pnhca.org
For Physicians « Canadian Association of PNH Patients / L’Association québécoise de l'HPN
http://www.pnhca.org/for-physicians-5
Disease & Treatment. Advocacy & Support. Be a Mentor, Request a Mentor. Resources & Links. List of Canadian PNH Doctors. INVITATION – Montreal Patient and Caregiver . INVITATION: AAMAC Patient Education Day in Moncton. SAVE THE DATE: Montreal Patient and Caregiver Meet. INVITATION: AAMAC Patient Support Group Meeting. 2016 AAMDSIF Patient and Family Conferences (US ci. PARTICIPATION REQUESTED: PNH Patient Survey. NEW STUDY: Eculizumab in Pregnant Patients with PN. PNH in the News. Carrie Richards –...
alexionpharma.ca
Resources and Support for Patients with Ultra-rare Diseases
http://www.alexionpharma.ca/patients/resources-and-groups
Patient Groups and Resources. Soliris in atypical HUS. Raquo; Patient Groups and Resources. Patient Groups and Resources. Alexion shares key goals with patient organizations worldwide, including increasing the understanding of rare and ultra-rare diseases, improving patient care, and enhancing patient access to innovative therapies. Our approach to serving patients is driven by a passion for understanding and meeting the unique needs of patients and families suffering from rare diseases.
pnhca.org
Useful Links « Canadian Association of PNH Patients / L’Association québécoise de l'HPN
http://www.pnhca.org/resources-links/useful-links
Disease & Treatment. Advocacy & Support. Be a Mentor, Request a Mentor. Resources & Links. List of Canadian PNH Doctors. INVITATION – Montreal Patient and Caregiver . INVITATION: AAMAC Patient Education Day in Moncton. SAVE THE DATE: Montreal Patient and Caregiver Meet. INVITATION: AAMAC Patient Support Group Meeting. 2016 AAMDSIF Patient and Family Conferences (US ci. PARTICIPATION REQUESTED: PNH Patient Survey. NEW STUDY: Eculizumab in Pregnant Patients with PN. PNH in the News. Carrie Richards –...
aamac.ca
Aplastic Anemia & Myelodysplasia Association of Canada (AAMAC) :: Home
http://www.aamac.ca/e/a_34main.cfm
Welcome to AAMAC.ca. Aplastic Anemia and MDS International Foundation. MarrowForums - Discussion forums for patients with bone marrow failure diseases. The Aplastic Anaemia Trust. The Myelodysplastic Syndromes Foundation. MDS Patient Message Board. PNH On-Line Support Group. PNH Research and Support Foundation. Canadian Association of PNH Patients. Marrow Failure and Myelodysplasia Program. Anemia Institute for Research and Education. Thalassemia Foundation of Canada. OneMatch Stem Cell and Marrow Network.