kalibneil.tripod.com

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With all our family has gone through the last few years, I have collected a lot of information. I decided to build this site as a way of sharing our story and experience. I hope you find it helpful. This site is NO LONGER BEING UPDATED. What's New with Kalib. NICU Photos page 1. NICU Photos page 2. How to put RGO's on. Books for Kids with Differing Abilities. Toys for Kids with Differing Abilities. Camps for kids with Special Needs. Siblings of kids with Special Needs. Inspirations and favorite poems.

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With all our family has gone through the last few years, I have collected a lot of information. I decided to build this site as a way of sharing our story and experience. I hope you find it helpful. This site is NO LONGER BEING UPDATED. What's New with Kalib. NICU Photos page 1. NICU Photos page 2. How to put RGO's on. Books for Kids with Differing Abilities. Toys for Kids with Differing Abilities. Camps for kids with Special Needs. Siblings of kids with Special Needs. Inspirations and favorite poems.

<META> KEYWORDS

1 preemie

2 premature baby

3 premature babies

4 premature child

5 RGO

6 AFO

7 spinal cord injury

8 spinal cord injury in children

9 spina bifida

10 wilms tumor

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table of contents,web updates,glossary,kalib's stuff,story page,photos,preemie stuff,links,kalib's discharge summary,books,spinal cord/spina bifida,rgo photos,wheelchair pics,gloves,continence,toys,wilm's tumor,general info,health care,mom's stuff,prev

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Home Page | kalibneil.tripod.com Reviews

https://kalibneil.tripod.com

With all our family has gone through the last few years, I have collected a lot of information. I decided to build this site as a way of sharing our story and experience. I hope you find it helpful. This site is NO LONGER BEING UPDATED. What's New with Kalib. NICU Photos page 1. NICU Photos page 2. How to put RGO's on. Books for Kids with Differing Abilities. Toys for Kids with Differing Abilities. Camps for kids with Special Needs. Siblings of kids with Special Needs. Inspirations and favorite poems.

INTERNAL PAGES

kalibneil.tripod.com

1

Glossary

http://kalibneil.tripod.com/Glossary%20Page.htm

Amnion) - A thin, tough, membranous sac that encloses the embryo or fetus of a mammal, bird, or reptile. It is filled with a serous fluid in which the embryo is suspended. Lack of breathing for longer than 15 or 20 seconds. It's common in preemies, whose brains aren't fully developed. The muscles that control breathing depend on the brain for instructions on when to take the next breath. The brain of a preemie sometimes makes mistakes and doesn't get the right message to the lungs. A special x-ray test t...

2

Inspirations and Poems

http://kalibneil.tripod.com/Inspirations%20and%20poems.htm

I can complain because. Rose bushes have thorns. Or I can rejoice because. Thorny bushes have roses. If I had my Child to Raise Over Again,. I'd finger paint more, and point the finger less. I'd do less correcting, and more connecting. I'd take my eyes off my watch, and watch with my eyes. I would care to know less, and know to care more. I'd take more hikes and fly more kites. I'd stop playing serious, and seriously play. I'd run through more fields, and gaze at more stars. My House Is . . . 12 Years of...

3

TOYS

http://kalibneil.tripod.com/Toys.htm

Toys for Kids with Differing Abilities. Toys for Kids with Differing Abilities. I realize the importance of having all sorts of people represented, including those without disabilities, but this page is specifically for those toys and books depicting characters with disabilities that may not be readily available. Click on a thumbnail to view a larger image. Block Play People with Differing Abilities available from www.lakeshorelearning.com. Patient with wheelchair available from www.playmobil.com. I boug...

4

RGO Instruction

http://kalibneil.tripod.com/Photo%20pages/RGO%20inst.Thumbnails.html

I looked around for some sort of instruction sheet for a while but I finally gave up and created this one myself. Before the Wilm's tumor, Kalib wore his RGOs. At school all day and I wanted anyone who was involved in Kalib's care to have an explanation of how they worked and how they were supposed to fit. I kept one in his backpack for anyone to look at in case they had questions. Just click on the thumbnails to see a larger image. This sheet explains how to put Kalib in his RGO braces.

5

NICU Photos

http://kalibneil.tripod.com/images/NICU%20Thumbnails.html

Click on a thumbnail to view a larger image. This is the first picture I had of Kalib. It was taken by the nurses. I carried it everywhere with me until he came home from the hospital. Kalib was manually bagged for about 3 hours before the transport team arrived with the proper equipment to ventilate him. The transport nurses wrapped Kalib in saran wrap to keep him warm because his skin was so thin. The nurses packed gloves filled with warm water around Kalib to help raise his body temperature. Kalib's 2...

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kalibneil.tripod.com

Home Page

With all our family has gone through the last few years, I have collected a lot of information. I decided to build this site as a way of sharing our story and experience. I hope you find it helpful. This site is NO LONGER BEING UPDATED. What's New with Kalib. NICU Photos page 1. NICU Photos page 2. How to put RGO's on. Books for Kids with Differing Abilities. Toys for Kids with Differing Abilities. Camps for kids with Special Needs. Siblings of kids with Special Needs. Inspirations and favorite poems.

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