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Joseph and His Family: Life with SMA

Joseph and His Family: Life with SMA. Sunday, September 15, 2013. Medieval Times and Great Wolf Lodge. We just returned from a very short vacation in Texas. We left for Grapevine, Texas on Thursday and drove for more than 7 hours, an hour longer because of multiple stops along the way. We were excited to get on the road. Joseph "snacked" during the drive,. So there was a lot of suctioning going on. At the Medieval Times Castle, before the show. Everybody had to wear a crown! A big fake tree in the lobby.

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Joseph and His Family: Life with SMA | jojobaudin.blogspot.com Reviews

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Joseph and His Family: Life with SMA. Sunday, September 15, 2013. Medieval Times and Great Wolf Lodge. We just returned from a very short vacation in Texas. We left for Grapevine, Texas on Thursday and drove for more than 7 hours, an hour longer because of multiple stops along the way. We were excited to get on the road. Joseph snacked during the drive,. So there was a lot of suctioning going on. At the Medieval Times Castle, before the show. Everybody had to wear a crown! A big fake tree in the lobby.

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Joseph and His Family: Life with SMA | jojobaudin.blogspot.com Reviews

https://jojobaudin.blogspot.com

Joseph and His Family: Life with SMA. Sunday, September 15, 2013. Medieval Times and Great Wolf Lodge. We just returned from a very short vacation in Texas. We left for Grapevine, Texas on Thursday and drove for more than 7 hours, an hour longer because of multiple stops along the way. We were excited to get on the road. Joseph "snacked" during the drive,. So there was a lot of suctioning going on. At the Medieval Times Castle, before the show. Everybody had to wear a crown! A big fake tree in the lobby.

INTERNAL PAGES

jojobaudin.blogspot.com

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Joseph and His Family: Life with SMA: Spring is springing along!

http://www.jojobaudin.blogspot.com/2013/05/spring-is-springing-along.html

Joseph and His Family: Life with SMA. Tuesday, May 14, 2013. Spring is springing along! I just wanted to post some pictures of our Spring season. Pocking eggs with family on Tuesday. Unexpected hospital stay for Brady over the Easter weekend. Pocking eggs with a friend, who is a girl. Because Brady had to be off from work after his hospital stay,. We all got to spend our wedding anniversary together:. Shopping for plants at Lowe's and eating out. Plus Daddy at home on a weekend,. Racing cars with Joseph.

2

Joseph and His Family: Life with SMA: November 2011

http://www.jojobaudin.blogspot.com/2011_11_01_archive.html

Joseph and His Family: Life with SMA. Tuesday, November 22, 2011. We went to San Antonio recently for a much needed vacation. Joseph wanted to go to Sea World and we wanted to check out Morgan's Wonderland. 65279;. One tired boy after being on the van for 8 hours. 65279;. Natural Bridge Wildlife Ranch. 65279;. The zebras did not get a warm reception. From either Joseph or Nana. 65279; . Joseph preferred the toy animal. More than the actual animals in the safari. We found Santa Claus!

3

Joseph and His Family: Life with SMA: April 2011

http://www.jojobaudin.blogspot.com/2011_04_01_archive.html

Joseph and His Family: Life with SMA. Thursday, April 28, 2011. A Trip To ER. At this time last night, we were preparing ourselves for a long wait in the ER. Earlier in the night, Brady was brushing Joseph's teeth when. Of his teeth came loose and made its way to who-knows where. We spent more. An hour at home poking in his mouth, and looking for the tooth and in the process. Loosening the other tooth that we were expecting to fall out first. That tooth Brady. In quickly, but they did. What he tells us,.

4

Joseph and His Family: Life with SMA: May 2011

http://www.jojobaudin.blogspot.com/2011_05_01_archive.html

Joseph and His Family: Life with SMA. Friday, May 27, 2011. Short and Sweet Vacation. Joseph liked the slide in the little playground inside the aquarium the best. A few days after our visit to the Aquarium, we took. Alexandria Zoo) for the first time. Now, four years later, we are better at taking vacations and moving Joseph around. In his power chair. Of course it helped that we have a parent's control/handle in the. Back of Joseph's chair that makes it easier to push the chair around, sort of. 65279; ...

5

Joseph and His Family: Life with SMA: July 2011

http://www.jojobaudin.blogspot.com/2011_07_01_archive.html

Joseph and His Family: Life with SMA. Tuesday, July 26, 2011. Where Have We Been? This little guy has pretty much kept us captive this month. Or rather, this boy who wants to play Little Big Planet 2 all day and all night if we let him. The thing is, Joseph is unable to manipulate the game controller for the Playstation. And so he waits for one of us to be available to play the game with/for him. It is a major test of patience for him and for us. I would say that Brady is the most patient among us.

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Behind a Shoelace & a Smile: Offering Advice

http://smileshoelace.blogspot.com/2014/09/offering-advice.html

Tuesday, September 16, 2014. An excerpt from a conversation on a Facebook SMA support group. For privacy purposes names have been altered.]. In case you're wondering what makes me qualified to be discussing this, I will give a brief history on my life experience because I do have some. I am 26 years old and have SMA. What type? Labels: quality of life. There was an error in this gadget. Enter your email address:. View my complete profile. Skylar's Journeys a boys battle with SMA. Life with the Ferrells.

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Behind a Shoelace & a Smile: August 2014

http://smileshoelace.blogspot.com/2014_08_01_archive.html

Friday, August 1, 2014. Passion. I've been reading some extremely passionate posts as of late that are getting to me. Since I have been unable to think about much else than the hidden agenda behind the posts I am going say something. Subscribe to: Posts (Atom). There was an error in this gadget. Enter your email address:. View my complete profile. Skylar's Journeys a boys battle with SMA. Life with the Ferrells. Hope for Addy Grace*. Presley and Charlotte's Corner. Jojo and his Family: Life with SMA.

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Behind a Shoelace & a Smile: March 2013

http://smileshoelace.blogspot.com/2013_03_01_archive.html

Monday, March 25, 2013. For days now I have been trying to think of a way to say what I want and not have it sound cliché or, worse yet, stupid. It is ridiculous how many people find a phrase and say it so much that it starts to lose the intended meaning. That is exactly what I don't want and, while it is flattering to be quoted, I didn't write this so don't. Quote me. There, now that that is out of the way, let's get to the point. I recently finished a book, Forever is Over by Calvin Wade. That basicall...

smileshoelace.blogspot.com

Behind a Shoelace & a Smile: PS I Love You

http://smileshoelace.blogspot.com/2013/03/ps-i-love-you.html

Saturday, March 9, 2013. PS I Love You. This post is a few days late or a few months early, depending on how you want to look at it. Either way it is important to me so please, read on.). Logan with his B4SMA Blanket. Needless to say I smiled for the first time in days and quickly responded with my own picture (which I can't seem to find, regretfully). In any case, I said yes and throughout the SMA Community we were considered engaged. Logan sealed it with a promise of a ring as soon as he saved ...After...

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Behind a Shoelace & a Smile: April 2012

http://smileshoelace.blogspot.com/2012_04_01_archive.html

Saturday, April 28, 2012. What am I going to do? It’ll be just like old doctor was still here, right? Wrong, very, very wrong…. While the new physician is a kind person and listened to us, his lack of knowledge was concerning. Knowledge is power, right? Monday, April 16, 2012. Subscribe to: Posts (Atom). There was an error in this gadget. Enter your email address:. View my complete profile. Skylar's Journeys a boys battle with SMA. Life with the Ferrells. Hope for Addy Grace*. The O'Neill Boys' Blog.

smileshoelace.blogspot.com

Behind a Shoelace & a Smile: The Ugly Truth

http://smileshoelace.blogspot.com/2013/03/the-ugly-truth.html

Tuesday, March 5, 2013. In the winter of 2010, I wrote that I was privileged to have SMA. Now that privilege doesn't seem to ring as true for me. Shocking, right? Why did I have to be different? As the reader, you feel for 6 year old me, don't you? Now, what was the point of that story, right? Labels: privileged ugly truth. Subscribe to: Post Comments (Atom). There was an error in this gadget. Enter your email address:. View my complete profile. Skylar's Journeys a boys battle with SMA. PS I Love You.

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Behind a Shoelace & a Smile: October 2012

http://smileshoelace.blogspot.com/2012_10_01_archive.html

Sunday, October 21, 2012. Subscribe to: Posts (Atom). There was an error in this gadget. Enter your email address:. View my complete profile. Skylar's Journeys a boys battle with SMA. Life with the Ferrells. Hope for Addy Grace*. Wishing for Elephants.Dylan Cuevas. Presley and Charlotte's Corner. The Suite Life of Lucy and Ethel. Jojo and his Family: Life with SMA. Kaitlyn Hatchard (Spinal Muscular Atrophy-Type 1). The O'Neill Boys' Blog. Picture Window template. Powered by Blogger.

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Behind a Shoelace & a Smile: The Bridge

http://smileshoelace.blogspot.com/2014/10/the-bridge.html

Wednesday, October 8, 2014. If you know me at all, you know that I draw inspiration from everything. I read a lot, listen to different types of music (contrary to popular belief it is not just country), I love dialogue from movies and television, I have more than 2 thousand quotes pinned on Pinterest. Anything can be inspiration for me to create. Oftentimes I get an idea that won't let me be until I do something with it and this latest video is a good example of that. Help You Stand SMA Awareness. So I p...

smileshoelace.blogspot.com

Behind a Shoelace & a Smile: October 2014

http://smileshoelace.blogspot.com/2014_10_01_archive.html

Wednesday, October 8, 2014. If you know me at all, you know that I draw inspiration from everything. I read a lot, listen to different types of music (contrary to popular belief it is not just country), I love dialogue from movies and television, I have more than 2 thousand quotes pinned on Pinterest. Anything can be inspiration for me to create. Oftentimes I get an idea that won't let me be until I do something with it and this latest video is a good example of that. Help You Stand SMA Awareness. So I p...

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Joseph and His Family: Life with SMA

Joseph and His Family: Life with SMA. Sunday, September 15, 2013. Medieval Times and Great Wolf Lodge. We just returned from a very short vacation in Texas. We left for Grapevine, Texas on Thursday and drove for more than 7 hours, an hour longer because of multiple stops along the way. We were excited to get on the road. Joseph "snacked" during the drive,. So there was a lot of suctioning going on. At the Medieval Times Castle, before the show. Everybody had to wear a crown! A big fake tree in the lobby.

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