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Our SonShine

Our son Matt has brought such joy to us and through him we have learnt so many things about ourselves and life. He has a rare genetic syndrome called Rubinstein-Taybi Syndrome. This blog is where we process the things we have learnt, where we share our challenges and pains, and where we celebrate small victories.

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Our SonShine | matthewtooke.blogspot.com Reviews
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Our son Matt has brought such joy to us and through him we have learnt so many things about ourselves and life. He has a rare genetic syndrome called Rubinstein-Taybi Syndrome. This blog is where we process the things we have learnt, where we share our challenges and pains, and where we celebrate small victories.
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1 our sonshine
2 diversity muscles
3 what is interesting
4 what is cool
5 what is scary
6 posted by
7 jacqui
8 2 comments
9 labels friendships
10 inclusion
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our sonshine,diversity muscles,what is interesting,what is cool,what is scary,posted by,jacqui,2 comments,labels friendships,inclusion,play,fall apart,become discouraged,or give up,and learn,and ask questions,and learn more,and dream again,no comments
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Our SonShine | matthewtooke.blogspot.com Reviews

https://matthewtooke.blogspot.com

Our son Matt has brought such joy to us and through him we have learnt so many things about ourselves and life. He has a rare genetic syndrome called Rubinstein-Taybi Syndrome. This blog is where we process the things we have learnt, where we share our challenges and pains, and where we celebrate small victories.

INTERNAL PAGES

matthewtooke.blogspot.com matthewtooke.blogspot.com
1

Our SonShine: Support

http://matthewtooke.blogspot.com/2015/03/support.html

Our son Matt has brought such joy to us and through him we have learnt so many things about ourselves and life. He has a rare genetic syndrome called Rubinstein-Taybi Syndrome. This blog is where we process the things we have learnt, where we share our challenges and pains, and where we celebrate small victories. Saturday, March 14, 2015. Nor was it can Matt swim well enough to be included? His inclusion was a given. The question was what support does Matt require to participate? And Matt was BEAMING.

2

Our SonShine: Primary School Inclusion: The Nuts and Bolts #4

http://matthewtooke.blogspot.com/2014/06/primary-school-inclusion-nuts-and-bolts_1584.html

Our son Matt has brought such joy to us and through him we have learnt so many things about ourselves and life. He has a rare genetic syndrome called Rubinstein-Taybi Syndrome. This blog is where we process the things we have learnt, where we share our challenges and pains, and where we celebrate small victories. Monday, June 23, 2014. Primary School Inclusion: The Nuts and Bolts #4. I see her role as a marvellous balancing act. Sheila receives guidance and support from the Learning Support Co-ordinator.

3

Our SonShine: Costly but valuable

http://matthewtooke.blogspot.com/2014/03/costly-but-valuable.html

Our son Matt has brought such joy to us and through him we have learnt so many things about ourselves and life. He has a rare genetic syndrome called Rubinstein-Taybi Syndrome. This blog is where we process the things we have learnt, where we share our challenges and pains, and where we celebrate small victories. Friday, March 7, 2014. Inclusion isn't the easy option in life because it is moving in the opposite direction from which society flows. We are naturally drawn to people who are like us. ...Treat...

4

Our SonShine: Matt's Sports Day 2013

http://matthewtooke.blogspot.com/2013/12/matts-sports-day-2013.html

Our son Matt has brought such joy to us and through him we have learnt so many things about ourselves and life. He has a rare genetic syndrome called Rubinstein-Taybi Syndrome. This blog is where we process the things we have learnt, where we share our challenges and pains, and where we celebrate small victories. Wednesday, December 25, 2013. Matt's Sports Day 2013. Some photos from Matt's School Sports Day in November. Almost at the finish line! Matt and Gemma celebrating their medals. RTS Family in SA.

5

Our SonShine: Diversity Muscles

http://matthewtooke.blogspot.com/2015/06/diversity-muscles.html

Our son Matt has brought such joy to us and through him we have learnt so many things about ourselves and life. He has a rare genetic syndrome called Rubinstein-Taybi Syndrome. This blog is where we process the things we have learnt, where we share our challenges and pains, and where we celebrate small victories. Monday, June 15, 2015. We’ve all seen those inspiring and tear-jerking videos that do the rounds on social media. The. One with the child who has a disability and is coming last in the race.

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jodiegraceofgod.blogspot.com jodiegraceofgod.blogspot.com

Jodie Means Grace of God: INSANITY!

http://jodiegraceofgod.blogspot.com/2009/12/insanity.html

Jodie Means Grace of God. On the 30th of August 2008 I prayed and asked God for a little baby, then God gave me Jodie. My Face may be different, but my feelings the same. I laugh and I cry, and I take pride in my gains. I was sent here among you, to teach you to love. As God in the heavens, looks down from above. To Him I am no different, His love know no bounds. Its those here among you, in cities and towns. That judge me by standards that man has imparted. For I'm one of the children, so special and few.

jodiegraceofgod.blogspot.com jodiegraceofgod.blogspot.com

Jodie Means Grace of God: Week 15 back to hospital again Measles?

http://jodiegraceofgod.blogspot.com/2009/11/week-15-back-to-hospital-again-measles.html

Jodie Means Grace of God. On the 30th of August 2008 I prayed and asked God for a little baby, then God gave me Jodie. My Face may be different, but my feelings the same. I laugh and I cry, and I take pride in my gains. I was sent here among you, to teach you to love. As God in the heavens, looks down from above. To Him I am no different, His love know no bounds. Its those here among you, in cities and towns. That judge me by standards that man has imparted. For I'm one of the children, so special and few.

jodiegraceofgod.blogspot.com jodiegraceofgod.blogspot.com

Jodie Means Grace of God: Hey I can sit...

http://jodiegraceofgod.blogspot.com/2009/11/hey-i-can-sit.html

Jodie Means Grace of God. On the 30th of August 2008 I prayed and asked God for a little baby, then God gave me Jodie. My Face may be different, but my feelings the same. I laugh and I cry, and I take pride in my gains. I was sent here among you, to teach you to love. As God in the heavens, looks down from above. To Him I am no different, His love know no bounds. Its those here among you, in cities and towns. That judge me by standards that man has imparted. For I'm one of the children, so special and few.

jodiegraceofgod.blogspot.com jodiegraceofgod.blogspot.com

Jodie Means Grace of God: People we meet on our journey.

http://jodiegraceofgod.blogspot.com/2010/02/people-we-meet-on-our-journey.html

Jodie Means Grace of God. On the 30th of August 2008 I prayed and asked God for a little baby, then God gave me Jodie. My Face may be different, but my feelings the same. I laugh and I cry, and I take pride in my gains. I was sent here among you, to teach you to love. As God in the heavens, looks down from above. To Him I am no different, His love know no bounds. Its those here among you, in cities and towns. That judge me by standards that man has imparted. For I'm one of the children, so special and few.

jodiegraceofgod.blogspot.com jodiegraceofgod.blogspot.com

Jodie Means Grace of God: Jodie's little friend... Sam the Conqueror!

http://jodiegraceofgod.blogspot.com/2009/11/jodies-little-friend.html

Jodie Means Grace of God. On the 30th of August 2008 I prayed and asked God for a little baby, then God gave me Jodie. My Face may be different, but my feelings the same. I laugh and I cry, and I take pride in my gains. I was sent here among you, to teach you to love. As God in the heavens, looks down from above. To Him I am no different, His love know no bounds. Its those here among you, in cities and towns. That judge me by standards that man has imparted. For I'm one of the children, so special and few.

jodiegraceofgod.blogspot.com jodiegraceofgod.blogspot.com

Jodie Means Grace of God: Weeks 12 Back to Hospital...Neumonia

http://jodiegraceofgod.blogspot.com/2009/11/weeks-12-back-to-hospitalneumonia.html

Jodie Means Grace of God. On the 30th of August 2008 I prayed and asked God for a little baby, then God gave me Jodie. My Face may be different, but my feelings the same. I laugh and I cry, and I take pride in my gains. I was sent here among you, to teach you to love. As God in the heavens, looks down from above. To Him I am no different, His love know no bounds. Its those here among you, in cities and towns. That judge me by standards that man has imparted. For I'm one of the children, so special and few.

brooklynnshope.blogspot.com brooklynnshope.blogspot.com

Brooklynn's Hope: October 2011

http://brooklynnshope.blogspot.com/2011_10_01_archive.html

Thank you for visiting Brooklynn's Hope! And had some of the most wonderful nurses who took the opportunity to research this as well. We contacted our local geneticist to confirm her diagnosis and were put on the 8 month waiting list! We contacted the Special Friends Foundation who sent us so much material with lot's of resources. After letting this sink in a bit, it was on! We went full force! Click here to learn about Rubinstein-Taybi Syndrome. LilySlim Weight loss tickers. Day 2 of life she had an Ech...

brooklynnshope.blogspot.com brooklynnshope.blogspot.com

Brooklynn's Hope: Anxiety issues...

http://brooklynnshope.blogspot.com/2011/10/anxiety-issues.html

Thank you for visiting Brooklynn's Hope! And had some of the most wonderful nurses who took the opportunity to research this as well. We contacted our local geneticist to confirm her diagnosis and were put on the 8 month waiting list! We contacted the Special Friends Foundation who sent us so much material with lot's of resources. After letting this sink in a bit, it was on! We went full force! Click here to learn about Rubinstein-Taybi Syndrome. LilySlim Weight loss tickers. Day 2 of life she had an Ech...

rubinstein-taybi.com rubinstein-taybi.com

Our Pages | Rubinstein-Taybi Syndrome

http://rubinstein-taybi.com/our-pages-7

When the website was first started in 1995 we added biographies to this site. The biographies are listed below but please keep in mind that some of these biographies date back to 1995. Since some of these pages are back over 10 years there are many that don’t have links back to the site. Please hit back on your browser to return to the site. Addison Ellis – Blog. Alexander Pruitt – Blog. Andrew G. Bialecki. Austin Nieman – Blog. Bradley Wayne Howard III. Brooklynn West – Blog. Claire J. Stieber. Ellen Ni...

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Our SonShine

Our son Matt has brought such joy to us and through him we have learnt so many things about ourselves and life. He has a rare genetic syndrome called Rubinstein-Taybi Syndrome. This blog is where we process the things we have learnt, where we share our challenges and pains, and where we celebrate small victories. Monday, June 15, 2015. We’ve all seen those inspiring and tear-jerking videos that do the rounds on social media. The. One with the child who has a disability and is coming last in the race.

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