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A child's life with neurofibromatosis | A 10 year old talks about living with neurofibromatosis type 1

A 10 year old talks about living with neurofibromatosis type 1

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A child's life with neurofibromatosis | A 10 year old talks about living with neurofibromatosis type 1 | girlwithnf1.wordpress.com Reviews

https://girlwithnf1.wordpress.com

A 10 year old talks about living with neurofibromatosis type 1

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Ask my mom how she is today | A child's life with neurofibromatosis

https://girlwithnf1.wordpress.com/2008/10/20/ask-my-mom-how-she-is-today

A child's life with neurofibromatosis. Ne-Ne and Em’s: Race for Hope-Philadelphia →. October 20, 2008 · 6:35 am. Ask my mom how she is today. My Mom, she tells a lot of lies she never did before. From now until she dies, she’ll tell a whole lot more. Ask my Mom how she is and because she can’t explain, She will tell a little lie because she can’t describe the pain. Ask my Mom how is she, She’ll say “I’m alright.”. If that’s the truth, then tell me, why does she cry each night? 2 responses to “. Hey ne ne...

2

Photos | A child's life with neurofibromatosis

https://girlwithnf1.wordpress.com/walk-photos

A child's life with neurofibromatosis. One response to “. January 23, 2011 at 3:57 pm. My happy family nene will be missed. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. You are commenting using your Twitter account. ( Log Out. You are commenting using your Facebook account. ( Log Out. You are commenting using your Google account. ( Log Out.

3

nikirahsmom | A child's life with neurofibromatosis

https://girlwithnf1.wordpress.com/author/nikirahsmom

A child's life with neurofibromatosis. September 1, 2013 · 6:24 am. Its a hope, a prayer, a wish I only share with myself. August 10, 2009 · 5:37 pm. I keep telling myself I can do it then on days like today when it is 100 degrees outside I think I am crazy and lazy. I can’t do it. There is no way short of a miracle that I will be able to walk it let alone run. I am like 80 pounds above my optimal fighting weight. He is setting me up! Tagged as brain tumors. August 6, 2009 · 1:04 pm. February 27, 2004.

4

Faith Journey | A child's life with neurofibromatosis

https://girlwithnf1.wordpress.com/faith-journey

A child's life with neurofibromatosis. I have decided to record our journey with Nikirah’s tumor. The past two weeks has been a up and down journey. When you find out your child has a brain tumor so many things go through your mind. Fear, anger, sadness, worry, etc. I can’t imagine this world without Nikirah let alone my life. She is my middle child and was the baby for so long that we still baby her at times. Will people heal if we believe? Would the dead rise if we had the faith? Enter your comment here.

5

Help! Its a setup | A child's life with neurofibromatosis

https://girlwithnf1.wordpress.com/2009/08/10/help-its-a-setup

A child's life with neurofibromatosis. God’s Will (Not). 5 years →. August 10, 2009 · 5:37 pm. I keep telling myself I can do it then on days like today when it is 100 degrees outside I think I am crazy and lazy. I can’t do it. There is no way short of a miracle that I will be able to walk it let alone run. I am like 80 pounds above my optimal fighting weight. He’s not going to let me back out and several times a week he likes to ask what are we doing for lunch today Marie? He is setting me up! Anonymous...

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A child's life with neurofibromatosis | A 10 year old talks about living with neurofibromatosis type 1

A child's life with neurofibromatosis. October 20, 2008 · 6:35 am. Ask my mom how she is today. My Mom, she tells a lot of lies she never did before. From now until she dies, she’ll tell a whole lot more. Ask my Mom how she is and because she can’t explain, She will tell a little lie because she can’t describe the pain. Ask my Mom how is she, She’ll say “I’m alright.”. If that’s the truth, then tell me, why does she cry each night? Ask my Mom how is she, she seems to cope so well. Her illness while so br...

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