkrankungen (ACHSE) e.V. ist ein Netzwerk von Patientenorganisationen von Kindern und erwachsenen Betroffenen mit (chronischen) Seltenen Erkrankungen und ihren Angehörigen. Die Schirmherrschaft trägt Frau Eva Luise Köhler. Via Ungheria 8, 50126. Tel e Fax 39 055 6531900. Bitte merken Sie sic...

lucaskennedy.co.uk lucaskennedy.co.uk

Lucas Kennedy – Specialist IT recruitment consultancy. Permanent and contract, Bromley, Kent, London, UK

http://lucaskennedy.co.uk/charities.php

44 (0)20 8658 5525. AT LUCAS KENNEDY, WE ARE PROUD TO SUPPORT MANY WORTHY CAUSES AND THE SELFLESS PEOPLE WHO DONATE THEIR TIME TO RAISING MONEY. Ldquo;I have known Paul for nearly 10 years and have no hesitation in recommending him to others for Recruitment Service. Paul not only understands my market sector but also knows the Client and understands their needs. He is up front, honest and fair in his dealing with others.”. Senior SAP SD and Logistics Consultant. Lucas Kennedy Supports Liberty Bishop.

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CCHS Support Group

We put families and professionals in touch to talk about CCHS. We support families who are affected by CCHS. Donate to help us run conferences and events for families. CCHS Support Group, 24 Larners Road, Dereham, NR19 1LE, UK. The CCHS Support Group is a charity in the UK.

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