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Rejoice this Day: Happy 12 Months, Haley! Barium Swallow Study, Hematology, Sleep Training, and More...
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Sunday, November 9, 2014. Happy 12 Months, Haley! Barium Swallow Study, Hematology, Sleep Training, and More. You are officially now 12 months old! Your first year has been a wild ride, but I'm so proud to have you as my Haley Bug. You began your first year with pyloric stenosis surgery. A few months later, you were blind and God has restored your eye sight. Eye surgery. Followed, then your MRI. You have had two blood draws from your hematologist. All of your blood work and labs have come back totall...
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Rejoice this Day: June 2014
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Saturday, June 28, 2014. Haley's Eye Surgery Journey. We patched Haley's eyes for 90 minutes every day for about four months as we monitored how lazy her eyes were becoming and the need for surgery. We have lots of cute pirate pictures. Here's one. So the day for surgery came. We left our home at 3:45am (! After the admissions questions, we changed Haley into her hospital pajamas. They were a little big! A few minutes later we joined Haley in the recovery room. She did not wake up happy! After some morph...
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Rejoice this Day: January 2014
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Friday, January 17, 2014. I cannot believe Haley is 3 months already! We have officially transitioned from the fragile newborn stage to the infant/baby stage as Haley is growing and healthy. Her chubbiness and rolls are just so stinkin' adorable. This month had Mommy's gallbladder surgery. And Haley's first Christmas. Haley chillin' with one of her gifts. Haley was very patient while Calli played with her new "big truck". Haley is developing her personality and definitely has some "looks". She has pl...
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Rejoice this Day: July 2014
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Saturday, July 26, 2014. Haley is now 9 months! This month has been a month of recovery and rest from Haley's eye surgery. And big sister's urology surgery. We have spent plenty of time at doctor's appointments, but have also spent time resting at home. Haley is doing well since her eye surgery. Haley had her 9 month checkup and her blood levels were great, as well as her height and weight are staying on a steady curve. Gotta love all her chunky rolls! Due to Haley's eye surgery. Haley has started saying...
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Rejoice this Day: Finally A Diagnosis For Calli!
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Sunday, September 22, 2013. Finally A Diagnosis For Calli! When we say we "finally" have a diagnosis, we mean "FINALLY"! FPIES is a newer term in the medical community, so we are very thankful for a few great websites and online support groups. Without the experience from these other mom's we would feel totally lost. The FPIES Foundation is a wonderful resource if you are wanting to learn more about FPIES. Visit the FPIES Foundation here. Subscribe to: Post Comments (Atom). View my complete profile.
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Rejoice this Day: May 2014
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Wednesday, May 21, 2014. I Cried Over A Banana. Yep You read that right. I cried over a banana. Yes, a simple banana. Why? Because for the first time ever, feeding my child was simple. My eyes filled with tears. I let her out of the cart, she picked out her own banana, carried it with pride the whole time throughout the store, carefully watched it as we paid for it, and joyfully ate her banana in the car. For once, feeding my child was simple. The Burden of FPIES - I Just Want to Feed My Family! Foods ar...
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Rejoice this Day: December 2014
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Saturday, December 6, 2014. We had a wonderful Thanksgiving at Gma's house! Look at these sweet girls! Calli is on the left at 11 months old and Haley. Is on the right at 13 months old! The girls loved all the individual attention from everyone! I loved snuggling with Haley during naptime. Haley enjoyed ice and Calli had a very special popcorn ball. Calli loved playing in the leaves! We had a serious game of tether ball. Calli photo-bombed their sunset pictures. Subscribe to: Posts (Atom).
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Rejoice this Day: April 2014
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Wednesday, April 30, 2014. Haley is 6 months! It's an embarrassment how late this post is, but considering our recent round of sicknesses. In our household, normal life got put on hold.bluebonnet photos haven't happened either.sigh. So without delay, here is our Haley Bug at 6 months! At Haley's 6 month appointment, she was 95% for weight and 50% for height. To put it in perspective, she is the size Calli was at 12 months! See her cute chubby leg rolls! Haley Bug LOVES to snuggle! And as a side note - I'...
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Rejoice this Day: Haley has Hemiplegic Cerebral Palsy - Our Journey to Diagnosis
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Tuesday, August 19, 2014. Haley has Hemiplegic Cerebral Palsy - Our Journey to Diagnosis. Haley has been diagnosed with hemiplegic cerebral palsy. There I said it. Not easy, but I said it. Haley had a prenatal stroke causing substantial brain damage, which means she now has hemiplegic cerebral palsy as a result of the stroke. And now for the long answer:. So at 8 months old, Haley had her eye surgery. So a month after surgery, we had Haley's 9 month pediatrician checkup. Her pediatrician observed our...
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Rejoice this Day: March 2014
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Friday, March 21, 2014. Haley is now five months! The big news this month was Haley's trip to see Dr. M her pediatric ophthalmologist for her lazy eye. We traveled to The Woodlands to see Dr. M and made a day of the special Daddy, Mommy, Haley time by visiting the Sam Moon store (one of Mommy's favorites) and eating at Wings N More (one of Daddy's favorites). This was Haley's first time in a restaurant! Haley is certainly becoming more active! Also along with grasping at toys, Haley is learning about our...
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