moralesmoments.blogspot.com
Alexa's Adventures--A story to be told!: June 2014
http://moralesmoments.blogspot.com/2014_06_01_archive.html
Alexa's Adventures- A story to be told! Our family's story: From a diagnosis of a Urea Cycle Disorder(Citrullinemia) at birth to Liver Transplant.and all the ups and downs in between that make it all worth it. Organ Donation in Ontario. Walk for Sick Kids. Tuesday, June 17, 2014. I'm A Big Kid Now. This month has been BUSY! Fun- but incredibly busy! This is quite obvious by the lack of posts on this blog. Now, onto the fun stuff. I said we have had a busy month and I meant it. May started off with a trip...
moralesmoments.blogspot.com
Alexa's Adventures--A story to be told!: A Year Later
http://moralesmoments.blogspot.com/2014/07/a-year-later.html
Alexa's Adventures- A story to be told! Our family's story: From a diagnosis of a Urea Cycle Disorder(Citrullinemia) at birth to Liver Transplant.and all the ups and downs in between that make it all worth it. Organ Donation in Ontario. Walk for Sick Kids. Friday, July 18, 2014. But here we are a year later, and what a year it has been! Because they work though my paranoias and PTSD-like symptoms without judgement. And because they take care of not just Alexa, but our family! I am still stunned by the wo...
moralesmoments.blogspot.com
Alexa's Adventures--A story to be told!: March 2014
http://moralesmoments.blogspot.com/2014_03_01_archive.html
Alexa's Adventures- A story to be told! Our family's story: From a diagnosis of a Urea Cycle Disorder(Citrullinemia) at birth to Liver Transplant.and all the ups and downs in between that make it all worth it. Organ Donation in Ontario. Walk for Sick Kids. Monday, March 17, 2014. 8 Months and Going Strong. It has been over a month since I have updated and to be honest, I don't have a lot to say. But tomorrow is 8 months since the transplant and I could not let that go without acknowledging it. It is hard...
moralesmoments.blogspot.com
Alexa's Adventures--A story to be told!: June 2015
http://moralesmoments.blogspot.com/2015_06_01_archive.html
Alexa's Adventures- A story to be told! Our family's story: From a diagnosis of a Urea Cycle Disorder(Citrullinemia) at birth to Liver Transplant.and all the ups and downs in between that make it all worth it. Organ Donation in Ontario. Walk for Sick Kids. Tuesday, June 16, 2015. Making Time Stand Still. Well I definitely was not in my happy place with my last post. I needed a couple of days, a week even to get out of my slump. Oops- did I say that out loud? How did it go by so fast? Canadian Organizatio...
mooneyequalsmc2.com
What is Citrullinemia? (a urea cycle disorder) and some answers to frequently asked questions. | Mooney=MC2
https://mooneyequalsmc2.com/citrullinemia
Living with Citrullinemia (a Urea Cycle Disorder) and feeding tube (est. 2008). So who are these people? A urea cycle disorder) and some answers to frequently asked questions. A urea cycle disorder) and some answers to frequently asked questions. Sĭt’rə-lə-nē’mē-ə, sĭ-trŭl’ə-). Type I citrullinemia is the most common form of the disorder, affecting about 1 in 57,000 people worldwide. Type II citrullinemia is found primarily in the Japanese population, where it occurs in an estimated 1 in 100,000 to 2...
ucdamy.blogspot.com
Tale of One Quirky Amy: Bone Yard trying to open for Kiss
http://ucdamy.blogspot.com/2010/06/bone-yard-trying-to-open-for-kiss.html
Tale of One Quirky Amy. I am writing this blog to show patients and families of adult patients with urea cycle disorders that life can be fun even when coping with a UCD on a daily basis. All posts on this blog that inlcude information about my medical care/treatment of Ornithine Transcarbamylase Deficiency (OTC) are for personal documentation and in now way are to be taken as "medical advice". Amy and J.J. Happiness is possible even while living with a UCD. Wednesday, June 2, 2010. First day of Second G...
ohthreeohfour.com
Oh Three Oh Four: April 2014
http://www.ohthreeohfour.com/2014_04_01_archive.html
Tuesday, April 29, 2014. Nicole by OPI Better After Dark and Promises In the Dark Swatches. Sorry for the hiatus again! It was the weathers fault yet again, but this time not because it was so nice out. It was more I've been watching tornado warnings for here and near friends like a hawk. If there is something I really. I have just a quick post for tonight of 2 polishes I won from a giveaway through Dove Chocolate and Nicole by OPI. I was honestly surprised I won because I only entered once! Better After...
oneinfiftyseventhousand.com
citrullinemia | One in Fifty Seven Thousand
https://oneinfiftyseventhousand.com/tag/citrullinemia
One in Fifty Seven Thousand. Raising a baby with a urea cycle disorder, and other mommy musings. How it all began (the first post). A brief health update on Jacob. This was terrible timing, because Jacob’s Uncle Kevin and his family were visiting. We were hoping for a quick recovery, but on Monday afternoon Jacob started acting strange, crying pitifully and shaking. Jacob’s Mamaw and I rushed him to the Lakewood Ranch hospital. I didn’t feel we even had time to go to Tampa General. His ammonia was 16.
ucdamy.blogspot.com
Tale of One Quirky Amy: Letting UCD patients out of the nest
http://ucdamy.blogspot.com/2011/06/letting-ucd-patients-out-of-nest.html
Tale of One Quirky Amy. I am writing this blog to show patients and families of adult patients with urea cycle disorders that life can be fun even when coping with a UCD on a daily basis. All posts on this blog that inlcude information about my medical care/treatment of Ornithine Transcarbamylase Deficiency (OTC) are for personal documentation and in now way are to be taken as "medical advice". Amy and J.J. Happiness is possible even while living with a UCD. Friday, June 10, 2011. Second, make sure the p...
ucdamy.blogspot.com
Tale of One Quirky Amy: No More Rack!
http://ucdamy.blogspot.com/2011/06/no-more-rack.html
Tale of One Quirky Amy. I am writing this blog to show patients and families of adult patients with urea cycle disorders that life can be fun even when coping with a UCD on a daily basis. All posts on this blog that inlcude information about my medical care/treatment of Ornithine Transcarbamylase Deficiency (OTC) are for personal documentation and in now way are to be taken as "medical advice". Amy and J.J. Happiness is possible even while living with a UCD. Wednesday, June 15, 2011. I am an adult patien...
