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cysticfibrosismom | I'm just a regular mom, figuring out life with my daughter Sophia, who has cystic fibrosis.Take this journey with me.

I'm just a regular mom, figuring out life with my daughter Sophia, who has cystic fibrosis.Take this journey with me.

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cysticfibrosismom | I'm just a regular mom, figuring out life with my daughter Sophia, who has cystic fibrosis.Take this journey with me. | cysticfibrosismom.com Reviews

https://cysticfibrosismom.com

I'm just a regular mom, figuring out life with my daughter Sophia, who has cystic fibrosis.Take this journey with me.

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1

trampoline | cysticfibrosismom

https://cysticfibrosismom.com/tag/trampoline

I'm just a regular mom, figuring out life with my daughter Sophia, who has cystic fibrosis.Take this journey with me. May 10, 2014. Sometimes it takes a superhero (aka Happy Mothers Day). We have recently been inspired in our house by the appearance of a Bat Girl costume. It’s pink and shiny. It has a mask, boots, arm sleeves, and cape. Who could ask for anything more? We are witnessing the birth of a superhero. Follow Blog via Email. Join 831 other followers. Blog at WordPress.com. Send to Email Address.

2

Summer Road Map | cysticfibrosismom

https://cysticfibrosismom.com/2014/07/07/summer-road-map

I'm just a regular mom, figuring out life with my daughter Sophia, who has cystic fibrosis.Take this journey with me. July 7, 2014. Some people let life happen around them. They are content to sit quietly and learn from other’s mistakes. They are cautious. Then there are those who make life happen. They need experiences to help them learn. They are not cautious. Some were from riding a 2-wheeler (yes he’s only 3, but did you think that would stop him? Simon is a road map to our summer fun. Sounds a lot l...

3

Letters to Sophia | cysticfibrosismom

https://cysticfibrosismom.com/letters-to-sophia

I'm just a regular mom, figuring out life with my daughter Sophia, who has cystic fibrosis.Take this journey with me. If you would like to share a story, a life experience, or really just about anything with Sophia, please send me your letter in an email to:. If permission is granted from the writer, I will post these letters here. As Sophia gets older, I will share these letters with her. 7 thoughts on “ Letters to Sophia. Harold and Karen, 15 Green Meadow. December 30, 2013 at 9:42 pm. Since the roasti...

4

transitions | cysticfibrosismom

https://cysticfibrosismom.com/tag/transitions

I'm just a regular mom, figuring out life with my daughter Sophia, who has cystic fibrosis.Take this journey with me. July 31, 2014. Seriously, how do I slow down time? As if that wasn’t enough excitement, Sophia also started riding a bike without training wheels! Away she goes, independently riding down the street, wind blowing her hair, big smiles and a few scraped up knees and elbows. As the years go by, all I can hope is that the thread of love that binds us together never gets frayed or worn.

5

The Space-time Continuum | cysticfibrosismom

https://cysticfibrosismom.com/2014/07/31/the-space-time-continuum

I'm just a regular mom, figuring out life with my daughter Sophia, who has cystic fibrosis.Take this journey with me. July 31, 2014. Seriously, how do I slow down time? As if that wasn’t enough excitement, Sophia also started riding a bike without training wheels! Away she goes, independently riding down the street, wind blowing her hair, big smiles and a few scraped up knees and elbows. As the years go by, all I can hope is that the thread of love that binds us together never gets frayed or worn. Leave ...

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chaseshalyse.blogspot.com chaseshalyse.blogspot.com

Simply Life: April 2014

http://chaseshalyse.blogspot.com/2014_04_01_archive.html

What is Cystic Fibrosis? Help Find A Cure. Saturday, April 05, 2014. Need I say any more? I guess I will so you know how it went. Let's just say this trip has been my favorite one so far. I say so far because we WILL go back. Again, and again. and again. I was thinking about it the other day how many times we have been since we were married. Because that's when the obsession really. 2007- the year we were married. We went for our honeymoon. 2008- we went for our one year anniversary. This was so awesome&...

chaseshalyse.blogspot.com chaseshalyse.blogspot.com

Simply Life: Cha-Cha-Cha-Changes

http://chaseshalyse.blogspot.com/2014/08/cha-cha-cha-changes.html

What is Cystic Fibrosis? Help Find A Cure. Thursday, August 21, 2014. The blog I mean. I finally decided to break out the big guns and combine all my stuff. No more hopping around. The site is still under construction but it's a start. I will share bits of our life living with cystic fibrosis. I hope to raise awareness for my daughters illness so that one day she can say "I'm Cured! I will share our simple life full of love, chaos and chickens. Check it out here. Thanks for the love! Grab our New Button!

mummymedic.wordpress.com mummymedic.wordpress.com

Survey of Junior Doctor Parents Show More Than 50% Considering Leaving NHS England | mummymedic

https://mummymedic.wordpress.com/2016/04/25/survey-of-junior-doctor-parents-show-more-than-50-considering-leaving-nhs-england-if-the-junior-doctor-contract-is-imposed

Mum of four, CF parent and anaesthetic junior doctor. Survey of Junior Doctor Parents Show More Than 50% Considering Leaving NHS England. Of particular concern are the doctor and doctor couples that comprise nearly 40% of those who responded. I cannot imagine how it would be tolerable if the frequency of our weekend working were to increase; I could easily imagine this causing marital and family breakdown, said one married male doctor. 38% have doctor partner/spouse. 39% caring for one, 39% caring for two.

chaseshalyse.blogspot.com chaseshalyse.blogspot.com

Simply Life: What is Cystic Fibrosis?

http://chaseshalyse.blogspot.com/p/what-is-cystic-fibrosis.html

What is Cystic Fibrosis? Help Find A Cure. What is Cystic Fibrosis? What Is Cystic Fibrosis? Cystic fibrosis is a life-threatening genetic disease that causes mucus to build up and clog some of the organs in the body, particularly the lungs and pancreas. When mucus clogs the lungs, it can make breathing very difficult. The thick mucus also causes bacteria (or germs) to get stuck in the airways, which causes inflammation (or swelling) and infections that lead to lung damage. Symptoms of Cystic Fibrosis.

chaseshalyse.blogspot.com chaseshalyse.blogspot.com

Simply Life: December 2011

http://chaseshalyse.blogspot.com/2011_12_01_archive.html

What is Cystic Fibrosis? Help Find A Cure. Wednesday, December 28, 2011. Seems I'm always behind. I'm just slow I guess. Everything seems to be that way in my life haha. Ah well. I'm trying. So Claire turned one! And in November my baby boy turned 3! Aw, that really makes me so sad. He's still my little nursery baby and as of this week he will be a sunbeam! Kael loves to dress up in uncle Hunter's boxing gear! I swear it wasn't Kael who gave her the black eye). Big Boy Turned '3'! That was basically our ...

chaseshalyse.blogspot.com chaseshalyse.blogspot.com

Simply Life: September 2013

http://chaseshalyse.blogspot.com/2013_09_01_archive.html

What is Cystic Fibrosis? Help Find A Cure. Sunday, September 29, 2013. Many people asked me who she looked like today. I think she mostly looks like Kael with touches of Claire. Here are some comparisons. You be the judge. Chase and Shalyse Rogers. Tuesday, September 24, 2013. Life with a CF baby has been crazy but I wouldn't change it for the world. We love our little miss Molly and are so excited to see her grow. Meeting her big brother for the first time. First Story-kid wanted to read a story to her.

chaseshalyse.blogspot.com chaseshalyse.blogspot.com

Simply Life: September 2012

http://chaseshalyse.blogspot.com/2012_09_01_archive.html

What is Cystic Fibrosis? Help Find A Cure. Wednesday, September 26, 2012. Ok, so blogging hasn't been on my list of things to do lately. My list is just too dang big and updating our family happenings is on the bottom of the list. The kids are napping and I have no desire to do anything at the moment so here I am. I have been horrible at taking pictures lately. So my goal since the holidays are right around the corner is to be better. Me and Chase have started school this semester. Yes, me too! But reall...

chaseshalyse.blogspot.com chaseshalyse.blogspot.com

Simply Life: February 2013

http://chaseshalyse.blogspot.com/2013_02_01_archive.html

What is Cystic Fibrosis? Help Find A Cure. Monday, February 25, 2013. Time to get back on track. Geez it's been long. I'm not doing so good with my updates. I'm way behind. I've been trying to play catch up on all my picture books and it's putting me behind on my current stuff. I haven't been taking many pictures recently because my wonderful daughter broke my favorite lens. It's only an excuse but you know. Anyways here's some of my fav pics from my phone that I took recently. Claire loves to clean....

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Cystic Fibrosis: Education and Inspiration

Cystic Fibrosis: Education and Inspiration. Sunday, November 17, 2013. Clinical Trials: A Vital Part of Cystic Fibrosis Treament Advancements. Additionally, there are first-ever inhaled antibiotic therapies being studied in CF patients. For example, Savara Pharma’s (. Great sources for online searches of CF clinical trials are. Drug pipeline, and company websites. A great example of a patient-friendly company website with easy-to-navigate study site info is Savara Pharma’s. Links to this post. Occurs whe...

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Cystic Fibrosis Law - Prenatal Misdiagnosis - Weiss & Paarz

Medical Malpractice is the only thing we do. Contact Us. Get Support, Compensation, and Knowledge. Feel free to browse our website to learn more about Cystic fibrosis and what to expect. The law firm of Weiss and Paarz, P.C. Medical Malpractice is the only thing we do. Contact Us. Get your FREE Consultation. All information is treated in the strictest confidence. Replace this widget content by going to Appearance / Widgets. And dragging widgets into Footer Area 1. And dragging widgets into Footer Area 2.

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Cystic Fibrosis infertility and baby gender selection

Your stop for fertility help. Learn more about getting pregnant here. IVF and gender selection. Discusssion on IVF and gender selection. And Male Infertility Site. This website is a compilation of information on cystic fibrosis and male infertility treatments, as well. As our experiences on our journey to have a biological child. This site was created with the intention to provide thorough information to those seeking further. 2) The views are expressed here, and all fertility, IVF. Whether you are havin...

cysticfibrosismercer3rd.blogspot.com cysticfibrosismercer3rd.blogspot.com

Cystic Fibrosis

Tuesday, March 3, 2009. Http:/ www.medhunters.com/job/882885.html. Http:/ www.netdoctor.co.uk/diseases/facts/cysticfibrosis.htm. Http:/ hcd2.bupa.co.uk/fact sheets/Mosby factsheets/Cystic fibrosis.html. Published by healthinfo@bupa.com,/. Http:/ www.palmslab.com.au/Education/Genetics/cf.shtml/. PaLMS Laboratory and Community Genetics/ 2/11/09. Http:/ kidshealth.org/kid/health problems/heart/cystic fibrosis.html. Raj Padman, MD. Http:/ www.med.umich.edu/1Libr/yourchild/chronic.htm. Thursday, February 19, ...

cysticfibrosismom.com cysticfibrosismom.com

cysticfibrosismom | I'm just a regular mom, figuring out life with my daughter Sophia, who has cystic fibrosis.Take this journey with me.

I'm just a regular mom, figuring out life with my daughter Sophia, who has cystic fibrosis.Take this journey with me. October 4, 2016. Day after day, we’re doing ‘just fine.’. Following routines keeps us in line. Then one day a blip in the static,. My thoughts go awry, my emotions erratic. I thought I was living far away from the ledge,. But as it turns out my toe’s on the edge. One health scare turned my head around,. I’m shocked to find no sign of the ground. Proud to be tough, resilient, and stoic,.

cysticfibrosisnews.com cysticfibrosisnews.com

Cystic Fibrosis News Network

New CF guidelines for pre-schoolers. April 12, 2016. The US. CF Foundation has published clinical practice guidelines for the management of pediatric CF patients aged 2-5 years (Lahiri et al. Abnormal response to rhinovirus in CF. March 29, 2016. Azithromycin inhaled tobramycin not a favourable combination. March 29, 2016. 2013;12:130-140). The mean change from baseline in % predicted FEV. Ivacaftor/lumacaftor in F508del: subgroup analysis. March 15, 2016. N Engl J Med. 2015;373:220-231); see Combination...

cysticfibrosisnewstoday.com cysticfibrosisnewstoday.com

Cystic Fibrosis Treatment, Therapy and New Medications & Drug | CF News Today

Cystic Fibrosis Prognosis & Therapies. Cystic Fibrosis and Sexuality. Cystic Fibrosis-related Diabetes (CFRD). Osteoporosis and Osteopenia in Cystic Fibrosis. Bronchodilators for CF Albuterol (Ventolin, Proventil). Bronchodilators for CF Levalbuterol Hydrochloride (Xopenex). Probiotics and Prebiotics for Cystic Fibrosis. Cystic Fibrosis and Vitamins. AquADEKs for Nutritional-GI in CF. Cystic Fibrosis in Children. Cystic Fibrosis Life Expectancy. Cystic Fibrosis and Exercise. Cystic Fibrosis and Nutrition.

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Sunday, August 9 - Tuesday, August 11, 2015. Palm Beach Gardens, FL. 3 Nights Resort Accommodations. 2 Rounds of Golf (Monday and Tuesday). Club storage and access to tournament-quality practice facilities with unlimited practice balls. Daily breakfast at The Palm Terrace restaurant. Single Occupancy - $950* per person. Double Occupancy - $750* per person. Additional Room Nights - Single/Double - $149* plus tax and Resort Fee. CF Golf Charity Outing:. Tournament Round 1 - Palmer Course - 8:30am Shotgun.