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Landon's Place

This Blog is about my son Landon,who was diagnosed with Non-Cardiac VLCAD as an infant. We hope to bring awareness to his disorder, and all of those under the FAOD "umbrella" as well as chronical the adventures of Landon and our family. <br> <a href="http://www.alterna-tickers.com"><img src="http://www.alterna-tickers.com/tickers/912723.png" border="0" alt="AlternaTickers - Cool, free Web tickers"></a>

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This Blog is about my son Landon,who was diagnosed with Non-Cardiac VLCAD as an infant. We hope to bring awareness to his disorder, and all of those under the FAOD &quot;umbrella&quot; as well as chronical the adventures of Landon and our family. &lt;br&gt; &lt;a href=&quot;http://www.alterna-tickers.com&quot;&gt;&lt;img src=&quot;http://www.alterna-tickers.com/tickers/912723.png&quot; border=&quot;0&quot; alt=&quot;AlternaTickers - Cool, free Web tickers&quot;&gt;&lt;/a&gt;
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Landon's Place | landons-place.blogspot.com Reviews

https://landons-place.blogspot.com

This Blog is about my son Landon,who was diagnosed with Non-Cardiac VLCAD as an infant. We hope to bring awareness to his disorder, and all of those under the FAOD &quot;umbrella&quot; as well as chronical the adventures of Landon and our family. &lt;br&gt; &lt;a href=&quot;http://www.alterna-tickers.com&quot;&gt;&lt;img src=&quot;http://www.alterna-tickers.com/tickers/912723.png&quot; border=&quot;0&quot; alt=&quot;AlternaTickers - Cool, free Web tickers&quot;&gt;&lt;/a&gt;

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1

Landon's Place: Arizona Mito Awareness 2012

http://landons-place.blogspot.com/2013/09/arizona-mito-awareness-2012.html

Thursday, September 19, 2013. Arizona Mito Awareness 2012. I'm fairly certain I posted the following video before, but it's so educational and informational about Mitochondrial Disease, bringing it back to the forefront is a good thing. This video was made for the Mito Walk we did in Phoenix this past December. Landon is in this video, as are all of our Mito friends that are here in Arizona. Please take a minute to watch, and feel free to share it. Subscribe to: Post Comments (Atom). Ocean walk in cambria.

2

Landon's Place: Mitochondrial Disease compared to a Battery

http://landons-place.blogspot.com/2013/09/mitochondrial-disease-compared-to.html

Wednesday, September 18, 2013. Mitochondrial Disease compared to a Battery. Tonight's post will be short and sweet, the above explanation about comparing Batteries to Mitochondrial Disease comes from the United Mitochondrial Disease Foundation. Subscribe to: Post Comments (Atom). Our goal is to help raise awareness for VLCADD, but also Mito disorders as a whole. View my complete profile. Landon's VLCADD Awareness Badge. Ocean walk in cambria. Audrey Catherine is 7 1/2! Jaxon and Brady's Journey. Pretty M...

3

Landon's Place: July 2013

http://landons-place.blogspot.com/2013_07_01_archive.html

Friday, July 26, 2013. Little Fishy's and A Mito BBQ. Landon Swimming in the pool, he has become so brave and begs to go swimming every day. Gatorade break for my Mito kid, and sister can't be left out. E's new favorite thing is to jump into the pool and for you to catch her, and swim her back to the steps in the shallow end. Please take a minute to review them for they are pivotal in helping us find a cure and raise awareness for Mitochondrial Disease. Subscribe to: Posts (Atom). View my complete profile.

4

Landon's Place: June 2013

http://landons-place.blogspot.com/2013_06_01_archive.html

Saturday, June 22, 2013. Friday, Landon and I traveled the 2 hours for his biannual geneticists appointment. I always try to make this a fun experience, his geneticist is in a children's hospital and it's huge and has a lot of stimulating things for the kids. Landon loves to run around and play with all of the lights, and interactive things they have on the floors and walls. Subscribe to: Posts (Atom). Our goal is to help raise awareness for VLCADD, but also Mito disorders as a whole. 2016: Up To Speed.

5

Landon's Place: Our Trip Home, and Dirty Thirty

http://landons-place.blogspot.com/2013/10/our-trip-home-and-dirty-thirty.html

Tuesday, October 29, 2013. Our Trip Home, and Dirty Thirty. While in Texas, I got the privilege of turning the big 3 - 0, insert grumble here. I have to admit 30 has been very good so far, all three weeks of it. So to. Landon picked the Airplane ride, and Emeline picked the next one. The tractor, yep she's my Texas girl! Landon, not to be left out, is doing his 'ninja pose' in his new Teenage Mutant Ninja Turtle Pajamas. I have to say I love that they are making a come back. View my complete profile.

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mcanallyland.blogspot.com mcanallyland.blogspot.com

mcanally land: July 2011

http://mcanallyland.blogspot.com/2011_07_01_archive.html

Everything you never wanted (or needed) to know! Saturday, July 9, 2011. So, long story short, i took the kids on vacation to colorado for a week. thank goodness for uncle b! The kids and i flew to colorado for a vacation. i know. i knew as soon as i booked it that i was insane. but it wasn't as bad as i imagined it would be.but i have a very vivid imagination! Needless to say, the kids were thrilled to take an airplane! Was one of sweetpea's favorite things! So it was a good time! But then, there restau...

mcanallyland.blogspot.com mcanallyland.blogspot.com

mcanally land: May 2010

http://mcanallyland.blogspot.com/2010_05_01_archive.html

Everything you never wanted (or needed) to know! Tuesday, May 18, 2010. The summer countdown is on! So, there are now only TWELVE more working days this school year! And i was SO sure this year would never end! Its been a rough one! BUT, that does mean it is time for our annual summer "to-do" list. However, i don't have it available tonight! Cause we haven't started it.but it will be at least started by tomorrow night! More on that tomorrow too! Subscribe to: Posts (Atom). Thought for the week.

mcanallyland.blogspot.com mcanallyland.blogspot.com

mcanally land: fun times

http://mcanallyland.blogspot.com/2012/03/fun-times.html

Everything you never wanted (or needed) to know! Thursday, March 15, 2012. Doing a little better today. We've been having a fun spring break. we have spent the week on the go. Monday- went to the park and also roller skating. Tuesday- went to the dallas zoo.with every other person in north texas. seriously. Wednesday- took the kids to see the lorax. Thursday- pump it up playtime, and chick fil a for lunch (plus baseball practice.). I will post about saturday, on saturday! Thought for the week.

reallywhatwerewethinking.com reallywhatwerewethinking.com

Really, What Were We Thinking?: VLCADD

http://www.reallywhatwerewethinking.com/p/vlcadd.html

Very long chain acyl-CoA dehydrogenase deficiency) is a fatty-acid oxidation disorder (FaOD/FOD), which falls under the spectrum of mitochondrial disorders. People with VLCADD cannot metabolize very long chain fatty acids into energy. These are some of the fats that healthy people use for energy when fasting, between meals, overnight, during intense exercise, etc. This condition is manageable through early intervention (expanded newborn screening), diet, and supplements. Education and Support Groups:.

mcanallyland.blogspot.com mcanallyland.blogspot.com

mcanally land: July 2010

http://mcanallyland.blogspot.com/2010_07_01_archive.html

Everything you never wanted (or needed) to know! Wednesday, July 7, 2010. The fourth and more. Ok, we had a nice fourth weekend. Hope yours was great too! Saturday we made the journey to Aledo to visit little mama and the boy's BFF's for H's birthday party, and fireworks! Me: son, stop baby. B: mama, i got a lot of peepee, one minute. Me: buddy, at least turn around (since we are pretty much in full view). B: mama, i can't, i am thinking. Haven't hit much else on the list, with all the holiday fun.

mcanallyland.blogspot.com mcanallyland.blogspot.com

mcanally land: February 2011

http://mcanallyland.blogspot.com/2011_02_01_archive.html

Everything you never wanted (or needed) to know! Tuesday, February 22, 2011. I am writing to you from quarintine. We are sick, again. apparently sweetpea got the flu, and somehow i missed it, and it turned to pneumonia. yuck. that was last thursday. The boy got the flu. Afternoon, little mama got the flu. It was a really fun weekend. My mom) stayed with the children of the corn yesterday. I am home today. Little mama got to have tamiflu. So maybe she'll be ready by thursday. Thursday, February 3, 2011.

mcanallyland.blogspot.com mcanallyland.blogspot.com

mcanally land: October 2009

http://mcanallyland.blogspot.com/2009_10_01_archive.html

Everything you never wanted (or needed) to know! Friday, October 16, 2009. What's old is new.and apparently cool. First, sorry i haven't posted in a while. three kids, full time house, full time job.excuses, excuses. Apparently, my past (and that of all you thirtysomethings) is already coming back to haunt us. In the mens t-shirt section we encountered shirts like these:. Yes, thats right, cobra (of g. i. joe fame) and gizmo! Oh wait, there's more. And then we saw this. Subscribe to: Posts (Atom). I have...

mcanallyland.blogspot.com mcanallyland.blogspot.com

mcanally land: April 2010

http://mcanallyland.blogspot.com/2010_04_01_archive.html

Everything you never wanted (or needed) to know! Friday, April 30, 2010. I'm at home today. we are having a new heater and A/C installed today. i hate to waste a day.but sheesh, it's got to be done. both of the old systems are OLDER than i am. which is now (sadly) getting up there! Anyways, thought i would avoid the work i brought home from school today for a little longer. so i am posting again. alert the media! Twice in a week! So here are some more pics of what is going on, just to catch up! January-m...

mcanallyland.blogspot.com mcanallyland.blogspot.com

mcanally land: June 2010

http://mcanallyland.blogspot.com/2010_06_01_archive.html

Everything you never wanted (or needed) to know! Thursday, June 10, 2010. The kids summer to-do list. Okhere's the list we started. some of this won't happen, but a lot of it will. i love having a list, because, well, aside from LOVING to write lists, it gives us a backup plan. nothing to do today? What's on the list? Little mama and the boy made up MOST of this list.if some of the phrasing is off. 1) go to gymnastics. 2) go to chuck e cheese. 3) go to pump it up. 4) swim at nana's house. And as always&#...

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Landon's Place

Tuesday, October 29, 2013. Our Trip Home, and Dirty Thirty. While in Texas, I got the privilege of turning the big 3 - 0, insert grumble here. I have to admit 30 has been very good so far, all three weeks of it. So to. Landon picked the Airplane ride, and Emeline picked the next one. The tractor, yep she's my Texas girl! Landon, not to be left out, is doing his 'ninja pose' in his new Teenage Mutant Ninja Turtle Pajamas. I have to say I love that they are making a come back. Friday, October 25, 2013.

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