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Home - Rettland FoundationThe Rettland Foundation seeks to make it easier for families to obtain treatment for Rett Syndrome.
http://www.rettland.org/
The Rettland Foundation seeks to make it easier for families to obtain treatment for Rett Syndrome.
http://www.rettland.org/
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Rettland foundation
Colleen English
268 Bl●●●●●●net Ln
Scot●●●●lley , CA, 95066
US
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Rettland foundation
Colleen English
268 Bl●●●●●●net Ln
Scot●●●●lley , CA, 95066
US
View this contact
Rettland foundation
Colleen English
268 Bl●●●●●●net Ln
Scot●●●●lley , CA, 95066
US
View this contact
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Home - Rettland Foundation | rettland.org Reviews
https://rettland.org
The Rettland Foundation seeks to make it easier for families to obtain treatment for Rett Syndrome.
rettland.org
About - Rettland Foundation
http://rettland.org/about
Rettland is a place people are taken to when one little person is born with one little variation on one little gene. Life is tougher here but triumphs are far greater. Rettland transforms typical into extraordinary as communities unite over common ground. Rettland Foundation recognizes that strength comes from supporting one another and we seek to be a bridge and make that process easier. What is our goal? How do we do this? Send your thoughts to colleen@rettland.org. Middot; 2016 Rettland Foundation.
- Rettland Foundation
http://rettland.org/notspeaking
Will you NOT SPEAK with us? Choose how you want to join in the fun:. 10 donation- We will mail you 3 stickers to wear and 20 cards to hand out along with a prompt sheet so you can grab some friends and actively go NOT SPEAK in your community. 30 donation- Host your own NOT SPEAKING event! Are you a regular at a favorite restaurant? Do you own or work at a shop? Do you meet with a book club, have dinner with friends? We will send you everything you need to host a not speaking event.
Rest Easy: Update! - Rettland Foundation
http://rettland.org/programs/rest-easy-update
This entry was posted in programs. June 16, 2014. We are very excited to announce some changes to our Rest Easy program. As of June 1, 2014, the Rettland Foundation will be providing financial assistance to families with two different programs. Our program for assistance with the screening visit is growing to include:. Up to $150/ night for hotel. 1 night if within 5 hours travel time. 2 nights if travel exceeds 5 hours travel time. 50 per day allowance for food/incidentals. We are a very new organizatio...
About Rett Syndrome - Rettland Foundation
http://rettland.org/rett-syndrome
Rett Syndrome (RTT)is a very complex thing and the the National Institute of Neurological Disorders and Stroke has a great fact sheet that you can see by following this. In the United States there are two large organizations that are funding research for RTT and they also have comprehensive information on RTT. You can visit. Rett Syndrome Research Trust. To see how they explain it. As an organization that is dedicated to family support, this is how we explain it. Middot; 2016 Rettland Foundation.
Donate - Rettland Foundation
http://rettland.org/donate
Rettland Foundation is honored you have chosen us as the beneficiary of your generous donation today! Thank you for partnering with us to help families living with Rett Syndrome participate in critical clinical research. You can donate online today or mail us a check. Payable to “RETTLAND FOUNDATION”,. PO Box 7362 Santa Cruz, CA 95061. Middot; 2016 Rettland Foundation. Middot; Designed by Themes and Co.
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Boston and Washington DC – Trials and Conferences! | Rettology: My Rett Life
http://www.rettology.com/2014/07/02/348
Rettology: My Rett Life. My thoughts on raising a special needs kiddo and a typical kiddo. This is your brain on drugs…. Rett Siblings (or siblings in general) →. Boston and Washington DC – Trials and Conferences! July 2, 2014. Sorry that my blog posts are sporadic lately. We have been one busy and crazy family. I do realize that me talking is beneficial to some people (my husband would probably disagree;). Heck yes, sign me up. I learned about all the trials going on and the science behind it. The g...
Looking back | Rettology: My Rett Life
http://www.rettology.com/2015/06/25/looking-back
Rettology: My Rett Life. My thoughts on raising a special needs kiddo and a typical kiddo. A long year…. June 25, 2015. He really is a mini-me. If you don’t believe me, ask my Mom! He is my pay back! Haha This coming school year, he will be attending a new to him school at our new parish, St Joseph of Cupertino in Cupertino. I think it is a perfect match. He is toilet trained now and is doing great! Frozen on the other hand made her squeal and rock! This entry was posted in Rettology. A long year….
July | 2014 | Rettology: My Rett Life
http://www.rettology.com/2014/07
Rettology: My Rett Life. My thoughts on raising a special needs kiddo and a typical kiddo. Monthly Archives: July 2014. Oh The Places You’ll Go! July 17, 2014. So…Back in October, we took a leap of faith by moving to California. At the same time, we took another leap of faith and applied to have Elizabeth participate in the IGF-1 drug Clinical trial being run out of Boston … Continue reading →. Rett Siblings (or siblings in general). July 2, 2014. I have some pretty amazing siblings in my life….
Rettology: My Rett Life | My thoughts on raising a special needs kiddo and a typical kiddo | Page 2
http://www.rettology.com/page/2
Rettology: My Rett Life. My thoughts on raising a special needs kiddo and a typical kiddo. Newer posts →. Did you miss me? February 26, 2014. Did you miss me? I was on a post frenzy last week and then I slowed down:). This will make my Mommy Drop-off time so much easier and will give me a little more freedom to get stuff done without kiddos in town. Charlie is a live wire and never stops. He chats all the time and is on full speed all the time. I can not entertain him enough! Per Boston Children’s ...
6 runners, 2 days, 195 miles in honor of Rett Syndrome – GP2C | Rettology: My Rett Life
http://www.rettology.com/2014/03/31/6-runners-2-days-195-miles-in-honor-of-rett-syndrome-gp2c
Rettology: My Rett Life. My thoughts on raising a special needs kiddo and a typical kiddo. Did you miss me? I was not ready for this… →. 6 runners, 2 days, 195 miles in honor of Rett Syndrome – GP2C. March 31, 2014. We are committed to trying to raise $100 of this…that is $10 per person:) Let’s get do it! Http:/ girls.girlpower2cure.org/elizabethclaire. This entry was posted in Rettology. Did you miss me? I was not ready for this… →. Leave a Reply Cancel reply. Your email address will not be published.
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Donate | Trail To A Texas Trial
https://trailtoatexastrial.wordpress.com/donate
Trail To A Texas Trial. 4 out of 5 dentists recommend this WordPress.com site. About the Safety Study of NNZ-2566. A cure for Rett Syndrome is around the corner and by helping others, like Katelin, get to trials, you put researchers one step closer to that goal. Thank you from the bottom of my heart. Click below to donate to Rettland. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). Notify me of new comments via email.
livingwithrettsyndrome.blogspot.com
Living with Rett Syndrome: Experimented on
http://livingwithrettsyndrome.blogspot.com/2014/11/experimented-on.html
Living with Rett Syndrome. I thought I would have to teach my daughter about the world. It turns out I have to teach the world about my daughter." - Unknown. WHAT IS RETT SYNDROME AND WHAT'S THIS BLOG ABOUT? Sunday, 23 November 2014. I also talked about the Rettland Foundation. Created by an unstoppable woman with a vision for helping families get their girls into trials, getting the trials filled, and getting the results we all need to see as soon as humanly possible. Abby had that 'I can't believe I'm ...
Fear Archives - Chris Morris
http://www.chrismorriswrites.com/category/fear-2
Redefining Normal. Building Hope. Books & Resources. A Day in the Life. Is This For Me? November 3, 2014. Brittany Maynard Isn’t Brave, But These People Are. Courtesy of Brittany Maynard. On November 1, 2014 Brittany Maynard ended her life with a lethal dose of medication prescribed to her by her doctor. She was suffering from an inoperable brain tumor, a stage 4 glioblastoma. She is being heralded as brave for making this choice, and for publicizing it weeks in advance. But she isn’t brave. I know Colle...
Elizabeth | Rettology: My Rett Life
http://www.rettology.com/category/elizabeth
Rettology: My Rett Life. My thoughts on raising a special needs kiddo and a typical kiddo. Where there is love there is life. August 14, 2014. So much has happened since I last posted and it has only been 1 month:) We received notification at the end of July that our landlord was not going to renew our lease so we would have to move by … Continue reading →. December 31, 2013. December 27, 2013. April 24, 2013. You say April showers, brings May flowers! Subscribe to Rettology by Email.
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Tel: 0664 33 65 458. Fax: 03862 32003 15. In das HAUS der GESUNDHEIT / EUROMARKT. Siegfried-Marcus-Strasse 7, A-8605 Kapfenberg. Alle weiteren Informationsquellen wie. Telefon, FAX, Internetadresse und Email bleiben unverändert! Wir freuen uns über die neue Herausforderung und die gute Zusammenarbeit mit Ihnen! NEWSFLASH OP-statistik 31.12.2014. AKTUELLE OP-STATISTIK von 31.12.2014. Becken 10, Diverses 466, Ellbogen 79,. Fuss 145, Hand 378, Hüfte 405. Knie 4618 (Arthro 3176, Knie-TEP 953). Dh transtibial...
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Adventures in Rettland | Attempting to not compromise the process
Attempting to not compromise the process. Skip to primary content. Skip to secondary content. August 12, 2015. I wish I could better describe the last 10 days or better yet, what we’ve experienced over the last year and a half. All I can come up with is that I’ve changed. Claire’s changed. Jared and Chloe have to. We got to try to do something to help Claire. Three years ago, that option wasn’t on the table. Today I see the potential for a life with Rett that can get better. The game is changing....The t...
Home - Rettland Foundation
Just another WordPress site. Just another WordPress site. Just another WordPress site. Our program for family support. What is Rett Syndrome? Help us NOT SPEAK! Who we are, and what we're working towards. Help us get the girls to a clinical trial. Read our thoughts and our adventures. Middot; 2015 Rettland Foundation. Middot; Designed by Themes and Co.
The Gatepost
News, Muse, and Views from Rettland Farm. Saturday, March 14, 2015. If you remember, last year we took a little different approach to a typical CSA for our farm. We discussed the reasons for doing so. We came up with a new program we call the Farm Share, and we rolled it out for the first time in 2014. It worked pretty well. So, we're going to do it again. The Rettland Farm Share 2015 is Open for Business! Here's how it works:. The Buy In Phase:. That's right, no set CSA fee. For amounts over $2000, afte...
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Rettland Farm, located minutes from the historic Gettysburg battlefield, is a small, diversified, family operated farm, dedicated to producing delicious, wholesome food for local families and restaurants. Click on the Blog link for current happenings and new products!
RETTLAUA - REnnrad, TischTennis, LAufen Und Anderes
REnnrad, TischTennis, LAufen Und Anderes. Was es so an Neuigkeiten gibt:. Elektroinstallation – Kabel verlegen geht in die zweite Halbzeit. Als ich mich am Wochenende in den Fängen der Kabel und Rohre verklemmt hatte, hatte ich ausreichend Zeit für ein paar Fotos. Die Elektroinstallation schreitet voran. Ich möchte anmerken, dass Elektriker einen ziemlich schmutzigen Job haben (Fräsen, Schlitzen) und den…. Fenster, Tür, Dach, Schornstein, Verkabelung und Co – Die vermeintliche Ruhe. Problem gelöst, Gerüs...
Rennrad Tischtennis Laufen und anderes | Rennrad Tischtennis Laufen und anderes
Rennrad Tischtennis Laufen und anderes. Rennrad Tischtennis Laufen und anderes. Tapetenwechsel de luxe: RETTLAUA.de. 4 REWE Team-Challenge Dresden oder:Training wird überbewertet. Also das letzte Mal bin ich im vergangenen Jahr gelaufen, nämlich zur 3. REWE Team-Challenge Dresden :-). So machte ich mir dann auch erst kurz vorm Start Gedanken, was ich und wie ich denn eigentlich laufen will. Das Ziel stand recht fix: Sub25. Vorbei an den langsameren Läufern und Läuferinnen, immer an der Seite entlang, da ...
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