newshd.net
Link | Huntington's Disease News
http://www.newshd.net/link
Venerdì, aprile 21, 2017. Sign in / Join. Log into your account. FDA approves a new drug for symptoms of Huntington’s disease. FDA Approves Second Drug for Huntington Disease Symptom. New discovery is a step towards developing Huntington’s disease treatments before…. Affrontare il rischio genetico e proteggere la speranza. Stanford study identifies new biomarkers for Huntington’s disease. HD free with PGD. Predictive testing for HD. Independent Swedish HD Site. 8211; Information in Swedish about HD.
eurohuntington.org
Collaboration between EHA and EHDN – European Huntington Association
http://eurohuntington.org/2016/12/14/stronger-together-collaboration-between-eha-and-ehdn
The EHA Board: 2016 2018. Collaboration between EHA and EHDN. Collaboration between EHA and EHDN. Of December a meeting took place between the European Huntington Association and the management of the European Huntington’s Disease Network. The basis for the meeting was the EHA project. The two organizations discussed how they could extend their collaboration and work coordinated together. Aims to join forces to speed up recruitment to Enroll-HD. The meeting was very constructive and inspiring, says Astri...
eurohuntington.org
Trial Updates – European Huntington Association
http://eurohuntington.org/category/updates
The EHA Board: 2016 2018. The World Orphan Drug Conference in Brussels. It was 300 attendees at the World Orphan Drug Conference in Brussels from the 16. Of November. Among them was the European Huntington Association’s President Astri Arnesen, the Board Members Svein Olaf Olsen and Bea De Schepper. Newsletter from the European Huntington’s Disease Network. October news from the Enroll-HD community. News from CHDI’s Annual Conference – subtiteled in many languages! 10,000 now signed up to Enroll-HD!
eurohuntington.org
HD Research – European Huntington Association
http://eurohuntington.org/category/scientific
The EHA Board: 2016 2018. Reflecting on HD as a rare disease – and why Enroll-HD is so important. Today is Rare Disease Day the day of international recognition for the myriad of little known but devastating diseases […]. Georg Bernhard Landwehrmeyer is a professor of neurology (clinical neurobiology) at Ulm University in the department of neurology where the central [.]. October news from the Enroll-HD community. Ultra-rare mutations highlight the importance of the HD gene in brain development. A suppor...
eurohuntington.org
Any questions about HD? Ask the Doctor – European Huntington Association
http://eurohuntington.org/2016/11/23/any-questions-about-hd-ask-the-doctor
The EHA Board: 2016 2018. Any questions about HD? Questions about Huntington’s disease (HD)? Do not hesitate to ask our doctor, Alzbeta Mühlbäck, using the contact form below. HD is a disease that can be quite complicated and sometimes people are left with a lot of questions:. How does it work biologically? What kind of symptoms is normal? My father is about to get sick is there someone can I talk to? Does any treatment for HD exist? Questions about the disease – use the form below. Alzbeta is senior res...
lirh.it
Organi direttivi | LIRH - Lega Italiana Ricerca Huntington e malattie correlate onlus
http://www.lirh.it/it/organi-direttivi
Salta al contenuto principale. Storia della malattia di Huntington. Le fasi della ricerca. I Confini della Ricerca sulla Malattia di Huntington - Roma. Ferdinando Squitieri - Roma. Barbara D'Alessio - Roma. Luciano Finotto - Asiago (VI). Paolo Lista - Napoli. Neurologo, esperto nella cura, nello studio e nella riabilitazione delle malattie correlate all’Huntington. Dipartimento di Scienze e Biotecnologie Medico Chirurgiche, Sapienza Università di Roma. Prof Justo Garcia de Yebenes:. Neurologo esperto di ...
eurohuntington.org
Stronger Together: a new project launched by the European Huntington’s Association – European Huntington Association
http://eurohuntington.org/2016/11/05/stronger-together-a-new-project-launched-by-the-european-huntingtons-association
The EHA Board: 2016 2018. Stronger Together: a new project launched by the European Huntington's Association. Stronger Together: a new project launched by the European Huntington’s Association. These days a lot of research is being conducted on HD. This research consists of two parts that complement each other. The first part is to map out the plain characteristics of HD: How does the disease evolve? What symptoms do we see in HD patients? How soon can we detect them? Enroll-HD has been going on for four...
eurohuntington.org
Launching of Our Voice – European Huntington Association
http://eurohuntington.org/2017/01/09/launching-our-voice
The EHA Board: 2016 2018. Launching of Our Voice. Launching of Our Voice. This autumn the European Huntington Association (EHA) decided to create a new section at our webpage. It’s called Our Voice. And it is dedicated to the stories: the personal stories people have with Huntington’s disease and the professional stories stories we can all learn from. In Our Voice you will first and foremost find video interviews. Our Voice will continually be upgraded as we get more stories.
lirh.it
LIRH - Lega Italiana Ricerca Huntington e malattie correlate onlus
http://www.lirh.it/en
Skip to main content. Juvenile Huntington Disease (JHD). HD Research borders: from initial findings to experimental results. News from EHDN 2016 (with a focus on pridopidine). September 24, 2016 - The EHDN 2016 Meeting was held in The Netherlands on September 16 to18, 2016: 920 participants, 312 posters, 49 Countries and many updates on research. Join us for the 'Under the Umbrella' campaign- World Brain Day. Thank you to all our donors. Eugenics and Neuropsychiatric Diseases - Rome, February 29, 2016.
lirh.it
Statuto | LIRH - Lega Italiana Ricerca Huntington e malattie correlate onlus
http://www.lirh.it/it/statuto
Salta al contenuto principale. Storia della malattia di Huntington. Le fasi della ricerca. I Confini della Ricerca sulla Malattia di Huntington - Roma. Fondazione Lega Italiana Ricerca Huntington e malattie correlate onlus. Le adunanze del Consiglio di amministrazione sono valide se è presente la maggioranza dei membri che li compongono. Le deliberazioni sono prese a maggioranza assoluta, a votazione palese. In caso di parità di voti prevale il voto del Presidente. Le adunanze possono essere ...I verbali...
