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dontshrink.com

Don't Shrink

A blog by an Amyotrophic Lateral Sclerosis sufferer ALS MND

http://www.dontshrink.com/

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Don't Shrink | dontshrink.com Reviews
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A blog by an Amyotrophic Lateral Sclerosis sufferer ALS MND
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1 pages
2 what is als/mnd
3 about this blog
4 the conway cup
5 spread awareness
6 support research
7 princess reality
8 posted by
9 amanda conway
10 reactions
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Don't Shrink | dontshrink.com Reviews

https://dontshrink.com

A blog by an Amyotrophic Lateral Sclerosis sufferer ALS MND

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1

Don't Shrink: Back again

http://www.dontshrink.com/2015/08/back-again.html

Thursday, August 6, 2015. My dad has battled cancer in one form or another for about 10 years. In June, he started chemo to hopefully knock it back down again. After dealing with all the unpleasantness of chemo, the doctor told him that it had made the cancer cells more aggressive, instead of killing them off. Two weeks later, August 1st, he died. In many ways, they couldn't have been more different. But I loved them both, and they both loved me. That's all that really matters. August 6, 2015 at 10:21 PM.

2

Don't Shrink: Spread Awareness

http://www.dontshrink.com/p/spre.html

Awareness is a key component in the fight to find a cure for ALS. I created this page so that I could have a fact-sheet about ALS that would be easy for people to share. Please do that: please share the information on this page. Share this page on Facebook, link to it on Twitter, or copy and paste in an email to your family and friends. Please help to spread awareness. Amyotrophic lateral sclerosis (ALS), is also known as Motor Neuron Disease (MND) and as Lou Gehrig's disease. The British astro-physicist...

3

Don't Shrink: Simply Safe

http://www.dontshrink.com/2015/02/simply-safe.html

Monday, February 9, 2015. One of the things I can still do is shop. I must confess that I fell victim to a pretty good ad. The upshot was my purchase of a security system for the house. I say security system, but it's really as safety system for the whole house. The three biggest selling points are that it is completely wireless, easy to install yourself, and the fee for monitoring the system is very reasonable. The system comes from SimpliSafe.com and Amanda and couldnt be happier. Check it out here.

4

Don't Shrink: Where Did the Blog Title Come From?

http://www.dontshrink.com/2011/11/new-address-and-title.html

Tuesday, November 29, 2011. Where Did the Blog Title Come From? The eagle-eyed among you will note that the title of the blog has changed from the cumbersome "Amyotrophic Lateral Sclerosis" to "Don't Shrink.". If you know me, and have seen the physical changes I've gone through, then you're likely convinced that this is some black humor at work. The real motivation came, of course, from the world of football. More accurately, from the mouth of Jock Stein:. November 29, 2011 at 2:19 PM. We owe how much?

5

Don't Shrink: Florence

http://www.dontshrink.com/2015/06/florence.html

Tuesday, June 30, 2015. We never got the chance to see her in concert, but Tony was a big fan. I think he would have liked this song. plus the video is weird, so it's extra fitting. Subscribe to: Post Comments (Atom). I admit, it is a somewhat strange title for a blog! Find out where the inspiration came from. Now there's a blog address not many people are interested in owning! Extended Leave (Open letter to J. Donald). Tony Conway. Awesome Inc. template. Powered by Blogger.

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stephenfinger.wordpress.com stephenfinger.wordpress.com

May | 2015 | Stephen Finger

https://stephenfinger.wordpress.com/2015/05

Husband, father, brother, son, living with ALS. May 31, 2015. ALS Awareness Month. Beyond the Ice Bucket Challenge. My ALS Story. May 2013. Comments on Guidance for Industry Drug Development for Amyotrophic Lateral Sclerosis. How are you doing? Response to “The 21st Century Cures Act could be a harmful step backward”. On Comments on Guidance for Indu…. On Comments on Guidance for Indu…. On Comments on Guidance for Indu…. Ron Malone on Comments on Guidance for Indu…. Daniel Brownstein on How are you doing?

stephenfinger.wordpress.com stephenfinger.wordpress.com

Donate | Stephen Finger

https://stephenfinger.wordpress.com/fundraising

Husband, father, brother, son, living with ALS. We are committed to raising funds to help more rapidly develop an effective treatment for ALS. Our family and friends have contributed over $200,000 to the fight. We support the ALS Therapy Development Institute. For more information, visit http:/ community.als.net/rootforacure. We also supports Team Gleason and all they do to improve the lives of people living with ALS. http:/ www.teamgleason.org. One thought on “ Donate. August 20, 2014 at 10:20 am. Ron M...

conwaycup.com conwaycup.com

The Conway Cup: About

http://www.conwaycup.com/p/why-were-here.html

The official site of the Conway Cup; supporting the Conway family and others battling ALS. Tony was diagnosed with ALS. Lou Gehrig’s disease), a form of Motor Neuron Disease. Please feel free to contact me of you have any questions or suggestions. Your help will be greatly appreciated. Follow Tony and learn more about ALS at www.dontshrink.com. I hope you will join all of Tony's friends and family in Lexington to "Kick some ALS." I look forward to seeing all of you in Lexington this April!

stephenfinger.wordpress.com stephenfinger.wordpress.com

March | 2015 | Stephen Finger

https://stephenfinger.wordpress.com/2015/03

Husband, father, brother, son, living with ALS. March 29, 2015. The Case for Granting Accelerated Approval to GM604. This past week I went to Washington DC to speak at a rally urging the FDA to grant Accelerated Approval for GM604. I saw old friends, made new friends, connected with many families in the ALS community, and met with members of Congress. Here is the text of my speech in which I lay out why I believe Accelerated Approval should be granted:. March 25, 2015. Two years ago I was diagnosed with ...

stephenfinger.wordpress.com stephenfinger.wordpress.com

January | 2015 | Stephen Finger

https://stephenfinger.wordpress.com/2015/01

Husband, father, brother, son, living with ALS. January 22, 2015. Over 75,000 members of the ALS community have signed a petition encouraging the FDA to grant the approval ( https:/ www.change.org/p/food-and-drug-administration-accelerated-fda-approval-of-genervon-s-gm6-for-use-in-als. Https:/ www.change.org/p/food-and-drug-administration-accelerated-fda-approval-of-genervon-s-gm6-for-use-in-als. January 13, 2015. My ALS Story. May 2013. How are you doing? On Comments on Guidance for Indu…. A Life Story ...

gofundme.com gofundme.com

The Conway 100km Challenge by Amanda Conway - GoFundMe

https://www.gofundme.com/theconway100km

Raise money for any cause. Try searching for locations, campaign titles and names. The Conway 100km Challenge. Church Ward, ENG. This is a shout out to anyone that either knows Tony, or have heard his story, and would like to do something good for him and his family. That’s when we came up with The Conway 100km Challenge. But we wanted a stern test to make it a real challenge, whilst at the same time encourage as many people as possible to take part. Awareness of ALS has gone through the roof recently wi...

stephenfinger.wordpress.com stephenfinger.wordpress.com

TDI Weekend – November 2014 | Stephen Finger

https://stephenfinger.wordpress.com/2014/11/14/tdi-weekend

Husband, father, brother, son, living with ALS. November 14, 2014. TDI Weekend – November 2014. On Thursday, TDI hosted a Leadership Summit. They had presentations from a number of scientists and a panel focused more on the business side of drug development. Then Saturday night was their annual gala. And on Monday, I got to tour the lab and gave my samples for their Precision Medicine Program. Hope and Steve Dezember perfectly danced through theirs ( https:/ www.youtube.com/watch? At the cocktail hour on...

stephenfinger.wordpress.com stephenfinger.wordpress.com

Genervon’s GM6 | Stephen Finger

https://stephenfinger.wordpress.com/2015/01/22/genervons-gm6

Husband, father, brother, son, living with ALS. January 22, 2015. Over 75,000 members of the ALS community have signed a petition encouraging the FDA to grant the approval ( https:/ www.change.org/p/food-and-drug-administration-accelerated-fda-approval-of-genervon-s-gm6-for-use-in-als. Https:/ www.change.org/p/food-and-drug-administration-accelerated-fda-approval-of-genervon-s-gm6-for-use-in-als. The Case for Granting Accelerated Approval to GM604 →. 15 thoughts on “ Genervon’s GM6. Sent from my iPhone.

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Saturday, August 15, 2015. It's been a while since updating that blog. I also guess that the blog thing is a kinda dying lately (for the past year or two). Anyways, Im back! And I'm back because I want to motivate myself and people around the world! Usually people starting blogs/posting graphs when they got something good in their life and they want to share it - true. For me, I wanna show people how to be strong and never give up! From where I should start? Also a short story about myself:. What most gr...

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Don't Shrink

Tuesday, February 13, 2018. WARNING* deep secrets will be revealed below*. Ever since I was a little girl, I have had a particular habit when trying to go to sleep. I would always daydream (or would this be nightdream? After Tony died, that problem lingered and I still haven't really been able to settle back into this habit. For one, there is no one to star in my dreams anymore. And lately this type of daydream leaves me feeling more pathetic than anything else. My new plan is to daydream about the thing...

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Don't shun the 41. Life in Austin's East Riverside Corridor. Man hit by SUV at Riverside bus stop. As I have decried in recent posts, the traffic situation on East Riverside is out of control! We’ve seen cars flying off the road. But as far as I know this is the first serious injury to result from this senseless, aggressive driving. Continue reading →. This entry was posted in Traffic. August 8, 2013. Goodwill coming to East Riverside. This entry was posted in New to the 41. August 1, 2013. June 11, 2013.

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Because it's already happened in restaurants, movie theaters, and most recently, at a Broadway show. At any given moment of the day, there are an infinite number of disconnected thoughts swirling around in my brain. This blog is an attempt at a semblance of peace of mind; a good night's sleep wouldn't be so bad, either. I wasn’t going to write a new one this year. But…. Be kind to yourself in the year ahead. Meet new people and talk to them. Make new things and show them to people who might enjoy them.

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