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Julia's Journey - About Julia | juliasjourney.net Reviews
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Julia's Journey
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Donate - Julia's Journey
http://www.juliasjourney.net/donate.html
Donate online or @ any Regions Bank. The "Julia Marie Kain Trust". Checks made out to the Trust can also be mailed to:. 1801 NE 63rd St. Ocala, FL 34479. Or you can donate safely and securely online by clicking the Donate button below. Wristbands are available for $5 each. T-Shirts Are $10 each or 2 for $15. Just email Juliasjourney@outlook.com. I can direct you to the person nearest you. Feel free to email us, I will try my best to answer all emails in a timely manner.
Events - Julia's Journey
http://www.juliasjourney.net/events.html
2012 Schedule of Events. Ongoing T-Shirt Sales $10 each or 2 for $15. Wristband sales $5 each. Email us, contact a family member or come to one to one of our events if you would like to purchase. A Julia's Journey wristband or T-shirt. October 27 and 28 Jeeptoberfest 9am-? We will have a booth set up to raise awareness for Niemann Pick Disease. We will be handing out. Phamplets with information about Niemann Pick Disease and T-shirts and wristbands will. Be available for sale. 9:00 am, First. February 29...
Julia's Journey - Updates
http://www.juliasjourney.net/updates.html
We are A NIH right now for our 25th consecutive monthly visit. Crazy! What's even crazier is that this could possibly be our last visit for awhile. They are working on Phase 2 of the trial and when it gets up and running we will be going to gainesville for the medicine and only coming to NIH yearly! Http:/ www.ocala.com/article/20150303/ARTICLES/150309923. My Little Prize Fighter. Thank you Catch A Dream Foundation! Doing the Happy Dance. Julia started High School last week. So far she is loving it!
Family Photos - Julia's Journey
http://www.juliasjourney.net/family-photos.html
Heaven’s Very Special Child. A meeting was held quite far from earth. It’s time again for another birth. Said the angels to the Lord above,. Ldquo;This special child will need much love”. Her progress may seem very slow. Accomplishments she may not show. And she will require extra care. From the folks she meets way down there. She may not run or laugh or play,. Her thoughts may seem quite far away. In many ways she won’t adapt and. She’ll be known as handicapped. We want her life to be content.
Julia's Journey - About Julia
http://www.juliasjourney.net/index.html
Julia is a beautiful, funny, sweet spirited little girl. She embraces life every day with such a positive attitude, it's impossible not to smile just by being around her. On October 7th 2011 she was diagnosed with Niemann Pick Disease, Type C, or NPC at the age of 11. NPC is an extremely rare. About 500 diagnosed cases worldwide), neurodegenerative disease with no cure and very limited and costly treatment options. NPC is very unpredictable, but it is always. Diagnosed her with Niemann Pick Disease.
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NPC in the Media. Links and information about Krankheit Niemann Pick C diseas:. Swiss Niemann-Pick Association www.npsuisse.ch. NPSuisse on Facebook www.facebook.com/niemannpick. NPSuisse on Twitter twitter.com/npsuisse. German Niemann Pick association www.niemann-pick.de. English Niemann Pick association www.niemannpick.org.uk. American Niemannn Pick association www.nnpdf.org. German Chronic Rare Disease Alliance: http:/ www.achse-online.de. Niemann-Pick Children's Fund: http:/ www.npcfund.org. List of ...
Links
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NPC in the Media. Links and information about Krankheit Niemann Pick C diseas:. Swiss Niemann-Pick Association www.npsuisse.ch. NPSuisse on Facebook www.facebook.com/niemannpick. NPSuisse on Twitter twitter.com/npsuisse. German Niemann Pick association www.niemann-pick.de. English Niemann Pick association www.niemannpick.org.uk. American Niemannn Pick association www.nnpdf.org. German Chronic Rare Disease Alliance: http:/ www.achse-online.de. Niemann-Pick Children's Fund: http:/ www.npcfund.org. List of ...
Links
http://www.maelslife.com/index.php/en/links
NPC in the Media. Links and information about Krankheit Niemann Pick C diseas:. Swiss Niemann-Pick Association www.npsuisse.ch. NPSuisse on Facebook www.facebook.com/niemannpick. NPSuisse on Twitter twitter.com/npsuisse. German Niemann Pick association www.niemann-pick.de. English Niemann Pick association www.niemannpick.org.uk. American Niemannn Pick association www.nnpdf.org. German Chronic Rare Disease Alliance: http:/ www.achse-online.de. Niemann-Pick Children's Fund: http:/ www.npcfund.org. List of ...
Links
http://www.maels-life.com/index.php/en/links
NPC in the Media. Links and information about Krankheit Niemann Pick C diseas:. Swiss Niemann-Pick Association www.npsuisse.ch. NPSuisse on Facebook www.facebook.com/niemannpick. NPSuisse on Twitter twitter.com/npsuisse. German Niemann Pick association www.niemann-pick.de. English Niemann Pick association www.niemannpick.org.uk. American Niemannn Pick association www.nnpdf.org. German Chronic Rare Disease Alliance: http:/ www.achse-online.de. Niemann-Pick Children's Fund: http:/ www.npcfund.org. List of ...
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Julia's Journal | A Journal of Julia’s Surgery at UNC Childrens Hospital
Surgery over and I am glad (August 19, 2009). Letting everyone know that I am feeling better today. The surgery is behind me and it went well. I have a cast on my left leg for at least 4 weeks. I don’t remember anything except right before I went into the operating room. Dr. Campion is the best surgeon! I will see everyone soon at the Greek festival, and I will be hanging out in my dad’s Greek Pizza booth. Thank you for your prayers and your nice messages. August 19, 2009 at 1:52 pm. NICE WEEKEND and GOT...
juliasjournal2007.blogspot.com
Julia's Journal 2007 - 2012
Julia's Journal 2007 - 2012. At the Bean (Chicago Summer 2006). That's me, in the middle, with my daughter, Irene, and my son-in-law, Michael. They got me started with blogging! Now I love it to keep in touch with family and friends. January 25, 2012. A year has past and here we have winter again. We had our traditional Christmas at Red Horse Farm. Now I am planning to go to Texas, to visit Irene and Michael and get away from our wintry weather. April 5, 2011. February 9, 2011. January 16, 2011. Another ...
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Julia's Journal
Salutations, My Beautiful Beans! As I am sure you are well aware, December of 2016 has come to an end. Here is a wrap-up of my December for ya! The top five songs I listened to during the month of December are:. Taxi Cab by Twenty One Pilots. You’ll Be Back from the Hamilton Soundtrack. Gossip Girl by Grace Vanderwaal. The Ghost of You by My Chemical Romance. Miss Jackson by Panic! I’ve also been listening to a lot of covers by Isabelle Hyde recently. You should go check her out here. The Joys Of Julia.
juliasjourney-finallygettingfit.blogspot.com
Julia's Journey
Subscribe to: Posts (Atom). My addiction.cruising - I'm truly addicted! We have cruised 3 lines, Carnival, Disney and Princess and itching to try the BIG ones on RCCL - at least I am :). View my complete profile. Log My Miles 2010. 4/14/10 1 mile night. 4/13/10 1.5 miles. 4/10/10 2 miles Amacalola falls. 4/10/10 2 miles morning. 4/8/10 1.5 miles. 4/7/10 1.5 miles. 4/6/10 2.75 evening. 4/6/10 2 miles lunchtime. March 2010 38 miles. February 2010 Miles 32.5. January Miles total 31.5. 23 pounds gone forever.
Julia's Journey - About Julia
Julia is a beautiful, funny, sweet spirited little girl. She embraces life every day with such a positive attitude, it's impossible not to smile just by being around her. On October 7th 2011 she was diagnosed with Niemann Pick Disease, Type C, or NPC at the age of 11. NPC is an extremely rare. About 500 diagnosed cases worldwide), neurodegenerative disease with no cure and very limited and costly treatment options. NPC is very unpredictable, but it is always. Diagnosed her with Niemann Pick Disease.
Julia's Journey
March 16, 2018. Julia and her Dad came back from NY a week ago. And I’m so sorry I haven’t updated you guys… things have been a little crazy lately! Thankfully it was a quick trip and Julia got her 6th vaccine shot and a PET scan while she was there. She has one more shot to go […]. March 3, 2018. Happy St. Valentine’s Day! February 15, 2018. I know this is a day late but I love this quote so much I wanted to share! December 30, 2017. December 25, 2017. Merry Christmas from our family to yours! As anothe...
Julia's Journey Tickets
There are no upcoming events. In November 2010 Julia Donohue was diagnosed with a rare form of brain cancer called Gliofibroma, at the tender age of 5 months old. Julia’s Journey is a group, who has come together to support her family through this difficult time. The story started on June 2, 2010, when the world welcomed a . Other events by this organization. Free Online Event Registration.
juliasjuices | The greatest WordPress.com site in all the land!
The greatest WordPress.com site in all the land! September 4, 2017. 8212; juliasjuices @ 11:01 pm. The next generation of juice drinkers! October 8, 2013. 8212; juliasjuices @ 4:44 am. We love all of our little juice fans! And parents can feel good about what their kids are drinking, with everything being super fresh and nutritious! Check out some of our kiddos! It’s Jackson our kale baby with Annie and Keith enjoying the Baywood market! This little guy loves his kale juice! This guy loves his gingy beet!
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juliasjumpnjambery.blogspot.com
julias-jumpn-jambery
Hello, this is a site where any of my friends can stay in touch with me and see what I am up too. Friday, April 11, 2008. Anyway, things are great. Posted by Julia @ 9:19 AM. Friday, June 29, 2007. Anyway, I just thought that it looked like I was worshipping God and directing the mountains to worship him, maybe a symphony or something. Anyway, I thought that it was a great picture, it's shows the beauty of the area that I live in. Posted by Julia @ 10:11 AM. Posted by Julia @ 9:59 AM. Friday, May 25, 2007.
