A Diary About Living with Mastocytosis<p> <p><p>Personal Stories, Research Links and Data<p><p><p>Open to posts by other patients and caregivers via email request to livingwithmasto@aol.com.
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Living with Mastocytosis | mastocytosis.blogspot.com Reviews
https://mastocytosis.blogspot.com
A Diary About Living with Mastocytosis<p> <p><p>Personal Stories, Research Links and Data<p><p><p>Open to posts by other patients and caregivers via email request to livingwithmasto@aol.com.
mastocytosis.blogspot.com
Living with Mastocytosis: Miserable ass
http://mastocytosis.blogspot.com/2007/03/miserable-ass.html
A Diary About Living with Mastocytosis. Personal Stories, Research Links and Data. Open to posts by other patients and caregivers via email request to livingwithmasto@aol.com. Monday, March 05, 2007. So, Wednesday was a fairly good day, though I still didn't feel like doing much of anything. Started on the Clariten that night and doxepin on Thursday and I was sleepy all day. Then on Friday, I became possessed by Satan. Geezuslouisis was I ill-tempered! I probably could have chewed puppies and kittens.
Living with Mastocytosis: Petition
http://mastocytosis.blogspot.com/2007/03/petition.html
A Diary About Living with Mastocytosis. Personal Stories, Research Links and Data. Open to posts by other patients and caregivers via email request to livingwithmasto@aol.com. Friday, March 09, 2007. Sign the AARP petition for affordable healthcare and prescriptions here. Subscribe to: Post Comments (Atom). Dust and dust mites. National Organization of Rare Disorders - Mastocytosis. The Cleveland Clinic - Mastocytosis. American Osteopathic College of Dermatology - Mastocytosis. Some Basics FOR THE DOC.
Living with Mastocytosis: Sunshine and Starbucks
http://mastocytosis.blogspot.com/2007/02/sunshine-and-starbucks.html
A Diary About Living with Mastocytosis. Personal Stories, Research Links and Data. Open to posts by other patients and caregivers via email request to livingwithmasto@aol.com. Wednesday, February 28, 2007. Woke up this morning at 9a.m! I was still very achy so I stayed in until around 10am but it was so good to wake up in the morning for once. I called the dog groomer to set appointments for my shih-tzu and Australian Shepard and got her recording. There was a locked door in my brain though, and I co...
Living with Mastocytosis: Another bizarro day in the life
http://mastocytosis.blogspot.com/2007/02/another-bizarro-day-in-life.html
A Diary About Living with Mastocytosis. Personal Stories, Research Links and Data. Open to posts by other patients and caregivers via email request to livingwithmasto@aol.com. Tuesday, February 27, 2007. Another bizarro day in the life. Except for the general fatigue and malaise, I've been feeling pretty good the last week or so. It sucks. Of course, it could have been a virus. It's pretty bad when you're so sick so often that you can't even notice when you catch a virus! Anyway, I was feeling much bette...
Living with Mastocytosis: Government: FUBAR
http://mastocytosis.blogspot.com/2007/07/government-fubar.html
A Diary About Living with Mastocytosis. Personal Stories, Research Links and Data. Open to posts by other patients and caregivers via email request to livingwithmasto@aol.com. Monday, July 09, 2007. I had my blood tested last Thursday. I'd started having some stomach problems and the rashes and itching had gotten so bad I could not tolerate it anymore. My rashes had turned into sores, they had gotten so bad. They took about a quart, it seemed, so I hope it shows something. But, thank God! Its nice to kno...
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lifewithmastocytosis.blogspot.com
Living with Mastocytosis
http://lifewithmastocytosis.blogspot.com/2012/11/so-as-ive-written-my-hometown-was.html
Life with a chronic illness isn't all about spoons and complaining. Tuesday, November 20, 2012. Utm source=facebook&utm medium=competition&utm campaign=share tool dariusrucker2012 lander. Subscribe to: Post Comments (Atom). View my complete profile. Links of Interest and More. Mast Cell Disorders Forum. Dr Castells - My main Masto Dr. My Mastocytosis Facebook Page. National Organization of Rare Disorders - Mastocytosis. Another Masto Blog - Great Links. A Chronic Dose - A Chronic Ilness Blog.
lifewithmastocytosis.blogspot.com
Living with Mastocytosis: of the utmost importance
http://lifewithmastocytosis.blogspot.com/2012/11/of-utmost-importance.html
Life with a chronic illness isn't all about spoons and complaining. Saturday, November 3, 2012. Of the utmost importance. My town has a website! Usually for my birthday I ask people to donate blood or to the TMS, but this year I'm asking if anyone is so inclined, to please donate to the red cross disaster relief NOW (as opposed to January). For the lazy text RED CROSS to 90999). Here is a list of ways to help if you're in the tri state area. I'll post more ways to help as I learn them. Google Results on ...
lifewithmastocytosis.blogspot.com
Living with Mastocytosis: June 2012
http://lifewithmastocytosis.blogspot.com/2012_06_01_archive.html
Life with a chronic illness isn't all about spoons and complaining. Sunday, June 3, 2012. I may have been going about things wrong. I had a conversation this week about a lot of the drama that had been going on and feelings and stuff. It was super awesome to have a constructive conversation with someone where even though we didn't 100% agree on everything, we respected each others positions and opinions and agreed to disagree while hearing each other out. And i am sorry for it. i think, for me, as i ...
lifewithmastocytosis.blogspot.com
Living with Mastocytosis: August 2009
http://lifewithmastocytosis.blogspot.com/2009_08_01_archive.html
Life with a chronic illness isn't all about spoons and complaining. Monday, August 31, 2009. I didn't let it get me down. today i went hooping with the kids at MIT and went shopping. Not the most adventurous of days, but I easily could've hid with my head under a pillow all day too. Well I guess the positive streak had to come to an end at some point. Tuesday, August 25, 2009. More than a few people with masto have set up google alerts so that they get an email whenever mastocytosis makes the news. 1) Th...
lifewithmastocytosis.blogspot.com
Living with Mastocytosis: January 2012
http://lifewithmastocytosis.blogspot.com/2012_01_01_archive.html
Life with a chronic illness isn't all about spoons and complaining. Monday, January 16, 2012. So my blog made it onto google alerts last night. that was sort of unexpected. hello new people! When i first got diagnosed, i was hugely spoiled by the fact that i lived in boston and had immediate access to a host of doctors who all but specialized in mast cell stuff. out here in LA it's a totally different story. where my last masto doctor had around a hundred or more patients, my current one has 8. I've been...
lifewithmastocytosis.blogspot.com
Living with Mastocytosis
http://lifewithmastocytosis.blogspot.com/2012/05/this-is-so-true.html
Life with a chronic illness isn't all about spoons and complaining. Wednesday, May 9, 2012. This is so true. A lot of time I feel like the people who tout the strongest convictions also tend to be the most hypocritical. This is about the gay marriage ban in north carolina which is shameful to see as an american, but i feel like it's applicable to a lot of situations. Is it because i want to help other people? I love ya and Im right with you on this :). May 9, 2012 at 5:47 AM. May 14, 2012 at 7:54 AM.
lifewithmastocytosis.blogspot.com
Living with Mastocytosis: November 2012
http://lifewithmastocytosis.blogspot.com/2012_11_01_archive.html
Life with a chronic illness isn't all about spoons and complaining. Tuesday, November 20, 2012. Utm source=facebook&utm medium=competition&utm campaign=share tool dariusrucker2012 lander. Saturday, November 3, 2012. Of the utmost importance. My town has a website! Usually for my birthday I ask people to donate blood or to the TMS, but this year I'm asking if anyone is so inclined, to please donate to the red cross disaster relief NOW (as opposed to January). For the lazy text RED CROSS to 90999). Another...
lifewithmastocytosis.blogspot.com
Living with Mastocytosis: April 2012
http://lifewithmastocytosis.blogspot.com/2012_04_01_archive.html
Life with a chronic illness isn't all about spoons and complaining. Sunday, April 15, 2012. Just so i'm not all darkness and squeak. We went to see this artist play the other night. he's really incredibly talented, both as a musician and a painter. i really appreciate singers who manage to have both amazing lyrics and really stirring vocal inflection. stuff like this just makes me want to create. Saturday, April 14, 2012. Update on life in general. How do you avoid it or work around it? How much do we wa...
lifewithmastocytosis.blogspot.com
Living with Mastocytosis: January 2013
http://lifewithmastocytosis.blogspot.com/2013_01_01_archive.html
Life with a chronic illness isn't all about spoons and complaining. Tuesday, January 1, 2013. Just a little update. I always worry when I follow health based blogs that go silent, that the writer has died or their disease has progressed or some awful thing like that. because when you're dealing with a serious disease, those are the places your mind goes. So not that I think people are sitting around all worried about me, but I just wanted to write this in case anyone was. Subscribe to: Posts (Atom).
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Mastocytose - Mastocytosecentret Odense Universitetshospital
Fuld bedøvelse / anæstesi. Tlf 66 11 33 33. Http:/ www.ouh.dk/wm123031. Information til patienter, pårørende og fagpersoner. Mastocytosecentret OUH - MastOUH - består af Hudafdeling I og Allergicentret, Hæmatologisk afdeling, Patologisk afdeling, Røntgenafdelingen, Endokrinologisk afdeling, Gastroenterologisk afdeling og Børneafdelingen på Odense Universitetshospital. Centret er optaget som Center of Excellence under det europæiske mastocytosenetværk ECNM. Overlæge, ph.d Hanne Vestergaard.
Mastocytose - Mastocytosecentret Odense Universitetshospital
Fuld bedøvelse / anæstesi. Tlf 66 11 33 33. Http:/ www.ouh.dk/wm123031. Information til patienter, pårørende og fagpersoner. Mastocytosecentret OUH - MastOUH - består af Hudafdeling I og Allergicentret, Hæmatologisk afdeling, Patologisk afdeling, Røntgenafdelingen, Endokrinologisk afdeling, Gastroenterologisk afdeling og Børneafdelingen på Odense Universitetshospital. Centret er optaget som Center of Excellence under det europæiske mastocytosenetværk ECNM. Overlæge, ph.d Hanne Vestergaard.
Mastocytose - Mastocytosecentret Odense Universitetshospital
Fuld bedøvelse / anæstesi. Tlf 66 11 33 33. Http:/ www.ouh.dk/wm123031. Information til patienter, pårørende og fagpersoner. Mastocytosecentret OUH - MastOUH - består af Hudafdeling I og Allergicentret, Hæmatologisk afdeling, Patologisk afdeling, Røntgenafdelingen, Endokrinologisk afdeling, Gastroenterologisk afdeling og Børneafdelingen på Odense Universitetshospital. Centret er optaget som Center of Excellence under det europæiske mastocytosenetværk ECNM. Overlæge, ph.d Hanne Vestergaard.
Mastocytose patienten vereniging
2013 - 2018 webdesign by Equipware. Hosting by Manetti IT. Vereniging Nederland, opgericht op 15 maart 2002, is een patiëntenvereniging die zich ten doel stelt:. Huid en organen aangedaan. Abnormale mestcellen in beenmerg en organen. Bruine vlekken op de huid. Beperkt tot de huid. Het geven van voorlichting. Het met elkaar in contact brengen van lotgenoten. Het opkomen voor de belangen van patiënten. Het werven van leden. En sponsoren voor activiteiten en onderzoek. Patiëntendag 7 april 2018.
Mastocytoseforeningen | Informasjon til pasienter, pårørende og helsepersonell om en sjelden sykdom
Informasjon til pasienter, pårørende og helsepersonell om en sjelden sykdom. Meld deg inn i foreningen! Mastcellene – hva gjør de? Kirurgi, narkose, tannbehandling. Vi er en norsk pasientforening for mastcellesykdommer. Dette er en kort introduksjon til hjelp for pasienter, pårørende og helsepersonell som ikke kjenner tilstanden, og er ment å være et hjelpemiddel for å forstå, behandle og leve med sykdommen. Mastocytose hva er det? Diagnosen kan være vanskelig å stille, og det kan ta flere år før det erk...
Living with Mastocytosis
A Diary About Living with Mastocytosis. Personal Stories, Research Links and Data. Open to posts by other patients and caregivers via email request to livingwithmasto@aol.com. Tuesday, January 29, 2008. I have not died, I only have dial-up connection to the internet just now. Healthwise, I am about the same as I have been since I've been receiving treatment by the oncologist and he has me on the mastocytosis protocol. Altogether, I take about 14 pills a day. Unless I take more. Atavan (2 or more). My int...
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Vision, Mission, Values. Key Areas of Focus. Mast Cell Activation Syndrome. Describing the disease to others. Diagnosis and Medical Testing. Preparing for Doctor's Visit. I'm Diagnosed: Now what? Symptom Management and Triggers. Mastocytosis Society Canada is now a registered charity. Learn more about mast cell disease. A diagnosis or even a suspicion of one can often be overwhelming. Learn more about mast cell disease and begin taking an active role in your health care.
European Mastocytosis Support Network
The purpose of this website is to offer patients from different countries a common platform to seek and share information about mastocytosis. The aim is to provide a general introduction about the disease as well as links to various European patient support websites to facilitate human networking. Please click on the flag of your country where you will find additional mastocytosis information in the language of your country and a link to Mastocytosis Support within your country. Veuillez cliquer sur le d...
Mastocytose - Mastocytosecentret Odense Universitetshospital
Fuld bedøvelse / anæstesi. Tlf 66 11 33 33. Http:/ www.ouh.dk/wm123031. Information til patienter, pårørende og fagpersoner. Mastocytosecentret OUH - MastOUH - består af Hudafdeling I og Allergicentret, Hæmatologisk afdeling, Patologisk afdeling, Røntgenafdelingen, Endokrinologisk afdeling, Gastroenterologisk afdeling og Børneafdelingen på Odense Universitetshospital. Centret er optaget som Center of Excellence under det europæiske mastocytosenetværk ECNM. Overlæge, ph.d Hanne Vestergaard.
Mastocytosis support and information
Mastocytosis support and information. Mastocytosis support and information. Dec 5th, 2007 09:56 pm. Mastocytosis support and information. I ask because , I have various things that go on with me and I was wondering if thats normal for just the UP or if my symptoms could be something more(systemic). Thank you very much for you time. any information you can give me will be greatly apperciated. Oct 11th, 2007 09:36 am. Mastocytosis support and information. Aug 17th, 2007 04:29 pm. I look forward to the day ...
