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MDS Patient Support Group: Information & Support for those affected by Myelodysplastic Syndromes

All you need to know about MDS: Treatment, Prognosis, patients stories & latest news on Myelodysplastic Syndromes trials. Patient forum & local meetings.

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MDS Patient Support Group: Information & Support for those affected by Myelodysplastic Syndromes | mdspatientsupport.org.uk Reviews
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All you need to know about MDS: Treatment, Prognosis, patients stories & latest news on Myelodysplastic Syndromes trials. Patient forum & local meetings.
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MDS Patient Support Group: Information & Support for those affected by Myelodysplastic Syndromes | mdspatientsupport.org.uk Reviews

https://mdspatientsupport.org.uk

All you need to know about MDS: Treatment, Prognosis, patients stories & latest news on Myelodysplastic Syndromes trials. Patient forum & local meetings.

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mdspatientsupport.org.uk mdspatientsupport.org.uk
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What is a Clinical Trial? - MDS UK Patient Support Group

https://mdspatientsupport.org.uk/what-is-mds/clinical-trials

MDS UK Patient Support Group. MDS Centres of Excellence. What Is a Clinical Trial? What are NICE and SMC? Why We Need Funds. Contact us – Patients and Relatives. Contact us Clinical Staff. MDS Survey – Assessing the Need for Support. MDS Worldwide and Awareness Campaign. MDS Ireland Support Group. MDS Centres of Excellence. What Is a Clinical Trial? What are NICE and SMC? Why We Need Funds. Contact us – Patients and Relatives. Contact us Clinical Staff. MDS Survey – Assessing the Need for Support. Please...

2

Patient Meetings (Past) - MDS UK Patient Support Group

https://mdspatientsupport.org.uk/events-1/patient-meetings-past

MDS UK Patient Support Group. MDS Centres of Excellence. What Is a Clinical Trial? What are NICE and SMC? Why We Need Funds. Contact us – Patients and Relatives. Contact us Clinical Staff. MDS Survey – Assessing the Need for Support. MDS Worldwide and Awareness Campaign. MDS Ireland Support Group. MDS Centres of Excellence. What Is a Clinical Trial? What are NICE and SMC? Why We Need Funds. Contact us – Patients and Relatives. Contact us Clinical Staff. MDS Survey – Assessing the Need for Support. We wil...

3

What are NICE and SMC? - MDS UK Patient Support Group

https://mdspatientsupport.org.uk/news/who-is-nice-what-do-they-do-and-how-do-they-do-it

MDS UK Patient Support Group. MDS Centres of Excellence. What Is a Clinical Trial? What are NICE and SMC? Why We Need Funds. Contact us – Patients and Relatives. Contact us Clinical Staff. MDS Survey – Assessing the Need for Support. MDS Worldwide and Awareness Campaign. MDS Ireland Support Group. MDS Centres of Excellence. What Is a Clinical Trial? What are NICE and SMC? Why We Need Funds. Contact us – Patients and Relatives. Contact us Clinical Staff. MDS Survey – Assessing the Need for Support. The Ap...

4

Information Material - MDS UK Patient Support Group

https://mdspatientsupport.org.uk/what-is-mds/information-material

MDS UK Patient Support Group. MDS Centres of Excellence. What Is a Clinical Trial? What are NICE and SMC? Why We Need Funds. Contact us – Patients and Relatives. Contact us Clinical Staff. MDS Survey – Assessing the Need for Support. MDS Worldwide and Awareness Campaign. MDS Ireland Support Group. MDS Centres of Excellence. What Is a Clinical Trial? What are NICE and SMC? Why We Need Funds. Contact us – Patients and Relatives. Contact us Clinical Staff. MDS Survey – Assessing the Need for Support. Want t...

5

Calendar - MDS UK Patient Support Group

https://mdspatientsupport.org.uk/events-1/calendar

MDS UK Patient Support Group. MDS Centres of Excellence. What Is a Clinical Trial? What are NICE and SMC? Why We Need Funds. Contact us – Patients and Relatives. Contact us Clinical Staff. MDS Survey – Assessing the Need for Support. MDS Worldwide and Awareness Campaign. MDS Ireland Support Group. MDS Centres of Excellence. What Is a Clinical Trial? What are NICE and SMC? Why We Need Funds. Contact us – Patients and Relatives. Contact us Clinical Staff. MDS Survey – Assessing the Need for Support.

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johnfightscancer.blogspot.com johnfightscancer.blogspot.com

Fighting Cancer - John's Journey: 21st July - 135 days post transplant

http://johnfightscancer.blogspot.com/2012/07/21st-july-135-days-post-transplant.html

Fighting Cancer - John's Journey. Sunday, July 22, 2012. 21st July - 135 days post transplant. Well today was just bloods, so not much to relate. Feeling a bit off colour. Blood pressure was a bit on the low side. As from today I will only post on a fortnightly basis after I have been to Addenbrookes. Subscribe to: Post Comments (Atom). 21st July - 135 days post transplant. 14th July - 128 days post transplant. 7th July - 121 days post transplant. Information on MDS and CMML. MDS Patient Support Group.

johnfightscancer.blogspot.com johnfightscancer.blogspot.com

Fighting Cancer - John's Journey: 29th September - 205 days post transplant

http://johnfightscancer.blogspot.com/2012/10/29th-september-205-days-post-transplant.html

Fighting Cancer - John's Journey. Wednesday, October 3, 2012. 29th September - 205 days post transplant. Well, this is a little late being published, but better late than never. I saw the consultant on the 29th and the rash had gone on my lower legs and lower arms, however it has now come out on my chest and upper arms. So application of ointment continues but in different places. Skin flaking off has improved, but is still a big problem on my scalp. Subscribe to: Post Comments (Atom).

johnfightscancer.blogspot.com johnfightscancer.blogspot.com

Fighting Cancer - John's Journey: February 2012

http://johnfightscancer.blogspot.com/2012_02_01_archive.html

Fighting Cancer - John's Journey. Wednesday, February 29, 2012. 29th February - climbing to alltitude. Feeling well, shoulder above where central line went is is less sore. Plenty of pills to take - shake rattle and (roll), anti sickness, conditioning etc. I think we are looking at about 10 a day - will try to keep a record tomorrow. Busy day with visits from nurses, doctors etc. 28th February - In the air. We are then informed that a bed would be available late afternoon or early evening. Eventually...

johnfightscancer.blogspot.com johnfightscancer.blogspot.com

Fighting Cancer - John's Journey: April 2012

http://johnfightscancer.blogspot.com/2012_04_01_archive.html

Fighting Cancer - John's Journey. Sunday, April 29, 2012. 28th April - 51 days post transplant. They did warn us that there would be hic ups along the way and we have just discovered our first hic up! After a pretty good week with areas of progress like being able to take the stairs two at a time with little effort and then, as a real plus, remembering why I had gone up stairs in the first place! We got to Friday -Addenbrokes day. Saturday, April 21, 2012. 21st April - End w/k 3 at home. Overall this has...

johnfightscancer.blogspot.com johnfightscancer.blogspot.com

Fighting Cancer - John's Journey: 25th August - 170 days post transplant

http://johnfightscancer.blogspot.com/2012/08/25th-august-2012-170-days-post.html

Fighting Cancer - John's Journey. Monday, August 27, 2012. 25th August - 170 days post transplant. How do I feel - Well my skin is pealing off in sheets, tired and generally fed up. I am sort of back at the stage when I left hospital. I feel cold, particularly late afternoon till I go to bed. Lost more weight after having putting it on. Lets see what my consultant has to say on Friday. Subscribe to: Post Comments (Atom). 25th August - 170 days post transplant. 11th August - 156 days post transplant.

mds-in-the-family.blogspot.com mds-in-the-family.blogspot.com

MDS in the family: Gradually improving

http://mds-in-the-family.blogspot.com/2015/03/gradually-improving.html

MDS in the family. Follows the fortunes of daughter and father who both have MDS myelodysplastic syndromes. Start with the oldest entry if you want to read the whole story. MDS UK Support Group. Wednesday, 4 March 2015. I have another week of antibiotics to get rid of that persistent lung infection. Gradually starting to come off tablets and potions. One called Posaconazole is very expensive , so I have been told to keep it safe in case needed in the future. Subscribe to: Post Comments (Atom).

johnfightscancer.blogspot.com johnfightscancer.blogspot.com

Fighting Cancer - John's Journey: January 2012

http://johnfightscancer.blogspot.com/2012_01_01_archive.html

Fighting Cancer - John's Journey. Thursday, January 26, 2012. Just returned from Addenbrooke's Hospital with some good news - we are go for a bone marrow transplant! We now have a timetable of events leading up to - wait for it - a target admission date of somewhere during week commencing Sunday 26th February. February will now be a very busy month:-. If your pregnant give me a wide berth until the 11th. 15th February bone marrow biopsy - all say OUCH! Wednesday, January 25, 2012. The long term prognosis...

johnfightscancer.blogspot.com johnfightscancer.blogspot.com

Fighting Cancer - John's Journey: 18th November - 255 days post transplant

http://johnfightscancer.blogspot.com/2012/11/18th-november-255-days-post-transplant.html

Fighting Cancer - John's Journey. Monday, November 19, 2012. 18th November - 255 days post transplant. I am very tired as I am on a steroid reduction program with the reintroduction of the immune suppression drug Tacrolimus. Funnily enough the hospital is pleased with my progress and my next visit is on the 30th November which is getting close to the birth of my grandson! Subscribe to: Post Comments (Atom). 18th November - 255 days post transplant. Information on MDS and CMML. MDS Patient Support Group.

mds-in-the-family.blogspot.com mds-in-the-family.blogspot.com

MDS in the family: Getting there

http://mds-in-the-family.blogspot.com/2015/03/getting-there.html

MDS in the family. Follows the fortunes of daughter and father who both have MDS myelodysplastic syndromes. Start with the oldest entry if you want to read the whole story. MDS UK Support Group. Saturday, 7 March 2015. I am gradually walking better. The two tight muscles in my left leg are responding to exercise and an infra-red supported massage tool I have. I still get very tired, but I have my appetite back mainly. Subscribe to: Post Comments (Atom). I am slowly recovering from two lots of flu and on.

dkpsg.mds-and-you.info dkpsg.mds-and-you.info

Fra internationale kontakter - MDS DK Patientstøtte - en Lyle aktivitet!

http://dkpsg.mds-and-you.info/nyheder/nyt-fra-internationale-kontakter

Søg på dette website. Kommende møder med fokus på MDS. Tidligere møder med fokus på MDS. Interview med MDS patient. Om MDS og sygdommens behandling på dansk. Hvor alvorlig er min MDS? Bliv medlem af Lyle! Hvorfor blive medlem af en patientforening? Fortæl os om dig og din MDS! 57th ASH Annual Meeting i Orlando, Florida. MDS, som følge af stråle- og/eller kemobehandling kaldes sekundær MDS. Indsendt 5. jun. 2016 00.32. En meddelelse fra ABC vært og MDS patient Robin Roberts. MDS World Awareness Day 2014.

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