pnhcommunity.org pnhcommunity.org

pnhcommunity.org

PNH Community

Explore this site to register for Paroxysmal Nocturnal Hemoglobinuria (PNH) events and speak with a registered nurse for free support and education.

http://www.pnhcommunity.org/

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CONTACTS AT PNHCOMMUNITY.ORG

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Alexion Pharmaceuticals, Inc.

PERFECT PRIVACY, LLC

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Alexion Pharmaceuticals, Inc.

PERFECT PRIVACY, LLC

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PNH Community | pnhcommunity.org Reviews
<META>
DESCRIPTION
Explore this site to register for Paroxysmal Nocturnal Hemoglobinuria (PNH) events and speak with a registered nurse for free support and education.
<META>
KEYWORDS
1 PNH
2 Paroxysmal Nocturnal Hemoglobinuria
3 patient community
4 support
5 advice
6 education
7 connect
8 you’re not alone
9 speak with a registered nurse
10 event registration
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about pnh,about us,pnh community events,resources,september 12 register,bruce,jerry,angela,2015 pnhcommunity org,site map,legal,share
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PNH Community | pnhcommunity.org Reviews

https://pnhcommunity.org

Explore this site to register for Paroxysmal Nocturnal Hemoglobinuria (PNH) events and speak with a registered nurse for free support and education.

INTERNAL PAGES

pnhcommunity.org pnhcommunity.org
1

About Us

http://www.pnhcommunity.org/about-us

Next PNH Community Event. Speak with a registered nurse to get free disease education, coverage support, and access to the PNH Buddy program. Contact a nurse now. The PNH Patient Community site is a patient support site funded by Alexion Pharmaceutials, Inc., and in partnership with the National Organization for Rare Disorders (NORD) and the Aplastic Anemia and MDS International Foundation (AA&MDSIF). This group is for all PNH patients, whether or not they have other conditions. Learn More About Nord.

2

PNH Community Events

http://www.pnhcommunity.org/pnh-events

Next PNH Community Event. Speak with a registered nurse to get free disease education, coverage support, and access to the PNH Buddy program. Contact a nurse now. Connect With Others With PNH. You are not alone. Share your experiences, connect with other patients, and learn more about PNH through many free events offered throughout the country. Events in italics are only for PNH patients with bone marrow failure diseases, aplastic anemia (AA), or myelodysplastic syndromes (MDS). Register for this event.

3

PNH Resources

http://www.pnhcommunity.org/resources

Next PNH Community Event. Speak with a registered nurse to get free disease education, coverage support, and access to the PNH Buddy program. Contact a nurse now. Having a rare condition can sometimes make you feel alone. However, many organizations exist to provide you with the support you need and can connect you to others who share your experience. Here are some organizations that offer information, advice, and support. National Organization for Rare Disorders (NORD). National Institutes of Health.

4

PNH Community Site Map

http://www.pnhcommunity.org/site-map

Speak With a Registered Nurse.

5

About PNH

http://www.pnhcommunity.org/about-pnh

Next PNH Community Event. Speak with a registered nurse to get free disease education, coverage support, and access to the PNH Buddy program. Contact a nurse now. Paroxysmal nocturnal hemoglobinuria (PNH) is a serious condition that destroys red blood cells. PNH is an acquired disease, which means it develops over time. Everyone experiences PNH differently. It comes with a wide range of signs and symptoms that can often be similar to those of other diseases, so it can be hard to diagnose.

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pnhsource.com pnhsource.com

PNH Support Programs

http://www.pnhsource.com/patients/patient-resources/pnh-support-programs

This section is for Patients & Caregivers. Switch to PHYSICIAN SECTION. Expert Doctor Perspectives on PNH. Patient Support from OneSource. Because it is a rare disease. Talking with others who have shared similar experiences and who understand can make a difference. Support groups may help you overcome your sense of isolation. Here are some organizations that offer information, advice, and support. The PNH Patient Community:. National Organization for Rare Disorders (NORD):. A nonprofit resource for assi...

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賛助会員 企業 団体 個人. PNH倶楽部は、PNH 発作性夜間ヘモグロビン尿症 患者とその家族を総合的に支援し、 PNH患者のQOLの向上、社会復帰、闘病に伴う不安を互いにサポートし合うことを目的に活動する非営利団体です。 4月21日(土 PNHの集い in 大阪 参加者募集中. 2月1日 News Letter 第21号 発行. 4月21日 土 ピアサポート PNHの集い in 大阪 参加者募集のお知らせ. 7月7日 土 2018年度医療講演会 総会のお知らせ. 12月28日 木 1月4日 木. 新年度の電話サポートは、月 水 金 10:00-16:00 となります。 11月26日 日 ピアサポート PNHの集い in 東京を開催しました。 場 所 響 有楽町店. 助言者 宮川 義隆 先生 埼玉医科大学 総合診療科 血液内科 教授. 10月16日 月 News Letter 20を発送しました。 TEL/FAX 048 229 7887. メール pnh-support@pnhclub.jp 変更になりましたのでご注意下さい.

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pnhcommunity.org pnhcommunity.org

PNH Community

Next PNH Community Event. Speak with a registered nurse to get free disease education, coverage support, and access to the PNH Buddy program. Contact a nurse now. Welcome to the PNH Community. With a rare condition like paroxysmal noctural hemoglobinuria (PNH), you may feel like it’s hard for others to understand what you’re going through. But you’re not alone. Connecting with other PNH patients can help you get the support, advice, and education you need to cope with your disease. I can’t emphasize just...

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pnhcomputers.com pnhcomputers.com

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