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Ring20 Research and Support UK CIO HOME - Ring20 Research and Support UK CIO

Ring20 Research and Support UK has been set up to support families, individuals and professionals who are affected by, or who come into contact with Ring Chromosome 20 Syndrome (r20).

http://ring20researchsupport.co.uk/

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Ring20 Research and Support UK CIO HOME - Ring20 Research and Support UK CIO | ring20researchsupport.co.uk Reviews
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Ring20 Research and Support UK has been set up to support families, individuals and professionals who are affected by, or who come into contact with Ring Chromosome 20 Syndrome (r20).
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1 Ring20 Research and Support UK CIO
2 Ring 20 Research and Support UK CIO
3 Ring20
4 Ring 20
5 Ring Chromosome 20 Syndrome
6 Epilepsy
7 Rare Disease
8 Ultra Rare Disease
9 Autism
10 Chromosome
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about us,our team,events,forthcoming events,family conference,our members,get support,get involved,donate,fundraising,merchandise,personal stories,kieran’s story,jessica’s story,diana’s story,callum’s story,knowledge base,blog,news,useful links,donate now
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Ring20 Research and Support UK CIO HOME - Ring20 Research and Support UK CIO | ring20researchsupport.co.uk Reviews

https://ring20researchsupport.co.uk

Ring20 Research and Support UK has been set up to support families, individuals and professionals who are affected by, or who come into contact with Ring Chromosome 20 Syndrome (r20).

INTERNAL PAGES

ring20researchsupport.co.uk ring20researchsupport.co.uk
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Ring20 Research and Support UK CIO Jessica's Story - Ring20 Research and Support UK CIO

http://ring20researchsupport.co.uk/personal-stories/jessicas-story-2

GRANTS & SPONSORSHIP. GRANTS & SPONSORSHIP. Larr; Go back Home. Jessica Sullivan (age 9). Our little girl Jessica, age 9, was diagnosed with Ring20 (mosaic) in August 2015 following a period of seizure activity that commenced February 2015. Prior to this, Jessica was a very fit and active little girl. Seizures consisted of tonic, complex partial, absence/status, and sleep. Jessica remains on her base AED, Carbamazapine/Tegretol. Other AED’s prescribed were in combinations of:. To date, we have not had to...

2

Ring20 Research and Support UK CIO OUR TEAM - Ring20 Research and Support UK CIO

http://ring20researchsupport.co.uk/our-team

GRANTS & SPONSORSHIP. GRANTS & SPONSORSHIP. Larr; Go back Home. Chair and Co-Founder (Trustee). Don Gordon helped to establish the Ring Chromosome 20 Foundation in early 2007. With over twenty years experience in media, marketing and publications Don was instrumental in establishing multiple col Read More →. Secretary and Co-Founder (Trustee). Tomi joined us to add value to the team, she has volunteered in the past with Oxfam and BHF, she is passionate about giving back to the society. She is current...

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Ring20 Research and Support UK CIO GRANTS & SPONSORSHIP - Ring20 Research and Support UK CIO

http://ring20researchsupport.co.uk/get-involved/grants-sponsorship

GRANTS & SPONSORSHIP. GRANTS & SPONSORSHIP. GRANTS & SPONSORSHIP. Larr; Go back Home. It takes a significant amount of money to run even a small charity year on year, not least of which includes hosting and running this website. To help meet these annual running costs and secure the service we aim to provide, we are continuously looking for suitable grant or sponsorship opportunities. We would be happy to look into any suggestions that you put forward. 8211; National Grid (Gas). Essex, CM14 5BN.

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Ring20 Research and Support UK CIO FAMILY CONFERENCE - Ring20 Research and Support UK CIO

http://ring20researchsupport.co.uk/r20-family-conference

GRANTS & SPONSORSHIP. GRANTS & SPONSORSHIP. Larr; Go back Home. Ring 20 Research Support UK Family Conference 2017. Starting at 18:00 on the Friday and finishing at 13:00 Sunday. Goodison Rd, Liverpool, L4 4EL,. The weekend will include:. Updates about rare disease research from world experts in r(20) syndrome i. Ncluding Prof Nancy B. Spinner. US), Maria P. Canevine. Italy), Prof Sameer Zuberi. Hearing from key speakers directly affected by rare disease. To connect with other patients and carers. Prof N...

5

Ring20 Research and Support UK CIO PERSONAL STORIES - Ring20 Research and Support UK CIO

http://ring20researchsupport.co.uk/personal-stories

GRANTS & SPONSORSHIP. GRANTS & SPONSORSHIP. Larr; Go back Home. Living with r(20) Syndrome. Here several of our member families share their personal stories of what its like living with r(20) syndrome. Kieran’s Story – diagnosing r(20) syndrome. Kieran wired up for an EEG. Tamzin would like to share her son’s story with you because of the way he was diagnosed with r(20). My son, Kieran had his first seizure when he was 4, it was an absence seizure. Read Kieran’s story in full…. Jessica Sullivan (age 9).

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efky.org efky.org

Ring Chromosome 20 Syndrome - Epilepsy Foundation of Kentuckiana

http://www.efky.org/ring-chromosome-20-syndrome.html

The Genetics of BRE. Infantile Spasms / West's Syndrome. Ring Chromosome 20 Syndrome. What is a Seizure? Gelastic and Dacrystic Seizures. Epilepsy and My Child Toolkit. Penry Patient Travel Assistance. Speak Up Speak Out. Expressions of Hope 2014. Walk Around Kentucky for Epilepsy - Owensboro. Walk Around Kentucky for Epilepsy - Pikeville. Expressions of Hope 2013. Epilepsy Foundation of America. Ring Chromosome 20 Syndrome. What is ring chromosome 20 syndrome? Subtle nocturnal behavioral changes such as...

miltonsmooth.co.uk miltonsmooth.co.uk

Ring 20 Research & Support - Milton Smooth Limited

http://miltonsmooth.co.uk/portfolio/the-island

Websites and more with Milton Smooth Limited. CALL US 44 (0) 845 680 9412. Social Media Sign Up. Your Instantly Recognisable Brand. Search Engine Optimisation (SEO). Ongoing Support & Maintenance. Social Media Sign Up. Your Instantly Recognisable Brand. Search Engine Optimisation (SEO). Ongoing Support & Maintenance. Ring 20 Research & Support. Websites and more with Milton Smooth Limited. CALL US 44 (0) 845 680 9412. So you want a website? March 1, 2015. Get your PAINT on! March 23, 2015. March 16, 2013.

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elitewellness.co.uk - About Don

http://elitewellness.co.uk/about-don

Fitness and Sport Plans. Nutrition and Detox Plans. Mailing List Sign Up. Subscribe to our mailing list. Don Gordon is the creator of Elite Wellness. Providing simple plans and solutions for health and fitness success. He is also a highly sought after group exercise presenter. And limited consulting to institutions and businesses. During his ten years of experience in the health and fitness industry he has helped hundreds if individuals covering: Pre-Diabetes/Type 2 Diabetes,. Don is a Student Member of ...

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Ring20 Research and Support UK CIO HOME - Ring20 Research and Support UK CIO

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