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Undergoing a Cystectomy

I am documenting my experience before, during and after having a Cystectomy (bladder removal). I noticed there wasn't a lot of information publicly available on the operation (other than the mechanics of it) when I was searching myself. As a lot of doctors I know have the "this is what you have, go look it up on the internet" mentality, I will post my experiences here, in the hope that it will help someone else who may have to go through the same thing.

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Undergoing a Cystectomy | cystectomyblog.blogspot.com Reviews
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I am documenting my experience before, during and after having a Cystectomy (bladder removal). I noticed there wasn&#39;t a lot of information publicly available on the operation (other than the mechanics of it) when I was searching myself. As a lot of doctors I know have the &quot;this is what you have, go look it up on the internet&quot; mentality, I will post my experiences here, in the hope that it will help someone else who may have to go through the same thing.
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Undergoing a Cystectomy | cystectomyblog.blogspot.com Reviews

https://cystectomyblog.blogspot.com

I am documenting my experience before, during and after having a Cystectomy (bladder removal). I noticed there wasn&#39;t a lot of information publicly available on the operation (other than the mechanics of it) when I was searching myself. As a lot of doctors I know have the &quot;this is what you have, go look it up on the internet&quot; mentality, I will post my experiences here, in the hope that it will help someone else who may have to go through the same thing.

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cystectomyblog.blogspot.com cystectomyblog.blogspot.com
1

Undergoing a Cystectomy: Side effects from medication.

http://cystectomyblog.blogspot.com/2011/09/side-effects-from-medication.html

Tuesday, 27 September 2011. Side effects from medication. I've been on the highest possible doses of very hefty pain medication, and I've developed some adverse side effects over time. The medication doesn't take the pain away, it just allows me to get some sleep at night. Even then I'm still self cath-ing 30 (yes, 30! Still, there is the old saying "if everyone wanted put their problems out to swap, we'd soon grab ours back.". Right, that's it for now, I'm too doped to write any more.

2

Undergoing a Cystectomy: October 2010

http://cystectomyblog.blogspot.com/2010_10_01_archive.html

Tuesday, 5 October 2010. Post Operation – 3 weeks. I have had a Neobladder made and have been home for 12 days. I’m doing okay. So this is how it all went:. I was admitted at 5pm on Sunday 12. I remember being quite grumpy at being woken up (as my fiancée joked with the nurse later, there was no change there! It was quite gross, but a good sign that things were working again. The second and third ones were very painful, I think I’d overdone it with the eating! I can have showers but not baths. I did ...

3

Undergoing a Cystectomy: Botox treatment failed

http://cystectomyblog.blogspot.com/2011/05/botox-didnt-work.html

Sunday, 8 May 2011. The benefits of the Botox injections I had last month only lasted 11 days, after three days of being sore after the procedure. So that's another fail to add to the list. I really am going to push for the Mitrofanoff when I see my consultant at the end of the month. Although my consultant says otherwise. I really have had more grief than I can tolerate. With all his concerns about my age and being able to have children,. I can't have children in my current state .

4

Undergoing a Cystectomy: Mirtofanoff Operation

http://cystectomyblog.blogspot.com/2012/02/mirtofanoff-operation.html

Thursday, 9 February 2012. I'm sorry I haven't posted for a while. It's been hectic. This made the pain so much worse, and nothing seemed to work for it except the PCA which I was given on day five. I had problems with my epidural again, I don't think I mentioned it on my Neobladder op blog, but it only works on the left side of my body. I've been a prisoner in my house for nearly two years so it will be good to get out there again! 5 June 2012 at 21:24. Hi, I was wondering how you are doing now? My firs...

5

Undergoing a Cystectomy: September 2010

http://cystectomyblog.blogspot.com/2010_09_01_archive.html

Saturday, 11 September 2010. Blog 7 Eventful week before op. It has been an eventful and unpleasant week. This Tuesday, I got a call from a stoma nurse. She said she didn’t know how I got on her list, or why I was on there so late. (It turned out that I had been referred to another hospital closer (different PCT) but they had ignored it. My hospital didn't inform me they were referring me elsewhere and the other PCT didn't contact me at all! Ideally what he wants to do is a Neobladder. If that is not...

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Thursday, 1 November 2012. 11 months on from Mitrofanoff Op. I can't believe it's been almost a year. I'm starting to get back to normal. I can go out on my own. I've started volunteering. We bought a camper van so we could go away on short trips, as the amount of kit I have to take with me would fill a suitcase on it's own! I feel a lot more positive. I've struggled with infections since the op, averaging two a month, although I went 6 weeks infection free until last week. I sleep 8 hours uninterrupted&...

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