oursweetsophie.blogspot.com

Our Sweet Sophie

On May 10, 2006, at only 6 months old, Sophie was diagnosed with Infantile Spasms...a RARE and CATASTROPHIC form of epilepsy. She continues to battle this disorder on a daily basis. Only after she had the majority of her left hemisphere of her brain removed (on May 29, 2009) has she had a relief in seizures (though she continues to show spiking in her EEG). She has shown much improvement in development since the surgery.

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Our Sweet Sophie | oursweetsophie.blogspot.com Reviews

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On May 10, 2006, at only 6 months old, Sophie was diagnosed with Infantile Spasms...a RARE and CATASTROPHIC form of epilepsy. She continues to battle this disorder on a daily basis. Only after she had the majority of her left hemisphere of her brain removed (on May 29, 2009) has she had a relief in seizures (though she continues to show spiking in her EEG). She has shown much improvement in development since the surgery.

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1 our sweet sophie

2 against all odds

3 after that

4 posted by

5 3 comments

6 11 comments

7 labels development

8 surgery take 2

9 right

10 miracles do happen

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Our Sweet Sophie | oursweetsophie.blogspot.com Reviews

https://oursweetsophie.blogspot.com

On May 10, 2006, at only 6 months old, Sophie was diagnosed with Infantile Spasms...a RARE and CATASTROPHIC form of epilepsy. She continues to battle this disorder on a daily basis. Only after she had the majority of her left hemisphere of her brain removed (on May 29, 2009) has she had a relief in seizures (though she continues to show spiking in her EEG). She has shown much improvement in development since the surgery.

INTERNAL PAGES

oursweetsophie.blogspot.com

1

Our Sweet Sophie: April 2011

http://oursweetsophie.blogspot.com/2011_04_01_archive.html

Thursday, April 21, 2011. Is it weird that. I thought Sophie's little pee-drenched footprints were oh so cute? It was 5 minutes before midnight. I was in the bathroom brushing my teeth when I heard Sophie coming down the steps. I knew it was her (Elsa had just woke up moments before and already crawled into our bed). But her footsteps sounded a little different (as I hear them every single night right around this time). I knew something was off. Her pajama pants were soaked. Sophie's Story by Elaine.

2

Our Sweet Sophie: March 2011

http://oursweetsophie.blogspot.com/2011_03_01_archive.html

Tuesday, March 29, 2011. Well, maybe they aren't. Little if you had almost HALF OF YOUR BRAIN removed. But here is my attempt to show you all the amazing things that Sophie can do now. Starting with something as. Simple as putting on her own backpack. Though, she does make it look easy.don't ya think? Make an on-line slideshow at www.OneTrueMedia.com. Sophie's Story by Elaine. Thursday, March 10, 2011. The 3rd time is NOT a charm*. We tried ACTH. It FAILED. It was going to work this time. And why not?

3

Our Sweet Sophie: A True Fighter...

http://oursweetsophie.blogspot.com/2011/12/true-fighter.html

Tuesday, December 13, 2011. She is doing Ah-May-Zing. What a difference a couple of days have made. Here's a picture just a few hours after surgery on Friday. Then she slept for the next 3 days. Looking so awake and alert after therapy. Do you see that piece of graham cracker she is holding? She is eating and drinking, though we are taking it VERY slowly. She gets a few sips of water an hour and has ate a little over half a graham cracker square. After therapy, these clowns came by. She is holding a magic.

4

Our Sweet Sophie: December 2013

http://oursweetsophie.blogspot.com/2013_12_01_archive.html

Monday, December 09, 2013. I have the most ridiculous smile on my face. My world seems a bit lighter. I can now let go of the anticipation of this day, as it is now here. A day that did not seem possible. Today marks 2 years since Sophie's second round of brain surgeries. Two years. It's hard to believe. But to fully appreciate today, that. Day and so many other pivotal moments along this journey that lead us to today must be remembered. Then a few days after mailing the CD, I received a call saying they...

5

Our Sweet Sophie: Against All Odds

http://oursweetsophie.blogspot.com/2013/12/i-have-most-ridiculous-smile-on-my-face.html

Monday, December 09, 2013. I have the most ridiculous smile on my face. My world seems a bit lighter. I can now let go of the anticipation of this day, as it is now here. A day that did not seem possible. Today marks 2 years since Sophie's second round of brain surgeries. Two years. It's hard to believe. But to fully appreciate today, that. Day and so many other pivotal moments along this journey that lead us to today must be remembered. Then a few days after mailing the CD, I received a call saying they...

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kylespence.blogspot.com

Keeping Up With The Spences: Warmest Day in 2010

http://kylespence.blogspot.com/2010/03/warmest-day-in-2010.html

Keeping Up With The Spences. Saturday, March 6, 2010. Warmest Day in 2010. Today was the warmest day St. Louis has seen in 2010 and it seemed everyone was out to enjoy the first taste of spring! If only it would last, but I'm sure Mother Nature is just teasing us! But, we are making progress! Tomorrow is going to be another warmer day, so we are making plans to head outside once again. Hope you had nice weather in your neck of the woods! Kyle had his eye on the prize. One of his fifty trips down the slide.

kylespence.blogspot.com

Keeping Up With The Spences: Is It Spring?

http://kylespence.blogspot.com/2010/02/is-it-spring.html

Keeping Up With The Spences. Sunday, February 28, 2010. The Spences are ready for spring.along with everyone else! Today was such a beautiful day.it felt and looked like spring. The temperature was about fifty degrees which is technically a little too chilly for spring like temperatures. After such a long winter with such cold temperatures fifty degrees feels wonderful! Of course, the three of us took advantage and headed out to enjoy the afternoon. Where else would we go to do this? See you next month!

kylespence.blogspot.com

Keeping Up With The Spences: Lone Elk Park

http://kylespence.blogspot.com/2010/03/lone-elk-park.html

Keeping Up With The Spences. Sunday, March 7, 2010. WELCOME TO LONE ELK PARK. Today was another beautiful day in the neighborhood. Planning an outdoor activity seemed to be our only option.can't waste time indoors when it's so pretty! There were plenty of bison in view. Aren't they such pretty animals? Just a couple of scenic pictures. I can only imagine how. The area is once the leaves are on the trees and. Especially during the fall once the leaves change colors. It was such a refreshing treat to spend...

kylespence.blogspot.com

Keeping Up With The Spences: June 2009

http://kylespence.blogspot.com/2009_06_01_archive.html

Keeping Up With The Spences. Sunday, June 28, 2009. Where has the weekend gone? Unfortunately, it's flown by and tomorrow is already Monday. Saturday night was our monthly date night. Our date consisted of dinner and a movie. We went to. Kyle also had a date last night as well with a babysitter. She babysat Kyle last time and they seem to get along well. Kyle did however give her a "little" scare so she may not want to come back.LOL! Until next time.Good Bye! Friday, June 26, 2009. Our house is a story a...

kylespence.blogspot.com

Keeping Up With The Spences: February 2009

http://kylespence.blogspot.com/2009_02_01_archive.html

Keeping Up With The Spences. Friday, February 27, 2009. Hanging With The Girls. Riley, Kyle, and Hayden. This picture makes me laugh because Kyle thinks he is so cool sitting. Between the two girls. At the age of three, Kyle is already such a stud.LOL! Kyle and Riley hugging each other goodbye.so sweet and adorable! Angie, thanks for having us over this morning and getting me hooked on Wii Tennis! Tuesday, February 24, 2009. As mentioned in a previous. Saturday, February 21, 2009. We chose the Planes, Tr...

kylespence.blogspot.com

Keeping Up With The Spences: Photographers In The Making

http://kylespence.blogspot.com/2010/03/photographers-in-making.html

Keeping Up With The Spences. Monday, March 8, 2010. Photographers In The Making. The size and convenience did take some getting used to since we were used to a small hand held camera. John and I are having fun experimenting with our photography skills. We still have a long way to go before we are considered experts, but with as much as we use it we will be gaining plenty of experience. Subscribe to: Post Comments (Atom). Photographers In The Making. Playground Safety At Its Finest. Warmest Day in 2010.

gabriellefaith.com

Blogs of Interest — Gabrielle Faith

http://gabriellefaith.com/blogs-of-interest

Action’s Update Blog. Bring the Rain: The Story of Audrey Caroline. Smiles, Love Bugs, and Epilepsy. This is a blog about my daughter Gabrielle Faith O’Melia. More.

love4austin.blogspot.com

Austin's IS Journey: July 2011

http://love4austin.blogspot.com/2011_07_01_archive.html

This blog tracks our family's day to day life while battling our son's diagnosis of Infantile Spasms. Feel free to follow us as we continue to fight against the seizures and devastating effects of this terrifying form of epilepsy. You may also read Austin's full story at the bottom of the page. Friday, July 22, 2011. I'm going to copy and paste this one to my fb because I still haven't had the patience to figure out how to link to my feed. That and I don't want to write it twice. lol). Why he thinks this?

love4austin.blogspot.com

Austin's IS Journey: Three little words

http://love4austin.blogspot.com/2011/07/three-little-words.html

This blog tracks our family's day to day life while battling our son's diagnosis of Infantile Spasms. Feel free to follow us as we continue to fight against the seizures and devastating effects of this terrifying form of epilepsy. You may also read Austin's full story at the bottom of the page. Friday, July 22, 2011. I'm going to copy and paste this one to my fb because I still haven't had the patience to figure out how to link to my feed. That and I don't want to write it twice. lol). Why he thinks this?

love4austin.blogspot.com

Austin's IS Journey: In Detroit

http://love4austin.blogspot.com/2011/07/in-detroit.html

This blog tracks our family's day to day life while battling our son's diagnosis of Infantile Spasms. Feel free to follow us as we continue to fight against the seizures and devastating effects of this terrifying form of epilepsy. You may also read Austin's full story at the bottom of the page. Wednesday, July 13, 2011. Also, unlike at TCH, there must be one parent awake at all times to watch for seizure activity. THE biggest downside! I think I'm also spoiled to the private rooms at TCH too. ;). So, the...

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Two love Birds & a Baby Chick!

Two love Birds and a Baby Chick! Saturday, May 24, 2014. Brixtyn Chiami's Birth Story! Either way I was thrilled. My doc comes in and has me to a couple half pushes to get to a 10. Once I'm at a 10 I do 2 big pushes during contractions and she's here! Luckily I had zero stitches or tearing luckily, which is awesome. My doctor calls me a labor Rockstar, which is very flattering, but I think it helps that I have small babies! Heres the link to the video:. Z and C Nelson. Tuesday, February 11, 2014. Ahhhh S...

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Our Sweet Somewhere | Two besties separated by distance but together in spirit.

Two besties separated by distance but together in spirit. 31 October, 2016. Happy Halloween, friends! This Week in New York City. 6 October, 2016. If I haven’t said it before, never in my life did I imagine New York City to be on the map of “places I’ve lived”, but it indeed happened, and I’ve been making the most out of it since my husband and I moved. Here unexpectedly over a year ago! Similar to Kate’s recent post on finding a #quietmomentinrome. Chinatown at sunset as seen passing by from the Q Train.

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our sweet somewhere

You can find us blogging at our new Our Sweet Somewhere. Jul 28, 2014 4:37:48 AM. The reason we are not posting is because we are currently in the process of switching platforms. Please excuse us and we will let you know when/where you can find our new OSS blog :D . Jun 27, 2014 9:05:55 AM. What She Wore: Columbus Visit [part 1]. We held a mini photo shoot during Jamies visit to Columbus. Over Memorial Day Weekend! Jamies Wearing: Sandals: Gabes. 0160; Dress: Target. 0160; Sweater: Forever 21.

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Sophia's Family & Friends

Sophias Family and Friends. Sunday, July 20, 2008. That was then.February, 2006. This is now.July, 2008. That was then.February, 2006. This is now.July, 2008. That was then.February, 2006. This is now.July, 2008. Posted by Sophia and Avah's Mommy and Daddy. July 20, 2008. It was a little sad leaving.I felt like we were back in China saying our goodbye's to each of the families. Thankfully though, this was not "goodbye" but "see you next time." On our way back home, Sophia said. How cute was that! We star...

oursweetsophie.blogspot.com

Our Sweet Sophie

Monday, December 09, 2013. I have the most ridiculous smile on my face. My world seems a bit lighter. I can now let go of the anticipation of this day, as it is now here. A day that did not seem possible. Today marks 2 years since Sophie's second round of brain surgeries. Two years. It's hard to believe. But to fully appreciate today, that. Day and so many other pivotal moments along this journey that lead us to today must be remembered. Then a few days after mailing the CD, I received a call saying they...

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How Sweet It Is

Nice to Meet Ya! Saturday, March 14, 2015. I think in Art-current obsession. Posted by Hanky and Harvey Group. Posted by Hanky and Harvey Group. Monday, March 9, 2015. Son of a Sailor. Posted by Hanky and Harvey Group. Thursday, March 5, 2015. Posted by Hanky and Harvey Group. Wednesday, March 4, 2015. OSo What have you been up to? A question I'll get asked by my dear friends whom I havent seen in way too long. Harmless. But it always stops me in my tracks. What HAVE I been up to? I was FEATURED HERE!

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Our Sweet Success

Wednesday, August 3, 2016. My Data Notebook 2. The main purpose of using data notebooks is to increase student achievement. After giving my students their baseline assessments, we begin using the data notebooks to record the results and start setting goals. There are several choices for recording literacy and math data. You can choose between beginning/middle/end, quarterly, or every other month. My Data Notebook 2. There are several options to choose from when graphing reading levels. You can decide how...

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Our Sweet Sunshine

Remember how I said I might post more often? I was wrong. I think blogging is one of those things that if you do regularly, it's hard to forget. But once you slack off, it's hard to remember again. Today I'm just having a problem with pregnancy brain. I keep forgetting everything, including one of the digiscrap. Sites I go to the very most ( Sweet Shoppe Designs. Quick update on our lives:. I went through the temple for the first time. I'm 8 weeks pregnant. We're getting a new-to-us fridge and. I've had ...