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My life with Ehlers-Danlos SyndromeLearning to live with a chronic illness, my story.
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Learning to live with a chronic illness, my story.
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My life with Ehlers-Danlos Syndrome | nihlaeth.nl Reviews
https://nihlaeth.nl
Learning to live with a chronic illness, my story.
nihlaeth.nl
Ableism | My life with Ehlers Danlos Syndrome
http://nihlaeth.nl/category/ableism
My life with Ehlers Danlos Syndrome. Just another WordPress site. Slackware, luks, root encryption and remote booting through ssh. Finding tagless files with tmsu. Archive for the 'Ableism' Category. January 20th, 2015 - Posted in Ableism. One of the biggest struggles for me, when I got sick, was identity. I imagine it’s much the same for anyone dealing with chronic illness or disability. I can’t say that struggle is over, and the forces at play make it hard to strike a balance. I used to make an effort,...
Activism | My life with Ehlers Danlos Syndrome
http://nihlaeth.nl/category/activism
My life with Ehlers Danlos Syndrome. Just another WordPress site. Slackware, luks, root encryption and remote booting through ssh. Finding tagless files with tmsu. Archive for the 'Activism' Category. October 28th, 2014 - Posted in Ableism. When I first learned about Ehlers Danlos Syndrome, I reacted with disbelief. How could I possibly have this incredibly rare condition? I did not have the weird scars and easy bruising that were mentioned. I could not suffer from EDS, no way. The tagline has been that ...
Apple | My life with Ehlers Danlos Syndrome
http://nihlaeth.nl/tag/apple
My life with Ehlers Danlos Syndrome. Just another WordPress site. Slackware, luks, root encryption and remote booting through ssh. Finding tagless files with tmsu. Accessing a time machine / os x / hfs volume in linux. August 12th, 2013 - Posted in Tech. No mistake there. No matter what I tried, I could not get access to the files inside my home directory. After some googling I tried mounting with some masks:. Mount -t hfsplus -o umask=0,uid=0,gid=0 /dev/sdb2 /mnt. I decided I needed the disk writeable t...
My life with Ehlers Danlos Syndrome » Pain
http://nihlaeth.nl/category/pain-2
My life with Ehlers Danlos Syndrome. Just another WordPress site. Slackware, luks, root encryption and remote booting through ssh. Finding tagless files with tmsu. Archive for the 'Pain' Category. March 23rd, 2013 - Posted in Ableism. This is going to be a long one, so bear with me. I didn’t have a nice childhood. And (partially? Don’t stop reading. There is a point to this. And it’s fairly positive, I promise. But about two weeks ago, the pain in my pelvis was driving me nuts (not that I was very sane t...
Able-bodiedness | My life with Ehlers Danlos Syndrome
http://nihlaeth.nl/tag/able-bodiedness
My life with Ehlers Danlos Syndrome. Just another WordPress site. Slackware, luks, root encryption and remote booting through ssh. Finding tagless files with tmsu. Where did the fun in shopping go? January 22nd, 2011 - Posted in Frustration. Today I went out on a shopping trip. At first I felt great going out on my own, I almost felt like a normal person. Not that normal really exists… Let’s say I felt a little bit like a healthy person. But then I entered the first store…. Shopping is no fun anymore 🙁.
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The Myasthenia Kid .....: The dogs in my life part two
http://themyastheniakid.blogspot.com/2015/08/the-dogs-in-my-life-part-two.html
The Myasthenia Kid . Life with possibly undiagnosed Myasthenia Gravis, diagnosed severe autonomic dysfunction and Ehlers Danlos Syndrome hypermobility type. Thursday, 6 August 2015. The dogs in my life part two. See the first part of the post here : The dogs in my life part one. Last time I had introduced you to Mollie our oldest Weimaraner who will be 11 in November. She still behaves like a puppy and the vets can never get over how good she looks for a nearly 11 year old dog. Mollie asleep on my bed.
transballad: Ugh. Ugh.
http://transballad.blogspot.com/2013/01/ugh-ugh.html
Poetry, professorial ambitions and collagenopathy. Wednesday, January 16, 2013. I'm not as good at denial as my parents, although I'm still pretty good. Ignore it, maybe it'll go away. I dragged through the holidays, barely getting out of my pajamas. I slept in the basement so I wouldn't keep my sister up because I'd stopped sleeping though the night long ago. It's like, what, the constipation, urinary retention, tachycardia, low blood pressure, nausea, vomiting and months-long headache weren't enough?
transballad: My first video blog!
http://transballad.blogspot.com/2012/11/my-first-video-blog.html
Poetry, professorial ambitions and collagenopathy. Sunday, November 11, 2012. My first video blog! I am so sorry you are going through this pain without the support that you need from your doctors. I hope that you get answers and treatment soon and that in the meantime you manage to stay as peaceful and hopeful as you can. I too have EDS and am starting to deal with regular severe headaches. It is overwhelming to have yet another symptom added to the pile. Sending love from Scotland,. My Life with EDS.
The Myasthenia Kid .....: 100th Post
http://themyastheniakid.blogspot.com/2011/06/100th-post.html
The Myasthenia Kid . Life with possibly undiagnosed Myasthenia Gravis, diagnosed severe autonomic dysfunction and Ehlers Danlos Syndrome hypermobility type. Thursday, 9 June 2011. Today is my 100th post and what a journey we have been on together. There have been highs and there have been lows! However I have finally reached a landmark in blog posts and I have had very nearly 2,000 views on my blog. Unfortunately recently the bad days have been increasing, I want to throw pity parties practically every o...
The Myasthenia Kid .....: August 2015
http://themyastheniakid.blogspot.com/2015_08_01_archive.html
The Myasthenia Kid . Life with possibly undiagnosed Myasthenia Gravis, diagnosed severe autonomic dysfunction and Ehlers Danlos Syndrome hypermobility type. Thursday, 27 August 2015. Just another quick update. Blog post by Donna. The slides that accompanied the talk can be found here. The first part of the talk appears to have been about collecting labels.obviously at some point the words collecting labels has been switched for syndromes. I need to end this blog post on a high so I am happy to announce t...
The Myasthenia Kid .....: December 2014
http://themyastheniakid.blogspot.com/2014_12_01_archive.html
The Myasthenia Kid . Life with possibly undiagnosed Myasthenia Gravis, diagnosed severe autonomic dysfunction and Ehlers Danlos Syndrome hypermobility type. Thursday, 25 December 2014. As it is December 25th - Christmas day there is no blog post today. I am surrounded by the ones I love, eating far too much and having a drink or two. I hope you are all as lucky as I am in that you spend the day with those you love and that love you unconditionally in return. Thank you and have a great Christmas! During t...
The Myasthenia Kid .....: January 2015
http://themyastheniakid.blogspot.com/2015_01_01_archive.html
The Myasthenia Kid . Life with possibly undiagnosed Myasthenia Gravis, diagnosed severe autonomic dysfunction and Ehlers Danlos Syndrome hypermobility type. Thursday, 29 January 2015. The not so glamorous side of chronic illness part two. I had to leave some distance between my appointment with the specialist nurse at the Bladder and Bowel clinic, so that I could gain some perspective on it. All that has done has made me more annoyed, which be explained in more detail as you read this post. I will be com...
The Myasthenia Kid .....: June 2015
http://themyastheniakid.blogspot.com/2015_06_01_archive.html
The Myasthenia Kid . Life with possibly undiagnosed Myasthenia Gravis, diagnosed severe autonomic dysfunction and Ehlers Danlos Syndrome hypermobility type. Thursday, 25 June 2015. I woke up at 4am with every area of my body screaming at me. I could barely put weight on my foot and my left knee was disagreeable to be bent. I knew it was going to hurt I just wasn't prepared for how much. I took my breakthrough painkillers and went back to sleep about an hour later. Links to this post. Tuesday started off ...
The Myasthenia Kid .....: July 2015
http://themyastheniakid.blogspot.com/2015_07_01_archive.html
The Myasthenia Kid . Life with possibly undiagnosed Myasthenia Gravis, diagnosed severe autonomic dysfunction and Ehlers Danlos Syndrome hypermobility type. Thursday, 30 July 2015. Due to circumstances beyond my control I have been unable to produce a blog post for you. Please accept my sincere apologies. My hands are much improved and I will be seeing my gp very shortly to discuss the issue. Everything else health wise is the same. Links to this post. Thursday, 23 July 2015. Links to this post. A doctor...
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My life with Ehlers-Danlos Syndrome
My life with Ehlers-Danlos Syndrome. Learning to live with a chronic illness. I was a reasonably normal girl up until Januari 2009 when my health took a turn for the worst. In 2 years my life as I knew it was destroyed. I lost every certainty, and every dream I ever had was shattered. Slackware, luks, root encryption and remote booting through ssh. Finding tagless files with tmsu. A new kind of normal. But you don't look sick. Fight like a girl club. From the banks of Jordan. Make this look awesome.
Spare Parts Repair Parts
Spare Parts Repair Parts. Sunday, March 6, 2011. Throat Hurts More At Night. Mercedes Benz Avangade rims with summer tires CLK W209Cabrio. Mercedes Benz Avangade rims with summer tires CLK W209Cabrio:. I am selling a set (4 pieces) Avangade rim of my Mercedes Benz W209 Cabrio. BJ2007. The wheels are 17-inch and a width of the VA225 and the 245th HA. As far as I know, you should pasen to many C-class model and the SLK. They were original to the car, it was pure summer rims. The car has now run at 45tkm.
Nie's Sweet Home
Where the story begins. Monday, January 5, 2015. Tips sederhana menikmati hidup. Assalamualaikum warohmatullohi wa barokatuh. By Nihlah Al Hanan. Tuesday, October 28, 2014. Sumber : Akhwat Muslimah. Aku simpan cintaku sehingga engkau menderita karena sikapku. Mereka mencelamu dan celaan mereka adalah aniaya. Engkau mencintai dan telah menjadi bahan gunjingan. Tak ada manfaatnya menyimpan cinta. Engkau bagai harimau betina yang mati kepayahan. Pada bekas tapak Hindun atau bagaikan bibir yang sakit. Dalam ...
Khairotun Nihlah
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Nihlah Chalidah.
Currently living in Bangkok. Enrolled as a 4th year fisheries science student in Universitas Gadjah Mada and an exchange student in Kasetsart University. Mostly daily rants, buzzfeed, dramas, and everything else in between. Dengan harga 50 baht. Dan beli shrimp burger dan susu dan makan sendirian di kampus. Karena beberapa orang sedang pergi ke perpustakaan yang mungkin gw belum tertarik untuk kesana. Info aja tapi. Anyway please pray for Bangkok. Hope things will get better soon. Anytime soon. Janjian j...
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