sweetdreamswords.blogspot.com
~SweetDreams~: Last few months in one post.
http://sweetdreamswords.blogspot.com/2010/03/last-few-months-in-one-post.html
Sunday, March 07, 2010. Last few months in one post. I will try to make it as short as possible without missing anything. End Sept - End Oct. = Nicky starts with nightly breathing issues, starts off as just a PITA, increased all meds. Phones, I think to myself "wow never had a follow up call before" and was happy for a moment that someone cared a little more then usual. He was referred off to Cardiology at Sick Kids (to Dr. Dipchand. He was suppose to get an ECG, holter. Like planned (after the holter.
sweetdreamswords.blogspot.com
~SweetDreams~: March 2009
http://sweetdreamswords.blogspot.com/2009_03_01_archive.html
Thursday, March 12, 2009. Good Thursday Morning lol. Not too sure how "good" it is but it could be worse right? My surgery went well, the recovery not so well, long story but I guess we'll just have to wait and see how things go over the next few months lol. Mike's been given "maybe" dates for is work-up training lol now they are telling him he should be leaving the endish of April BUT we all know how they like to change their minds so I'm not holding my breath over it! Subscribe to: Posts (Atom). A free...
sweetdreamswords.blogspot.com
~SweetDreams~: Good Thursday Morning lol
http://sweetdreamswords.blogspot.com/2009/03/good-thursday-morning-lol.html
Thursday, March 12, 2009. Good Thursday Morning lol. Not too sure how "good" it is but it could be worse right? My surgery went well, the recovery not so well, long story but I guess we'll just have to wait and see how things go over the next few months lol. Mike's been given "maybe" dates for is work-up training lol now they are telling him he should be leaving the endish of April BUT we all know how they like to change their minds so I'm not holding my breath over it! Subscribe to: Post Comments (Atom).
sweetdreamswords.blogspot.com
~SweetDreams~: The roller coaster
http://sweetdreamswords.blogspot.com/2009/08/roller-coaster.html
Friday, August 14, 2009. It has been up and down here lately. Joey was taken by ambulance to the hospital the other night, it was scary! They got him packed up to go to the hospital and I rode with him while Mike stayed home with Nicky and Matthew, he fought the whole way there freaking out. At a few points he fought so hard he had the straps around his neck! I hope to God we NEVER have to go through that again! Please keep the boys in your thoughts and prayers, thank you! It Might Be Hope.
sweetdreamswords.blogspot.com
~SweetDreams~: July 2009
http://sweetdreamswords.blogspot.com/2009_07_01_archive.html
Friday, July 24, 2009. It's been busy here lately, very busy, Nicholas had his eye surgery and everything went smoothly =) and by his surgeon he is the only child she's ever had that didn't end up with some kind of infection post-op. His eyes look great! She was telling us he would most likely need a second surgery because his eyes were starting to pull upwards and this surgery would not fix it, but guess what? Now for the downside (why does there always seem to be one? K deficient ( Vit. But we wont kno...
sweetdreamswords.blogspot.com
~SweetDreams~: August 2009
http://sweetdreamswords.blogspot.com/2009_08_01_archive.html
Friday, August 14, 2009. It has been up and down here lately. Joey was taken by ambulance to the hospital the other night, it was scary! They got him packed up to go to the hospital and I rode with him while Mike stayed home with Nicky and Matthew, he fought the whole way there freaking out. At a few points he fought so hard he had the straps around his neck! I hope to God we NEVER have to go through that again! Please keep the boys in your thoughts and prayers, thank you! Subscribe to: Posts (Atom).
sweetdreamswords.blogspot.com
~SweetDreams~: March 2010
http://sweetdreamswords.blogspot.com/2010_03_01_archive.html
Sunday, March 07, 2010. Equipment Help Pretty Please. Last few months in one post. I will try to make it as short as possible without missing anything. End Sept - End Oct. = Nicky starts with nightly breathing issues, starts off as just a PITA, increased all meds. Phones, I think to myself "wow never had a follow up call before" and was happy for a moment that someone cared a little more then usual. He was referred off to Cardiology at Sick Kids (to Dr. Dipchand. He was suppose to get an ECG, holter.
sweetdreamswords.blogspot.com
~SweetDreams~: February 2009
http://sweetdreamswords.blogspot.com/2009_02_01_archive.html
Saturday, February 14, 2009. Haha so I'm booked for surgery on March 4th (oh yippee! So I picked surgery, at the very worst if the healing or surgery doesn't go as planned, because surgery is not 100% guarantied to work, I will have the same result as doing nothing so might as while give surgery a shot at least right? But with their help I will have the first few weeks of healing covered and hopeful obtain the BEST results from surgery. On the upside Nicky is doing great, he has never been better, he has...
sweetdreamswords.blogspot.com
~SweetDreams~: long winded update
http://sweetdreamswords.blogspot.com/2009/07/long-winded-update.html
Friday, July 24, 2009. It's been busy here lately, very busy, Nicholas had his eye surgery and everything went smoothly =) and by his surgeon he is the only child she's ever had that didn't end up with some kind of infection post-op. His eyes look great! She was telling us he would most likely need a second surgery because his eyes were starting to pull upwards and this surgery would not fix it, but guess what? Now for the downside (why does there always seem to be one? K deficient ( Vit. But we wont kno...
sweetdreamswords.blogspot.com
~SweetDreams~: Who is "worthy" enough for life?
http://sweetdreamswords.blogspot.com/2011/02/who-is-worthy-enough-for-life.html
Thursday, February 24, 2011. Who is "worthy" enough for life? I have pondered this with a heavy heart the past few months, time and time again I read and hear stories of babies who have "no hope" or "little chance" to be "normal" having to not only fight with their failing bodies but our medical system who deems them unworthy of a chance to see how far they can push their limits. I look at my own son and I don't even want to think "what if? She knows what she is doing right? The follow year was good, he ...