pnhinterestgroup.org

International PNH Interest Group

IPIG 12th Annual Scientific Assembly. IPIG’s 12th Annual Meeting, held December 8, 2017, in Atlanta, Georgia, immediately prior to the opening of the American Society of Hematology Annual Meeting, was a great success, with close to 100 members in attendance. The mission of the International PNH Interest Group is to expand knowledge of paroxysmal nocturnal hemoglobinuria (PNH), its incidence, and prevalence rates, and to consider and recommend optimal care and treatment of patients diagnosed with PNH.

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IPIG 12th Annual Scientific Assembly. IPIG’s 12th Annual Meeting, held December 8, 2017, in Atlanta, Georgia, immediately prior to the opening of the American Society of Hematology Annual Meeting, was a great success, with close to 100 members in attendance. The mission of the International PNH Interest Group is to expand knowledge of paroxysmal nocturnal hemoglobinuria (PNH), its incidence, and prevalence rates, and to consider and recommend optimal care and treatment of patients diagnosed with PNH.

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International PNH Interest Group | pnhinterestgroup.org Reviews

https://pnhinterestgroup.org

IPIG 12th Annual Scientific Assembly. IPIG’s 12th Annual Meeting, held December 8, 2017, in Atlanta, Georgia, immediately prior to the opening of the American Society of Hematology Annual Meeting, was a great success, with close to 100 members in attendance. The mission of the International PNH Interest Group is to expand knowledge of paroxysmal nocturnal hemoglobinuria (PNH), its incidence, and prevalence rates, and to consider and recommend optimal care and treatment of patients diagnosed with PNH.

INTERNAL PAGES

pnhinterestgroup.org

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International PNH Interest Group 10th Annual Scientific Meeting and Member Dinner | International PNH Interest Group

https://www.pnhinterestgroup.org/meetings/professionals/international-pnh-interest-group-10th-annual-scientific-meeting-and-member-dinner

If you're having trouble logging in please try another browser i.e Firefox, Chrome. International PNH Interest Group 10th Annual Scientific Meeting and Member Dinner. Registration for this meeting is now open. To register for this event please log in to your account. And register your attendance on this page. If you don't yet have an account, you can apply to join. You can register to attend the meeting at any time using the above link above. Our meeting schedule is as follows:. 8211; Member reception.

2

News | International PNH Interest Group

https://www.pnhinterestgroup.org/news

If you're having trouble logging in please try another browser i.e Firefox, Chrome. Living with Aplastic Anemia, MDA, or PNH Patient & Family Conferences. Are you a newly diagnosed patient, long-term survivor, caregiver, or friend of a patient? AA&MDSIF Seeks Applications for 2016 Grant Award Program. Bone Marrow Failure Disease Scientific Symposium. AA&MDSIF will host a Bone Marrow Failure Disease Scientific Symposium 17-18 March 2016, in the Washington, DC area. We hope that you will be able to join us...

3

Sitemap | International PNH Interest Group

https://www.pnhinterestgroup.org/sitemap

If you're having trouble logging in please try another browser i.e Firefox, Chrome. Meetings for PNH Professionals. International PNH Interest Group 11th Annual Scientific Meeting. San Diego, California, USA. American Society of Hematology 58th Annual Meeting and Exposition. 3rd Dec 2016 – 6th Dec 2016. San Diego, California, USA. Access to IPIG members-only section for purposes of medical and scientific information exchange. Created by Mixd • Web design Harrogate.

4

Resources | International PNH Interest Group

https://www.pnhinterestgroup.org/resources

If you're having trouble logging in please try another browser i.e Firefox, Chrome. Health care professionals who are interested in more information about PNH may find the following organizations of interest:. American Nephrology Nurses’ Association. East Holly Avenue, Box 56. Pitman, NJ 08071-0056. Telephone: 1 856 256 2320. Website: http:/ www.annanurse.org. American Society of Hematology (ASH). 1900 M Street, NW. Washington, DC 20036. Tel: 1 202 776 0544. Website: http:/ www.hematology.org. If you are...

5

Meetings | International PNH Interest Group

https://www.pnhinterestgroup.org/meetings

If you're having trouble logging in please try another browser i.e Firefox, Chrome. International PNH Interest Group 11th Annual Scientific Meeting. San Diego, California, USA. International PNH Interest Group 11th Annual Scientific Meeting, Friday, 2 December 2016, San Diego, California, USA. American Society of Hematology 58th Annual Meeting and Exposition. 3rd December 2016 – 6th December 2016. San Diego, California, USA. Living with Aplastic Anemia, MDA, or PNH Patient & Family Conference.

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pnhsg.jp

会員ログイン | 日本PNH研究会

https://pnhsg.jp/member/index.php

NPO法人 PNH倶楽部は、発作性夜間血色素尿症 PNH 患者と家族の会です。

pnhsg.jp

会則 | 日本PNH研究会

http://pnhsg.jp/studygroup/rule.php

英文名は、Japan PNH Study Groupとする。本会は、発作性夜間ヘモグロビン尿症 PNH に関する研究を行い、会員相互、関係機関との連携を図り、質の高い医療を日本各地、世界各国に普及させることにより、 PNHを抱える人々やその家族、地域の人々が安心して生活できる社会を作ることに貢献することを目的とする。株式会社A M S 内). NPO法人 PNH倶楽部は、発作性夜間血色素尿症 PNH 患者と家族の会です。

pnhsg.jp

エキスパートからのメッセージ | 日本PNH研究会

http://pnhsg.jp/expart/index.php

Jeffrey Szer, MD. Professor of Medicine, Director of Clinical Hematology and Bone Marrow Transplant Service of the Royal Melbourne Hospital and the University of Melbourne, Melbourne, Australia. また、オーストラリア独自のユニークな医薬品資金援助システム Life Saving Drugs Program についてもご紹介いただきました。 Peter Hillmen, MD. Honorary Professor of Haematology at St.James's University Hospital, Leeds, UK Consultant Haematologist, Leeds Teaching Hospitals NHS Trust, Leeds,UK. NPO法人 PNH倶楽部は、発作性夜間血色素尿症 PNH 患者と家族の会です。

pnhsg.jp

PNH新知見 | 日本PNH研究会

http://pnhsg.jp/news/index.php

2016年6月 9日 12日にデンマークコペンハーゲンにて開催された21st Congress of European Hematology Association (EHA)より、PNH関連の注目演題についてレポートをお届けします。 2015年12月5日 8日に米国オーランドにて開催されたASH Annual Meeting and Expositionより、PNH関連の注目演題についてレポートをお届けします。大阪大学大学院医学系研究科血液腫瘍内科学. 2015年6月11日 14日にオーストリアウィーンにて開催された20th Congress of European Hematology Association (EHA)より、PNH関連の注目演題についてレポートをお届けします。 2014年12月6日 9日に米国サンフランシスコにて開催されたASH Annual Meeting and Expositionより、PNH関連の注目演題についてレポートをお届けします。 Overview and Updates in PNH. 筑波大学医学医療系臨床医学域教授. NPO法人 PNH倶楽部 ...

pnhsg.jp

What's NEW | 日本PNH研究会

http://pnhsg.jp/whatsnew.php

新規臨床研究研究課題名略称 SUPREMACY のご案内. 2012年 Dr.Hill PNH特別講演を追加いたしました。 NPO法人 PNH倶楽部は、発作性夜間血色素尿症 PNH 患者と家族の会です。

pnhsg.jp

第76回日本血液学会　学術講演 | 日本PNH研究会

http://pnhsg.jp/news/movie4/index.php

Overview and Updates in PNH. 筑波大学医学医療系臨床医学域教授. Georgetown University. USA. Catherine M. Broome 先生. 2012年 Dr.Hill PNH特別講演. NPO法人 PNH倶楽部は、発作性夜間血色素尿症 PNH 患者と家族の会です。

pesg.org

İlgili Linkler - PESG

http://www.pesg.org/ilgili-linkler.php

PNH ile İlgili Toplantı ve Sempozyumlar. International PNH Interest Group. Http:/ www.pnhinterestgroup.org/. PNHSource Patients and Caregivers. Aplastic Anemia and MDS International Foundation. Http:/ www.aamds.org/. Canadian Association of PNH Patients. Http:/ www.pnhca.org/. Pnhsaa PNH Support Assosiation Australia. Http:/ www.pnhsaa.org.au/.

pnhsg.jp

主な活動 | 日本PNH研究会

http://pnhsg.jp/studygroup/action.php

日本でのPNH Registry 国際的なPNH登録プログラムの発足. NPO法人 PNH倶楽部は、発作性夜間血色素尿症 PNH 患者と家族の会です。

pnhsg.jp

ASH2014速報 | 日本PNH研究会

http://pnhsg.jp/news/ash2014/index.php

Moscone Center, San Francisco, CA. 発作性夜間ヘモグロビン尿症 PNH に関しては、24演題そのうち口演1題が発表されたが、日本からも2演題が採択されており、日本PNH研究会からは1演題 OPTIMA study を発表できた。 Chronological Analysis of Clonal Evolution in Acquired Aplastic Anemia. 監修川口辰哉先生. Clinical and Immunological Characterisation of Coversin, a Novel Small Protein Inhibitor of Complement C5 with Potential As a Therapeutic Agent in PNH and Other Complement Mediated Disorders. 監修西村純一先生. 大阪大学大学院医学系研究科血液腫瘍内科学. 監修二宮治彦先生. 2012年 Dr.Hillmen 講演動画.

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Muscle twitching and cramp variants of nerve hyperexcitability

Muscle twitching, cramp and peripheral nerve hyperexcitability (PNH). Peripheral nerve hyperexcitablity (PNH) is a generalised term that is used to cover a spectrum of disorders that exhibit the symptoms. The primary effect caused by PNH is involuntary muscle fibre activity in the form of muscle twitches(fasciculations), cramp and cramp like feelings. In turn this may lead to muscular aches, pain, soreness and discomfort. Sensory symptoms ( paresthesia. The purpose of this site is to give an insight into...

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pnhinterestgroup.org

International PNH Interest Group

IPIG 12th Annual Scientific Assembly. IPIG’s 12th Annual Meeting, held December 8, 2017, in Atlanta, Georgia, immediately prior to the opening of the American Society of Hematology Annual Meeting, was a great success, with close to 100 members in attendance. The mission of the International PNH Interest Group is to expand knowledge of paroxysmal nocturnal hemoglobinuria (PNH), its incidence, and prevalence rates, and to consider and recommend optimal care and treatment of patients diagnosed with PNH.

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