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For many years I have been looking at, talking to and working with young people with this disorder. As a former dancer, I am always conscious of the human body's form. Because dance is a visual art, I am always watching how people move.

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For many years I have been looking at, talking to and working with young people with this disorder. As a former dancer, I am always conscious of the human body's form. Because dance is a visual art, I am always watching how people move.
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Home - Marfanzine | marfanzine.com Reviews

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For many years I have been looking at, talking to and working with young people with this disorder. As a former dancer, I am always conscious of the human body's form. Because dance is a visual art, I am always watching how people move.

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1

Marfan Stories - Marfanzine

http://www.marfanzine.com/40165/marfan-stories

Tell Us Your Story. Who do you know with Marfan's? Please provide the required field. How has Marfan Syndrome touched your life? Donate- The Gift of Giving. Connect With The Community.

2

In My Hands - Marfanzine

http://www.marfanzine.com/40165/in-my-hands

What might Abraham Lincoln and Charles de Gaulle have in common with my son? In My Hands asks the universal questions of young people:. Different, and that’s Ok. Quotes from Notable Viewers. MD John Hopkins University. The film is laid out in such a brilliant way, unfurling like those slow-motion flowers on film, revealing a deeper level with each opening petal a remarkable film.". In My Hands was produced by:. Port Washington, NY 11050. Sag Harbor, NY 11963. Donate- The Gift of Giving.

3

About Ann - Marfanzine

http://www.marfanzine.com/40165/about-ann

Was the director/co-conceiver/co-choreographer of Fosse. Which won the Tony for Best Musical in 1999. In 1997, she won the Tony for her choreography of Chicago, as well as Drama Desk, Outer Critics, Astaire and NY Drama Critics Awards. She received Tony nominations for Dancin’. And Fosse; and Theatre World, Clarence Derwent and Outer Critics Awards for Over Here. She appeared in the original productions of Pippin. And the national tour of Bye, Bye Birdie. Film Credits: All That Jazz.

4

Social - Marfanzine

http://www.marfanzine.com/40165/social

Donate- The Gift of Giving. Connect With The Community.

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About Marfan Syndrome - Marfanzine

http://www.marfanzine.com/40165/about-marfan-syndrome

It is a collection of short videos that answer frequently asked questions about Marfan syndrome. These "webisodes" feature real people whose lives are affected by Marfan syndrome, as well as expert doctors and surgeons. Watch the following short video that explains why NMF member Ann Reinking, mother of an affected son, wanted to create this valuable resource. Hal Dietz, M.D. How is the Marfan diagnosis made? What is the first thing I need to know? What is the life expectancy? What is a genetic mutation?

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Home - Marfanzine

My son has Marfan Syndrome. It is delightful. It is breathtaking. Not surprising then that so many artists have incorporated these long, lithe forms into their works. Picasso, Modigliani, Klimt and Giaccometti were all fascinated with this singular look a look embodied by the Marfan community. I wonder if any of us know how beautiful we truly are? Donate- The Gift of Giving. Connect With The Community.

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