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Malaysia Lysosomal Diseases Association (Pertubuhan Penyakit Lisosomal Malaysia)

Sign Up for E-Newsletter. About Malaysia Lysosomal Diseases Association (MLDA). Malaysia Lysosomal Diseases Association (MLDA) is a non profit organization to advocate for patients’ right and educate general people about variuos life threatening lysosomal storage diseases (LSD). President's Message: Ir. LEE YEE SENG. What is Lysosomal Storage Diseases (LSD) Disorder? IJM Allianz Duo Highway Challenge 2018. Block your date on 29 April and 29 July for Duo Run! LHDN Tax Exemption Status. Darmash is a 11 yea...

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Malaysia Lysosomal Diseases Association (Pertubuhan Penyakit Lisosomal Malaysia) | mymlda.com Reviews

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Sign Up for E-Newsletter. About Malaysia Lysosomal Diseases Association (MLDA). Malaysia Lysosomal Diseases Association (MLDA) is a non profit organization to advocate for patients’ right and educate general people about variuos life threatening lysosomal storage diseases (LSD). President's Message: Ir. LEE YEE SENG. What is Lysosomal Storage Diseases (LSD) Disorder? IJM Allianz Duo Highway Challenge 2018. Block your date on 29 April and 29 July for Duo Run! LHDN Tax Exemption Status. Darmash is a 11 yea...

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Malaysia Lysosomal Diseases Association (Pertubuhan Penyakit Lisosomal Malaysia) | mymlda.com Reviews

https://mymlda.com

Sign Up for E-Newsletter. About Malaysia Lysosomal Diseases Association (MLDA). Malaysia Lysosomal Diseases Association (MLDA) is a non profit organization to advocate for patients’ right and educate general people about variuos life threatening lysosomal storage diseases (LSD). President's Message: Ir. LEE YEE SENG. What is Lysosomal Storage Diseases (LSD) Disorder? IJM Allianz Duo Highway Challenge 2018. Block your date on 29 April and 29 July for Duo Run! LHDN Tax Exemption Status. Darmash is a 11 yea...

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Malaysia Lysosomal Diseases Association (Pertubuhan Penyakit Lisosomal Malaysia)

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Sign Up for E-Newsletter. 1520, TAMAN BUKIT KAYA, 70200 SEREMBAN, NEGERI SEMBILAN, MALAYSIA.

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Malaysia Lysosomal Diseases Association (Pertubuhan Penyakit Lisosomal Malaysia)

http://www.mymlda.com/spage.php?pg=how_to_donate

Sign Up for E-Newsletter. Be A Friend Join MLDA. For MLDA patients and their families, the cost of day to day living can be very high. Treatment alone can cost between RM 300 000 to RM 1million a year and this does not even begin to take into account the many extra needs many these patients have which strain the families already limited budgets. Individuals, corporations and social organisations can help! We thank you for your kindness in advance! You can make a donation in the following ways;. Please re...

3

Malaysia Lysosomal Diseases Association (Pertubuhan Penyakit Lisosomal Malaysia)

http://www.mymlda.com/article.php?aid=4

Sign Up for E-Newsletter. About Malaysia Lysosomal Diseases Association (MLDA). The Malaysia Lysosomal Diseases Association (MLDA) is a non- profit organisation which advocates for patients’ rights to a sustainable health care and support system. It also raises the awareness of the general public about the life threatening Lysosomal Storage Diseases. 8 LSD families gathered on 1 April 2011 and decided they needed to strongly advocate for a sustainable healthcare system for their children.

4

Malaysia Lysosomal Diseases Association (Pertubuhan Penyakit Lisosomal Malaysia)

http://www.mymlda.com/article.php?aid=2

Sign Up for E-Newsletter. President's Message: Ir. LEE YEE SENG. One day in March 2011, I received a phone call request to form a new society for all Lysosomal Storage Diseases’ (LSD) Patients in Malaysia together with the other LSD parents. On one hand I asked myself if I was ready to take up this new responsibility? Patients who are afflicted with LSD are a reflection of fire flies in the night - their light is rather weak, but they continue to shine in every corner in the world. We must understand...

5

Malaysia Lysosomal Diseases Association (Pertubuhan Penyakit Lisosomal Malaysia)

http://www.mymlda.com/index.php

Sign Up for E-Newsletter. About Malaysia Lysosomal Diseases Association (MLDA). Malaysia Lysosomal Diseases Association (MLDA) is a non profit organization to advocate for patients’ right and educate general people about variuos life threatening lysosomal storage diseases (LSD). President's Message: Ir. LEE YEE SENG. What is Lysosomal Storage Diseases (LSD) Disorder? Charity Dinner 2016 (15 May 2016). RM1 for Every Life Counts Campaign. World Rare Disease Day 2016. On 19th and 20th November 2015, we had ...

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pompemom.blogspot.com

Pompe Mom's Diary: Before Trip to Taiwan

http://pompemom.blogspot.com/2011/10/before-trip-to-taiwan.html

Thanks to all the prayers, help and support from friends and families, my girls have 2nd chance of life. Still, I hope that there will be a well and sustainable medical system to protect the right of getting free treatment for my girls and all the other LSD patients in Malaysia one day. Wednesday, October 12, 2011. Before Trip to Taiwan. It had been a long time that I failed to write down anything for almost a month, felt a little bit of guity but was really out of time. Did my plan work out? Even before...

rarediseaseasia.org

About the Conference - Rare Disease Conference Asia 2016

http://www.rarediseaseasia.org/home

17 - 19 November, 2016. Hotel Pullman Bangsar, Kuala Lumpur. World Through My Eyes. Airport and City Transfers. Putrajaya And Lake Cruise. Sunway Lagoon Theme Park. Aborigine Settlement And Elephant Sanctuary. Fireflies And Kuala Selangor. Garden And Park Tour. Deadline to submit posters - 16th October 2016. Click here to register online. No Tower 3 59200, 1, Jalan Taman Pantai,. Taman Bukit Pantai, 59100 Kuala Lumpur,. Wilayah Persekutuan Kuala Lumpur, Malaysia. Phone: 60 3-2298 1888.

pompemom.blogspot.com

Pompe Mom's Diary: Aug 20, 2011

http://pompemom.blogspot.com/2011_08_20_archive.html

Thanks to all the prayers, help and support from friends and families, my girls have 2nd chance of life. Still, I hope that there will be a well and sustainable medical system to protect the right of getting free treatment for my girls and all the other LSD patients in Malaysia one day. Saturday, August 20, 2011. MPS II Brothers From Mersing. Nazmi less than 1 year old just started walking,. His palms were still normal then. Story and Photos Shared by Puan Sunarti. Video by KF and Lee. Note on MPS II.

pompemom.blogspot.com

Pompe Mom's Diary: Sep 14, 2011

http://pompemom.blogspot.com/2011_09_14_archive.html

Thanks to all the prayers, help and support from friends and families, my girls have 2nd chance of life. Still, I hope that there will be a well and sustainable medical system to protect the right of getting free treatment for my girls and all the other LSD patients in Malaysia one day. Wednesday, September 14, 2011. I am going to Taipei soon. KF wrote on 14 Sep 11. Subscribe to: Posts (Atom). View my complete profile. Malaysia Lysosomal Diseases Association. Acid Maltese Deficiency Association. 这一路走过来&#...

pompemom.blogspot.com

Pompe Mom's Diary: Aug 27, 2011

http://pompemom.blogspot.com/2011_08_27_archive.html

Thanks to all the prayers, help and support from friends and families, my girls have 2nd chance of life. Still, I hope that there will be a well and sustainable medical system to protect the right of getting free treatment for my girls and all the other LSD patients in Malaysia one day. Saturday, August 27, 2011. 这一路走过来，有两位我一定要谢谢的贵人；那就是我的家婆和我的妈妈。如果没有他们我想现在的我不知会是怎么样？而家婆总是在每两个星期五我带两位公主去KL放药时来我家报到，帮我看看我的王子。从来没有听过她言累。。。妈！真的有您们真好，但愿您们都能身体健健康康，每一天都能安枕无忧。。。 I Decided To Get A Portable Hard Disk. I think it's ...

pompemom.blogspot.com

Pompe Mom's Diary: Jan 11, 2012

http://pompemom.blogspot.com/2012_01_11_archive.html

Thanks to all the prayers, help and support from friends and families, my girls have 2nd chance of life. Still, I hope that there will be a well and sustainable medical system to protect the right of getting free treatment for my girls and all the other LSD patients in Malaysia one day. Wednesday, January 11, 2012. Now, I am on my way to be back to normal. But it shall not be long as Chinse New Year is round the corner. Wrote on 11 Jan 12. Subscribe to: Posts (Atom). View my complete profile. 这一路走过来&#652...

pompemom.blogspot.com

Pompe Mom's Diary: MPS II Brothers From Mersing

http://pompemom.blogspot.com/2011/08/mps-ii-brothers-from-mersing.html

Thanks to all the prayers, help and support from friends and families, my girls have 2nd chance of life. Still, I hope that there will be a well and sustainable medical system to protect the right of getting free treatment for my girls and all the other LSD patients in Malaysia one day. Saturday, August 20, 2011. MPS II Brothers From Mersing. Nazmi less than 1 year old just started walking,. His palms were still normal then. Story and Photos Shared by Puan Sunarti. Video by KF and Lee. Note on MPS II.

pompemom.blogspot.com

Pompe Mom's Diary: Aug 11, 2011

http://pompemom.blogspot.com/2011_08_11_archive.html

Thanks to all the prayers, help and support from friends and families, my girls have 2nd chance of life. Still, I hope that there will be a well and sustainable medical system to protect the right of getting free treatment for my girls and all the other LSD patients in Malaysia one day. Thursday, August 11, 2011. A Great Fighter Mom. We were destined to meet up with each other. Why? I truly salute her for her courage, for her non giving up spirit. Way to go, Puan Sunarti. Wrote on 11 Aug 2011. I was an e...

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Malaysia Lysosomal Diseases Association (Pertubuhan Penyakit Lisosomal Malaysia)

Sign Up for E-Newsletter. About Malaysia Lysosomal Diseases Association (MLDA). Malaysia Lysosomal Diseases Association (MLDA) is a non profit organization to advocate for patients’ right and educate general people about variuos life threatening lysosomal storage diseases (LSD). President's Message: Ir. LEE YEE SENG. What is Lysosomal Storage Diseases (LSD) Disorder? IJM Allianz Duo Highway Challenge 2018. Block your date on 29 April and 29 July for Duo Run! LHDN Tax Exemption Status. Darmash is a 11 yea...

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