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itssmallsworld | Life with a Small boy with disabilities

Life with a Small boy with disabilities (by itssmallsworld)

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itssmallsworld | Life with a Small boy with disabilities | itssmallsworld.wordpress.com Reviews

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Life with a Small boy with disabilities (by itssmallsworld)

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An open letter… | itssmallsworld

https://itssmallsworld.wordpress.com/2014/10/05/an-open-letter

Life with a Small boy with disabilities. An open letter…. To all of you who have input to our lives. Today though this is mainly for you in Social Services. You cannot take away our respite. We will fall apart. You know this. Wait, sorry, what? How could we have guessed his trajectory? No, no, this is not acceptable. Why don’t you plan for this? Why is there not a plan mapped out for your children? That way you can tweak it, but not crisis manage. How is this more efficient? Why weren’t we invited? Enter...

2

itssmallsworld | itssmallsworld

https://itssmallsworld.wordpress.com/author/helenbarraclough

Life with a Small boy with disabilities. A Precarious Balancing Act. Right now, right at this moment, my life feels almost balanced. I am, to be honest, nervous of writing this down, of letting this cat jump out of its bag, in case the whole thing comes crashing down again. I am still ably employed. *Shouts* ‘I, a parent of a disabled child, I am actually working! 8217; I am one of that shamefully low number – 16% of all mothers of disabled children – who have found, and maintained, employment. 8216;I&#8...

3

Could I have a lift…? | itssmallsworld

https://itssmallsworld.wordpress.com/2014/12/04/could-i-have-a-lift

Life with a Small boy with disabilities. Could I have a lift…? 8216;I’m not sure how much longer I can carry him. And that makes me sad’. This is a conversation we have at home frequently. At just over 20kg Small is way over the limit of safe lifting and at just over 104cm high he’s also way over the limit of safety full stop. Sometimes it’s all I can do to contain him in my arms when my little boy starts to have an excited flap as we go downstairs for breakfast… Food, Mummy? Every parent wants to pick u...

4

A Precarious Balancing Act | itssmallsworld

https://itssmallsworld.wordpress.com/2015/01/19/a-precarious-balancing-act

Life with a Small boy with disabilities. A Precarious Balancing Act. Right now, right at this moment, my life feels almost balanced. I am, to be honest, nervous of writing this down, of letting this cat jump out of its bag, in case the whole thing comes crashing down again. I am still ably employed. *Shouts* ‘I, a parent of a disabled child, I am actually working! 8217; I am one of that shamefully low number – 16% of all mothers of disabled children – who have found, and maintained, employment. 8216;I&#8...

5

How fragile is this life? | itssmallsworld

https://itssmallsworld.wordpress.com/2014/08/26/how-fragile-is-this-life-2

Life with a Small boy with disabilities. How fragile is this life? I’ve felt the frailty of human life more keenly this past week. I suspect I’m not the only one. Our Swan community has taken a battering of late. With our community ever growing and some of these beautiful children with more complex medical needs, it was possibly naive to assume bad news wouldn’t come our way but. Still. We are losing our children. This is our normal. No one should have to grieve twice. An open letter… ». This actually ma...

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A Letter of Love to My Friends | Sun, Moon and Stars

https://cindyelder23.wordpress.com/2013/06/06/a-letter-of-love-to-my-friends

Sun, Moon and Stars. A Journey With My Special Needs Son, Cruz. June 6, 2013. A Letter of Love to My Friends. It’s taken me a long time to build up the courage to write this blog. I have been afraid of how it will be perceived. I’ve wanted to be objective and empathetic. I’ve wanted to be kind and humble and eloquent. And I’ve wanted to be honest. And the distraction to talk about normal problems is a wonderful respite for me. It makes me feel like I’m still part of the real world. What I’m trying to say...

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LIEBSTER AWARD | Sun, Moon and Stars

https://cindyelder23.wordpress.com/2013/07/31/liebster-award

Sun, Moon and Stars. A Journey With My Special Needs Son, Cruz. July 31, 2013. My blog had been nominated for a Liebster Award by an inspiring granny, named Anne Hawkes who has a wonderful blog named. For those who have not heard of this award, it is an award given to bloggers who have less than 200 followers and is a way of new blogs being found and a way for new blogs to hopefully find new readers. To accept this award there are strict instructions that have to be followed and these are:. 4 Describe yo...

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July | 2013 | Sun, Moon and Stars

https://cindyelder23.wordpress.com/2013/07

Sun, Moon and Stars. A Journey With My Special Needs Son, Cruz. Monthly Archives: July 2013. July 31, 2013. My blog had been nominated for a Liebster Award by an inspiring granny, named Anne Hawkes who has a wonderful blog named. For those who have not heard of this award, it is an award given to bloggers who have less than 200 followers and is a way of new blogs being found and a way for new blogs to hopefully find new readers. Give a link back to the blog that nominated you (see above). Nelson Mandela ...

gingerbreadandsunshine.blogspot.com gingerbreadandsunshine.blogspot.com

Gingerbread and Sunshine: February 2014

http://gingerbreadandsunshine.blogspot.com/2014_02_01_archive.html

Life raising a child who has undiagnosed genetic condition. Why Gingerbread and Sunshine? Thursday, 27 February 2014. The Best of the Little Things. And I frikin loved it. I loved the leg slamming, the infuriated ‘how DARE you’. You see, two year olds are irrational and troublesome little creatures. They are easily angered and should be treated with caution at all times. And that is what my little boy was doing. Being two. This got me thinking about the little things. The things that I thought were g...

oneoffordinary.wordpress.com oneoffordinary.wordpress.com

The One where Camp Amazing turns out to be… amazing | oneoffordinary

https://oneoffordinary.wordpress.com/2013/08/01/the-one-where-camp-amazing-turns-out-to-be-amazing

Living an ordinary family life with a one off child. A One Day Holiday. Sensory Hidden Treasure →. Raquo; July 2013. Raquo; The One where Camp Amazing turns out to be… amazing. The One where Camp Amazing turns out to be… amazing. August 1, 2013. As the holiday drew slowly nearer, I slowly began to panic slightly. What was I thinking? As it turned out the only things I really needed to worry about were:. Would we be able to fit everything in our car and roof box? Seriously, this is half of our stuff:.

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Playing Catch Up | oneoffordinary

https://oneoffordinary.wordpress.com/2013/07/16/playing-catch-up

Living an ordinary family life with a one off child. A One Day Holiday →. Raquo; July 2013. Raquo; Playing Catch Up. July 16, 2013. This week I heard words that, to be honest, I’d given up on waiting to hear long ago. Three little words that astounded me. 8220;Might catch up”. When Jacob stopped receiving play development therapy from portage. We were referred to a local outreach service run by a charity called BIBIC. He might catch up? 8221; She smiled, nodded and stressed “He. This entry was posted in ...

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Gingerbread and Sunshine: July 2014

http://gingerbreadandsunshine.blogspot.com/2014_07_01_archive.html

Life raising a child who has undiagnosed genetic condition. Why Gingerbread and Sunshine? Tuesday, 15 July 2014. Musings of a Cheese and Ham Sandwich. 8217; Spilling coffee down my white top is no longer an event of biblical proportions. The thought of driving through Central London in rush hour no longer breaks me out in a cold sweat (sh*t scary got somewhat redefined around 2012). But I often need to give my life-axis a quick shove and re-align it. I need to be able to relate to people for who SATs are...

gingerbreadandsunshine.blogspot.com gingerbreadandsunshine.blogspot.com

Gingerbread and Sunshine: April 2014

http://gingerbreadandsunshine.blogspot.com/2014_04_01_archive.html

Life raising a child who has undiagnosed genetic condition. Why Gingerbread and Sunshine? Thursday, 24 April 2014. Still at the Fair: Undiagnosed Children's Day 2014. 8216;Where you are right now, you don’t want a diagnosis. Because then you will be condemned to it.’. I remember that I didn’t agree with him. And I still don’t. 8217; a diagnosis? 8217;… ‘No, wait, he’s regressing again. Things are looking bleak. 8217;… ‘ Oh, hang on, he’s moving forward again, bigger whoop. 8217; You see. To be honest...

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itssmallsworld | Life with a Small boy with disabilities

Life with a Small boy with disabilities. A Precarious Balancing Act. Right now, right at this moment, my life feels almost balanced. I am, to be honest, nervous of writing this down, of letting this cat jump out of its bag, in case the whole thing comes crashing down again. I am still ably employed. *Shouts* ‘I, a parent of a disabled child, I am actually working! 8217; I am one of that shamefully low number – 16% of all mothers of disabled children – who have found, and maintained, employment. 8216;I&#8...

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