jaxsjourney.org jaxsjourney.org

jaxsjourney.org

Jax's Journey

Jax Steinberg was born with a rare genetic disorder called Cockayne's Syndrome. This site is dedicated to raising money to offset the cost of his medical care and raise awareness of this incredibly rare condition.

http://www.jaxsjourney.org/

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CONTACTS AT JAXSJOURNEY.ORG

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Ta●●pa , Florida, 33610

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Ta●●pa , Florida, 33610

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Joseph Howie

5303 56th●●●●●●●●●Park Blvd

Ta●●pa , Florida, 33610

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1.81●●●●9499
ja●●●●●●@msn.com

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Jax's Journey | jaxsjourney.org Reviews
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DESCRIPTION
Jax Steinberg was born with a rare genetic disorder called Cockayne's Syndrome. This site is dedicated to raising money to offset the cost of his medical care and raise awareness of this incredibly rare condition.
<META>
KEYWORDS
1 my story
2 my family
3 pictures
4 videos
5 moms blog
6 guestbook
7 volunteer opportunities
8 fundraising events
9 media
10 team jax gear
CONTENT
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my story,my family,pictures,videos,moms blog,guestbook,volunteer opportunities,fundraising events,media,team jax gear,jaxs heros,in memoriam,team jax,donations,welcome,jax's journey,donate,hit counter html,special thanks,caruso family charities
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Jax's Journey | jaxsjourney.org Reviews

https://jaxsjourney.org

Jax Steinberg was born with a rare genetic disorder called Cockayne's Syndrome. This site is dedicated to raising money to offset the cost of his medical care and raise awareness of this incredibly rare condition.

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jaxsjourney.org jaxsjourney.org
1

Site Unavailable

http://www.jaxsjourney.org/page:256709

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2

Mom's Blog

http://www.jaxsjourney.org/mom-s-blog.html

Written By Jillian Steinberg.

3

Guestbook

http://www.jaxsjourney.org/guestbook.html

Please feel free to leave a message for Jax and his family. Thank you for contacting us! We appreciate your support! Jill, Eric: We are all behind you in Jax's Journey. We are dedicated to bring awareness to CS and COFS! Love you Aunt Kim and your Illinois family. Your family is in my prayers". Katherine Gaston (KG Photography).

4

My Family

http://www.jaxsjourney.org/my-family-1.html

Support this Amazing Family.

5

Volunteer Opportunities

http://www.jaxsjourney.org/volunteer-opportunities.html

Thank you for contacting us! If needed, you will hear back within 48-72 hours. Please let us know if you would like to help in any way. Donations for silent auctions etc. In addition to monetary support, if you would like to contribute in other ways, the following items are needed:. King Soopers (Kroger) gift cards. In addition to all of the wonderful. Laptop for the family. Doug Wall of One Shoe Advertising Specialties. 200 Jax's Journey custom printed t-shirts. Mandy Katz of Canton Creek Farms -.

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To contribute to Jax's Journey and improve the quality of the time he has with us, please click on the link above for more information. Team Jax would like to thank KG Photography in Aurora, CO for providing beautiful family portraits. Click to visit KG Photography's website. Visit Caruso Family Charities. It is with great sadness and deepest regrets, that we must inform all of the wonderful people who have supported Jax and his family of Jax's passing. Jax ended his battle with Cockayne Syndrome in ...

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