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Honoring Jensen – Down syndrome advocacy and life after the loss of our son

Down syndrome advocacy and life after the loss of our son

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Honoring Jensen – Down syndrome advocacy and life after the loss of our son | honoringjensen.com Reviews

https://honoringjensen.com

Down syndrome advocacy and life after the loss of our son

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Dear December – Part Two

https://honoringjensen.com/2016/12/10/dear-december-part-two

Down syndrome awareness and life after the loss of our son. 321 Miles for 321 Smiles. The 321 Miles Project. Become a Smile Sponsor. Come Walk With Us. The Significance of 321 Miles. Learn about Down syndrome. Dear December – Part Two. A fellow loss mom, Jess, made this in honor of Jensen. Isn’t this cute? Jess, who lives in England, lost her son Shaunie Junior. Jess has been a great friend to me and is an amazing person. Aware of your child’s absence. The next act of kindness is from another loss mom na...

2

Dear December – Part One

https://honoringjensen.com/2016/12/08/dear-december-part-one

Down syndrome awareness and life after the loss of our son. 321 Miles for 321 Smiles. The 321 Miles Project. Become a Smile Sponsor. Come Walk With Us. The Significance of 321 Miles. Learn about Down syndrome. Dear December – Part One. It’s hard to live this reality each day during this season. I don’t like to show my sadness or grief. I try to overcome it or at least figure out how to live with it each day. But I just can’t. How is this real? I still don’t know. Do we send cards at all? I can very easil...

3

The Year 2016: A Tale of Two Years

https://honoringjensen.com/2016/12/30/the-year-2016-a-tale-of-two-years

Down syndrome awareness and life after the loss of our son. 321 Miles for 321 Smiles. The 321 Miles Project. Become a Smile Sponsor. Come Walk With Us. The Significance of 321 Miles. Learn about Down syndrome. The Year 2016: A Tale of Two Years. The Year 2016 is a paradox for us. It was the best year of our lives, and yet, it was the worst year of our lives. As we exit 2016, that happiness is gone. At the time, I felt hopeless – was my whole pregnancy going to be this way? But after a year’s worth ...

4

Down syndrome

https://honoringjensen.com/category/down-syndrome

Down syndrome awareness and life after the loss of our son. 321 Miles for 321 Smiles. The 321 Miles Project. Become a Smile Sponsor. Come Walk With Us. The Significance of 321 Miles. Learn about Down syndrome. 321 Miles for 321 Smiles Kickoff Event. We are less than one month away from kicking off our 321 mile adventure! And YOU are invited to join us! We will be walking two miles. Mile #1 will be for Parker – our first friend who allowed us to dedicate a mile to him! Mile 1 – Parker. February 26, 2017.

5

Uncategorized

https://honoringjensen.com/category/uncategorized

Down syndrome awareness and life after the loss of our son. 321 Miles for 321 Smiles. The 321 Miles Project. Become a Smile Sponsor. Come Walk With Us. The Significance of 321 Miles. Learn about Down syndrome. The Support You Need Most Surrounding a Prenatal Down Syndrome Diagnosis. Continue reading “The Support You Need Most Surrounding a Prenatal Down Syndrome Diagnosis”. January 22, 2017. January 23, 2017. 3 Comments on The Support You Need Most Surrounding a Prenatal Down Syndrome Diagnosis. Our jour...

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An “Interesting” Encounter – three with a twist

https://threewithatwist.wordpress.com/2017/01/05/an-interesting-encounter

Three with a twist. Family life with a twist of Down syndrome. An “Interesting” Encounter. January 5, 2017. January 19, 2017. The following story was originally published in the book. Gifts: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives, 10th Anniversary Edition. Royalties will be used to provide free copies of the book to genetic counselors and other medical professionals who convey a diagnosis of Down syndrome to new parents. The book can be purchased here. Was the baby ugly?

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What Makes Me Smile – three with a twist

https://threewithatwist.wordpress.com/2016/11/07/what-makes-me-smile

Three with a twist. Family life with a twist of Down syndrome. What Makes Me Smile. November 7, 2016. Gigi has Down syndrome. With Down syndrome often comes low muscle tone. Because of this, at the age of almost two she still isn’t walking or crawling yet. This doesn’t mean that Gigi hasn’t been mobile. She’s been moving around since before she turned one by scooting around on her bottom. She butt scoots while dangling underpants. She has a silly smile when she says “Dee” for dad. She sucks her tongue.

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2016 MDSC Buddy Walk – three with a twist

https://threewithatwist.wordpress.com/2016/10/30/2016-mdsc-buddy-walk

Three with a twist. Family life with a twist of Down syndrome. 2016 MDSC Buddy Walk. October 30, 2016. November 7, 2016. This year team Geneva’s Convention raised $1700. A million thank yous to all of those who donated! Posted in Down syndrome. Gigi Update for Down Syndrome Awareness Month. What Makes Me Smile. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your Twitter account. ( Log Out.

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Printables – three with a twist

https://threewithatwist.wordpress.com/printables

Three with a twist. Family life with a twist of Down syndrome. One thought on “ Printables. November 14, 2016 at 2:48 am. Thank you so much for sharing! Liked by 1 person. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. You are commenting using your Twitter account. ( Log Out. You are commenting using your Facebook account. ( Log Out. Top Posts and Pages.

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three with a twist – Page 2 – family life with a twist of Down syndrome

https://threewithatwist.wordpress.com/page/2

Three with a twist. Family life with a twist of Down syndrome. Down Syndrome Advocacy Day. May 23, 2016. Down Syndrome Advocacy Day. March 23, 2016. I am honored and excited that a story I’ve written was selected to be among 10 new stories that will go in the 10th anniversary edition of the book Gifts: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives. Early in my pregnancy when I found out that Gigi would be born with Down … More Gifts 10th Anniversary. March 21, 2016. March 15, 2016.

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Down Syndrome Facts – three with a twist

https://threewithatwist.wordpress.com/down-syndrome-facts

Three with a twist. Family life with a twist of Down syndrome. Down syndrome, or Trisomy 21, is a genetic condition caused by an extra copy (or third copy) of the 21st chromosome. There are no known behavioral or environmental factors that cause Down syndrome. Individuals with Down syndrome have an increased chance of certain medical issues which include heart defects (roughly 50%), intestinal issues, thyroid conditions, hearing and/or vision impairments, leukemia and Alzheimer’s. People First Language i...

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Resources – three with a twist

https://threewithatwist.wordpress.com/resources

Three with a twist. Family life with a twist of Down syndrome. Down Syndrome Diagnosis Network (DSDN). National Down Syndrome Congress. Massachusetts Down Syndrome Congress. Mass General Down Syndrome Program. Parents Magazine article on best toys:. Best Toys for Babies with Down Syndrome. Parents Magazine article on activities:. 12 Booster Activities for Children with Down Syndrome. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Good Things C...

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Tips For Surviving a Down Syndrome Pregnancy – three with a twist

https://threewithatwist.wordpress.com/2016/06/26/tips-for-surviving-a-down-syndrome-pregnancy

Three with a twist. Family life with a twist of Down syndrome. Tips For Surviving a Down Syndrome Pregnancy. June 26, 2016. June 27, 2016. Allow times of grief and worry. It will come and go in waves and may especially stir up towards the end but ride the wave knowing that it will eventually pass. Contact your local organization or the National Down Syndrome Congress. Use this as an opportunity to educate. Surround yourself with people who are positive. Gigi 1 day old. Gigi 18 months old. You are comment...

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Gigi Update for Down Syndrome Awareness Month  – three with a twist

https://threewithatwist.wordpress.com/2016/10/11/gigi-update

Three with a twist. Family life with a twist of Down syndrome. Gigi Update for Down Syndrome Awareness Month. October 11, 2016. October 27, 2016. Gigi, who will turn two mid-November, is doing very well! Gigi loves to hug…a lot. She is the best hugger out of all of my kids. She often scoots over to me and hugs my leg while I’m making dinner, it’s the cutest thing. Look out if your floors are dirty, or just don’t invite us over because Gigi will butt scoot from one end of your house to the other pic...

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Gigi Turns 2! – three with a twist

https://threewithatwist.wordpress.com/2016/11/16/gigi-turns-2

Three with a twist. Family life with a twist of Down syndrome. November 16, 2016. November 16, 2016. We have also made many, many new friends over the past two years. We’ve met some wonderful parents of children with Down syndrome, we’ve met their beautiful children, and we’ve met some amazing individuals with Down syndrome too. We’ve had opportunities to advocate through writing, through fundraising, and at the State House. Posted in Down syndrome. What Makes Me Smile. 2 thoughts on “ Gigi Turns 2!

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Honoring Jensen – Down syndrome advocacy and life after the loss of our son

Down syndrome advocacy and life after the loss of our son. 321 Miles for 321 Smiles. Announcing 321 Miles for 321 Smiles. We are pleased to introduce our 321 Miles for 321 Smiles project! On 321.2017, in recognition of World Down Syndrome Day, we will begin a 321 mile journey with a very special purpose to promote awareness about Down syndrome (Ds). We are calling our journey 321 Miles for 321 Smiles! Go to our official 321 Miles for 321 Smiles page. For details and information about how YOU can help!

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Acts of Kindness

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Honoring Josh | one mother's journey to healing

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