cfvideofavorites.blogspot.com
Cystic Fibrosis: Video Favorites: August 2011
http://cfvideofavorites.blogspot.com/2011_08_01_archive.html
Sunday, August 28, 2011. Conversations with Cystic Fibrosis Mums. Mums talk about daily life and parenting when you have a child or young adult with cystic fibrosis, as well as the option of organ transplantation in later years. The video also shows Isabel Stenzel Byrnes and Anabel. Authors of The Power of Two. On their visit to Japan. Sunday, August 21, 2011. Gene Therapy for Cystic Fibrosis. Sunday, August 14, 2011. Websites (there is also information especially written for teens. Child Online is a FRE...
cfvideofavorites.blogspot.com
Cystic Fibrosis: Video Favorites: What is Bronchiectasis?
http://cfvideofavorites.blogspot.com/2011/08/what-is-bronchiectasis.html
Wednesday, August 10, 2011. Pronounced bron-kee-ek'-tas-is) is a condition often associated with cystic fibrosis. Bronchiectasis is caused by recurrent (i.e. repeated) inflammation or infection of the airways in the lungs. This video explains what bronchiectasis is and shows the related changes in the affected area of the lung(s). Subscribe to: Post Comments (Atom). There was an error in this gadget. Pulmonary (lung) function tests. What is cystic fibrosis? Conversations with Cystic Fibrosis Mums.
cfvideofavorites.blogspot.com
Cystic Fibrosis: Video Favorites: Gene Therapy for Cystic Fibrosis
http://cfvideofavorites.blogspot.com/2011/08/gene-therapy-for-cystic-fibrosis.html
Sunday, August 21, 2011. Gene Therapy for Cystic Fibrosis. Professor Brandon Wainwright explains gene therapy for cystic fibrosis. It is a bit out of date in regards to current research but it does include useful information about the potential benefits and limitations of genetic therapy. Subscribe to: Post Comments (Atom). There was an error in this gadget. Pulmonary (lung) function tests. What is cystic fibrosis? Conversations with Cystic Fibrosis Mums. Gene Therapy for Cystic Fibrosis.
cfvideofavorites.blogspot.com
Cystic Fibrosis: Video Favorites: July 2011
http://cfvideofavorites.blogspot.com/2011_07_01_archive.html
Sunday, July 24, 2011. Cystic Fibrosis Classic - "Breathe". This song has become a classic in CF related music. "Breathe" was written by Matt Scales and is performed in this video by three singers with cystic fibrosis - Tess, Josh and Rose. Matt lost his life to cystic fibrosis in 2007. He was 27 years old. The three videos include interviews with the singers, the making of the "Breathe" video and the performance. The Making of "Breathe". Interviews with the Singers of "Breathe". Sunday, July 17, 2011.
cfvideofavorites.blogspot.com
Cystic Fibrosis: Video Favorites: Cystic Fibrosis Classic - "Breathe"
http://cfvideofavorites.blogspot.com/2011/07/cystic-fibrosis-classic-breathe.html
Sunday, July 24, 2011. Cystic Fibrosis Classic - "Breathe". This song has become a classic in CF related music. "Breathe" was written by Matt Scales and is performed in this video by three singers with cystic fibrosis - Tess, Josh and Rose. Matt lost his life to cystic fibrosis in 2007. He was 27 years old. The three videos include interviews with the singers, the making of the "Breathe" video and the performance. The Making of "Breathe". Interviews with the Singers of "Breathe". What is cystic fibrosis?
lifeofkeagan.blogspot.com
Keagan Scott Covington: CF and its Drugs
http://lifeofkeagan.blogspot.com/2011/02/cf-and-its-drugs.html
Wednesday, February 23, 2011. CF and its Drugs. So news juat broke that a new medicine is going for FDA approval! Thank you to everyone who already supports the CFF! If you would like to help Keagan's Great Strides team then you may do one of the following:. 1) go to www.cff.org/great strides/krystalcovington. 2) order a team shirt $15 for adults and $10 for youth/toddler e-mail me kscott0305@gmail.com. 3) my mom is selling CF bracelets and keychains e-mail he kitty19705@gmail.com. My name is Krystal!
lifeofkeagan.blogspot.com
Keagan Scott Covington: November 2010
http://lifeofkeagan.blogspot.com/2010_11_01_archive.html
Monday, November 22, 2010. The past 7 months in the world of CF. Since we got the news of Keagan having CF, we had to adjust a lot but now it is all second nature to us! Thankfully we have not had any complications/hospitalizations with CF! He will not outgrow CF as some may think! But check for updates in the future as this is where I will be posting his CF updates rather than on Facebook! My name is Krystal! How we discovered CF. My name is Krystal! Subscribe to: Posts (Atom). My name is Krystal! Mutat...
lifeofkeagan.blogspot.com
Keagan Scott Covington: A little Peek into Keagan's daily LIFE....
http://lifeofkeagan.blogspot.com/2011/01/little-peek-into-keagans-daily-life.html
Monday, January 10, 2011. A little Peek into Keagan's daily LIFE. Just wanted to post Keagan's current feeding and treatment schedule. You may look at Keagan's treatment and think.WOW! That's a lot. But really his treatments are not a lot compared to other CF babies and as he gets older the list will more than likely only grow! 9 am: wake up and eats. 1 1/2 enzymes in applesauce before meal. 2 teaspoons of Omeprazole (reflux med compounded into liquid). 1 mL of Aquadeks (multivitamin: A, D, K, and E).
lifeofkeagan.blogspot.com
Keagan Scott Covington: April 2011
http://lifeofkeagan.blogspot.com/2011_04_01_archive.html
Wednesday, April 6, 2011. Another Day at Clinic. Great news: 100% O2 sat level, lungs sounded great, got the vest ordered and we will receive it tomorrow, we are stopping the albuterol before hyper-sal and if no cough arises then in 12 days we will also be stopping pulmozyme but he is satying on hyper-sal, gained 1lb 3oz so he is 22lbs 3oz.i am sooo happy! Great news: NO milk allergy! But we are doing some stool tests to try and figure out why they are still sooo loose! I am one happy momma :). Salt- 1/4...
