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Race For 7 | 7000 Rare Diseases | 7000 Meters

ORDI team committed to address the challenges of rare disease patients and their families is conducting ‘Race for 7’, an awareness run in Bengaluru on

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Race For 7 | 7000 Rare Diseases | 7000 Meters | racefor7.com Reviews

https://racefor7.com

ORDI team committed to address the challenges of rare disease patients and their families is conducting ‘Race for 7’, an awareness run in Bengaluru on

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1

Volunteer | Race For 7

http://racefor7.com/volunteer-with-us

Bengaluru, India OLD. Washington DC, USA. Date of Birth (dd/mm/yyyy). To learn more about rare diseases in India, visit http:/ ordindia.org. Highslide for Wordpress Plugin.

2

RaceFor7 Event Sponsors | Race For 7

http://racefor7.com/sponsors

Bengaluru, India OLD. Washington DC, USA. Racefor7 event is Organized by Organization For Rare Diseases India(ORDI). 2016 Racefor7 event sponsors list. To learn more about rare diseases in India, visit http:/ ordindia.org. Highslide for Wordpress Plugin.

3

Supporting PAGs | Race For 7

http://racefor7.com/supporting-pags

Bengaluru, India OLD. Washington DC, USA. 8220;Awareness is key to. 8220;We get care even if we are rare”. 8220;I Won’t Give In Without A Fight”. Indian Patients Society for Primary Immunodeficiency. To learn more about rare diseases in India, visit http:/ ordindia.org. Highslide for Wordpress Plugin.

4

2016 Photos | Race For 7

http://racefor7.com/gallery

Bengaluru, India OLD. Washington DC, USA. Racefor7 – Part-1. To learn more about rare diseases in India, visit http:/ ordindia.org. Highslide for Wordpress Plugin.

5

About | Race For 7

http://racefor7.com/about

Bengaluru, India OLD. Washington DC, USA. Race for 7 is an awareness run organized by Organization For Rare Disease India ( ORDI. 8211; a team committed to address the challenges of rare disease patients and their families in India. To raise awareness about rare diseases, to empower patients and their families with access to national and international resources. As per record, more than 7000 rare diseases have been documented so far. One of them, we’d like to believe, would be you.

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gne-myopathy.org gne-myopathy.org

GNE Myopathy

http://gne-myopathy.org/upcoming_events.html

GNE and sialic acid biosynthesis. Clinical features and symptoms. Country specific rules and government support. Family, friend and caregivers. Diagnosis of other Myopathies. A discussion meeting is being organized for "Evolving Policies for Cure of Rare Diseases" at Jawaharlal Nehru University on February 23rd, 2017 from 10:30 am onwards. For participation. Ontact: alok.bhattacharya@gmail.com. GNE Myopathy Patient Survey please see https:/ goo.gl/forms/Jle8mg1qvP1SRM7t1. Pril 22-23, 2016 at. 2 Rare Dise...

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