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PiNSA | Primary Immunodeficiency Network of South Africa

Primary Immunodeficiency Network of South Africa

http://pinsa.org.za/

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PAGE TITLE
PiNSA | Primary Immunodeficiency Network of South Africa | pinsa.org.za Reviews
<META>
DESCRIPTION
Primary Immunodeficiency Network of South Africa
<META>
KEYWORDS
1 about us
2 vision and objectives
3 team
4 history
5 constitution
6 governance
7 types
8 symptoms
9 diagnosis
10 treatment
CONTENT
Page content here
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PAGE
about us,vision and objectives,team,history,constitution,governance,types,symptoms,diagnosis,treatment,management,pid glossary,make a donation,pid kids,communications,resource library,patient stories,useful links,partners,no comments,site terms,indemnity
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PiNSA | Primary Immunodeficiency Network of South Africa | pinsa.org.za Reviews

https://pinsa.org.za

Primary Immunodeficiency Network of South Africa

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1

Types | PiNSA

http://www.pinsa.org.za/what-are-pids/types

What are PID’s. What are PID’s. Over 250 different primary immunodeficiencies (PIDs) have been identified, with about 20 of these accounting for over 90 per cent of cases. This means that many conditions are extremely rare: indeed for some conditions, fewer than ten cases have been identified. Every two years an international committee of experts meets to revise and update this classification, adding new conditions and information on the genes that cause PIDs. Well-defined syndromes with immunodeficiency.

2

Management | PiNSA

http://www.pinsa.org.za/what-are-pids/management

What are PID’s. What are PID’s. Click here to download a copy of the Expert recommendations Mgt of PID FINAL. What are PID’s. PiD Kids and Teens. Fund Number 028- 020 NPO (Non Profit Organisation).

3

Useful Links | PiNSA

http://www.pinsa.org.za/useful-links

What are PID’s. World Primary Immunodeficiency Week. IDF Immune Deficiency Foundation. JMF Jeffrey Modell Foundation. World Primary Immunodeficiency Week. World Primary Immunodeficiency Week Poster. World Primary Immunodeficiency Week Infographic. Editorial on the WPIW. Editorial of the WPIW page 2. Editorial of the WPIW page 3. Infographic – WPIW Final. 2015 04 14 PINSA – WORLD PI WEEK Nurses training invite. 2015 04 14 PINSA – WORLD PI WEEK invite. Booklets on 6 primary immunodeficiencies.

4

Resource Library | PiNSA

http://www.pinsa.org.za/resource-library

What are PID’s. Feel free to take a look through our various resources including:. World Primary Immunodeficiency Week (WPIW) 22nd – 29th April 2014. Posted: September 29, 2014. PINSA POSITION STATEMENT ON ACCESS TO IMMUNOGLOBULIN THERAPIES FOR PATIENTS LIVING WITH A PRIMARY IMMUNODEFICIENCY. Posted: September 29, 2014. IPOPI POSITION STATEMENT Access to Immunoglobulin Therapies for patients living with a Primary Immunodeficiency. Posted: September 29, 2014. 8 May 2012 This statement is intended to provi...

5

Make a Donation | PiNSA

http://www.pinsa.org.za/make-a-donation

What are PID’s. To make a donation please make a deposit into the account below and e-mail pinsahelp@mweb.co.za to receive an acknowledgement. Account Number: 07 562 322 6. Swift Number: SBZA ZAJJ. PiD Kids and Teens. Fund Number 028- 020 NPO (Non Profit Organisation).

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Links

http://www.stichtingvoorafweerstoornissen.nl/links

Websites met betrekking tot afweerstoornissen. Zorgportaal van de stichting Care Net Holland. Alle informatie over chronisch ziek zijn. Ziezon: Landelijk netwerk ziek zijn and onderwijs. Gezondheid.nl - een bron van informatie. Sites van buitenlandse patiëntenorganisaties. PIO - Primary Immunodeficiency Organization [Sweden]. AIP - Associazione Per Le Immunodeficienze Primitive [Italië]. IDF - Immune Deficiency Foundation [USA]. JMF - Jeffrey Modell Foundation [USA]. Immun defekt foreningen [Denemarken].

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Foundations | The SCID Homepage

https://www.scid.net/foundations

How You Can Help. Newborn Screening, where it began. SCID Email Listserv Support Group. IVIG & GVH. PID and SCID Specific Sites. Driven by requests from the Severe Combined Immune Deficiency (SCID) community, this new dedicated fund has been created for the purpose of supporting SCID specific programs which include education, awareness, diagnosis, newborn screening, and the search for a cure. Learn more about The SCID Initiative. And find out how you can make your tax deductible donation today. IDF Consu...

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PiNSA | Primary Immunodeficiency Network of South Africa

What are PID’s. What are PID’s? Where to find help. PID Kids and Teens. PiNSA is a non-profit association formed to support patients with PID and their families. It is made up of volunteers. It was formed in 2001 and has over 100 members. PiNSA present at Allergy Carnival! Allergy Carnival on Saturday 1 April at Red Cross Children’s Hospital in Rondebosch in Cape Town. We had an opportunity to tell people all about PiNSA, thanks to AFSA – Allergy Foundation of South Africa. May 5, 2017. May 5, 2017.

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