rdstaging.geneticalliance.uk
Supporters
http://rdstaging.geneticalliance.uk/supporters
What is a rare disease? Rare Disease UK (RDUK) has over 2,000 registered supporters including academics, clinicians, industry, individual members and patient organisations. For more information and to join RDUK please click here. Our industry supporters for 2016 are: Aegerion, Alexion, Amgen, Amicus Therapeutics, Bio Marin, Biogen, Chiesi, CSL Behring, Genzyme, GlaxoSmithKline, Healx, Novartis, Pfizer, PTC Therapeutics, Raptor, Roche, Shire, Sigma-Tau Rare Disease, SOBI, UCB and Vertex. CDH-UK (Congenita...
pencaitland.org
Rare plant sale set for this Saturday
http://pencaitland.org/rare-plant-sale-set-saturday
Facebook & Twitter. About Pencaitland Community Council. Privacy and Pencaitland.org. Community policing in Pencaitland. Pencaitland PTA Fun Run. Pencaitland Scouts: 10 to 14 years. Venue hire in the Pencaitland area. Local news and views for the Pencaitland and surrounding community. Laquo; Pencaitland Annual School Fayre returns 31st May. Rare plant sale set for this Saturday. May 21st, 2014 by pencaitland. The Advocacy is a registered charity which sponsors research into this extremely rare neurologic...
hideandseekdisabilities.blogspot.com
International #RareDiseaseDay! ~ HideAndSeek Disabilities
http://hideandseekdisabilities.blogspot.com/2014/03/international-rarediseaseday.html
Just another free Blogger theme. Email: hideandseekid@hotmail.co.uk. Thursday, 6 March 2014. By Abigail Stafford on 07:55 No comments. The 28th February 2014 was international Rare Disease Day with over 70 countries across the world hosting events and activities to help raise awareness about rare and invisible diseases. So I thought i'd share some of the events with you! For a full list of events that went on and the success that they had please visit the Rare Disease Day Website. It doesn't end there...
hideandseekdisabilities.blogspot.com
March 2014 ~ HideAndSeek Disabilities
http://hideandseekdisabilities.blogspot.com/2014_03_01_archive.html
Just another free Blogger theme. Email: hideandseekid@hotmail.co.uk. Friday, 28 March 2014. Nomakeupselfies for Cancer Research UK. By Abigail Stafford on 10:08 No comments. In six days this UK born viral craze of #nomakeupselfies (women posting pictures of themselves with no make up) raised a staggering 8 million pounds for Cancer Research UK. Cancer Research, who did not initiate this campaign has said that the craze has led to a dramatic increase in the amount of donations that they receive. Having ju...
aprilforalex.blogspot.com
April For Alex: February 2008
http://aprilforalex.blogspot.com/2008_02_01_archive.html
Tuesday, February 26, 2008. Thank you Patti and Steve for your pledges! Patti has pledged $1 per mile and Steve a flat $100! Pledge checks can be made to Neuroacanthocytosis Fund. Wanted to share the great news! Sunday, February 24, 2008. Http:/ www.mapmywalk.com/walk/united-states/or/milwaukie/569858972. Friday, February 22, 2008. April for Alex. A new adventure.fundraising! During the month of April, I will be walking (my goal is 80 miles for the month) and hope to have your support with $ per mile ple...
gastaging.geneticalliance.uk
Find support
http://gastaging.geneticalliance.uk/find-support
Genetic Alliance UK is a national alliance of organisations with a membership of 180 charities which support children, families and individuals affected by genetic disorders. Search our members below to find support for you condition. If you cannot find an appropriate organisation have a look at our finding support. If you are a patient group and want to see your organisation on this page you can find out about membership. Action for Sick Children (Scotland). Action on Gilberts Syndrome. Fanconi Hope Cha...
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