miabellegillier.blogspot.com
miabelle and noelie: 9/29/13 - 10/6/13
http://miabellegillier.blogspot.com/2013_09_29_archive.html
Friday, October 4, 2013. Day 700/700: May the yellow jersey go to all the HLH Angels and Warriors out there. Yellow Jersey is defined by my friend Wiki as, in the Tour de France (most recognized cycling event in the world), " the leader of the general classification wears the. Http:/ en.wikipedia.org/wiki/Yellow jersey. Courtesy of the Matthew and Andrew Akin Foundation. But despite these limitations at least one of us made it to the finish line. Oops! Bolt (Justin) leads the pack to the finish line.
miabellegillier.blogspot.com
miabelle and noelie: Be a Donor
http://miabellegillier.blogspot.com/p/bone-marrow-drive.html
Help Us find Donors for another baby! Many of our friends, family, colleagues and complete strangers have reached out to us asking "What can we do? How can we help? We all feel helpless and powerless in this horrific situation and just sitting around waiting for a stroke of luck is just not an option. As with every patient with HLH: the clock is ticking! Until a cord blood donor was found, other children don't have that option! Finding an ideal bone marrow. You have the power to give that second chance!
miabellegillier.blogspot.com
miabelle and noelie: Doing Good feels Great: The highpoint of the Hope Gala of the Icla Da Silva Foundation
http://miabellegillier.blogspot.com/2013/11/doing-good-feels-great-highpoint-of.html
Thursday, November 14, 2013. Doing Good feels Great: The highpoint of the Hope Gala of the Icla Da Silva Foundation. Now that I have "recovered" from the HLH700 of the Akin Foundation (crazy! The Ronald McDonald Gala and the fun Hope Gala of the Icla Da Silva Foundation I wanted to get back to my blog which I have shamefully ignored. These past months have been amazing, not just because sitting on a saddle for 7 hours is such good feeling (try it! We even got a tax deduction, what more do you want? Http:...
miabellegillier.blogspot.com
miabelle and noelie: History
http://miabellegillier.blogspot.com/p/medical-history.html
This was the EMERGENCY ROOM. Shouldn't it go without saying that these were emergent cases? It was at that moment that Vanessa contacted me in NY and had me book a flight home for her and Miabelle. The doctors assured us that she would be well monitored, but that unfortunately, given the latest findings, it was a necessary evil. Additional updates will be posted in the Daily Blogs. More to come. Subscribe to: Posts (Atom). A Good Feeling Must See. Get an email update when blog is updated. Day 3 120 Miles...
miabellegillier.blogspot.com
miabelle and noelie: 8/24/14 - 8/31/14
http://miabellegillier.blogspot.com/2014_08_24_archive.html
Thursday, August 28, 2014. Say something, I'm giving up on you. And I am sorry I couldn't get to you." I am not sure what to say. it has been so long. Are you still there? Not sure where my inspiration or energy went. Did I lose my mojo? Have the good times returned? Has the despair been lifted? Just look at Miabelle's face, so content to be held by Libby. This is what we hope for: knees are growth related and you are now at 100% donor cells. This is what we want to avoid: knees are indeed an issue a...
miabellegillier.blogspot.com
miabelle and noelie: 11/10/13 - 11/17/13
http://miabellegillier.blogspot.com/2013_11_10_archive.html
Thursday, November 14, 2013. Doing Good feels Great: The highpoint of the Hope Gala of the Icla Da Silva Foundation. Now that I have "recovered" from the HLH700 of the Akin Foundation (crazy! The Ronald McDonald Gala and the fun Hope Gala of the Icla Da Silva Foundation I wanted to get back to my blog which I have shamefully ignored. These past months have been amazing, not just because sitting on a saddle for 7 hours is such good feeling (try it! We even got a tax deduction, what more do you want? Http:...
miabellegillier.blogspot.com
miabelle and noelie: Day 700/700: May the yellow jersey go to all the HLH Angels and Warriors out there
http://miabellegillier.blogspot.com/2013/10/day-700700-may-yellow-jersey-go-to-all.html
Friday, October 4, 2013. Day 700/700: May the yellow jersey go to all the HLH Angels and Warriors out there. Yellow Jersey is defined by my friend Wiki as, in the Tour de France (most recognized cycling event in the world), " the leader of the general classification wears the. Http:/ en.wikipedia.org/wiki/Yellow jersey. Courtesy of the Matthew and Andrew Akin Foundation. But despite these limitations at least one of us made it to the finish line. Oops! Bolt (Justin) leads the pack to the finish line.
miabellegillier.blogspot.com
miabelle and noelie: Say Something...
http://miabellegillier.blogspot.com/2014/08/say-something.html
Thursday, August 28, 2014. Say something, I'm giving up on you. And I am sorry I couldn't get to you." I am not sure what to say. it has been so long. Are you still there? Not sure where my inspiration or energy went. Did I lose my mojo? Have the good times returned? Has the despair been lifted? Just look at Miabelle's face, so content to be held by Libby. This is what we hope for: knees are growth related and you are now at 100% donor cells. This is what we want to avoid: knees are indeed an issue a...
miabellegillier.blogspot.com
miabelle and noelie: Day 5 Miles 70: Dedicated to Anna Conger
http://miabellegillier.blogspot.com/2013/10/day-5-miles-70-dedicated-to-anna-conger.html
Thursday, October 3, 2013. Day 5 Miles 70: Dedicated to Anna Conger. Courtesy of the Matthew and Andrew Akin Foundation. For the dedication video please click: http:/ youtu.be/a7b073dw1x0. The day started with a deadline: 70 miles by 2pm. Why you may ask? Because we are a bunch of crazy people, in case you had not figured that out by now. A great honor I accepted with much appreciation. Dilemma, I now had two things I truly wanted to commit to at the same time! And he was right. We all departed together ...
miabellegillier.blogspot.com
miabelle and noelie: HLH/FLH?
http://miabellegillier.blogspot.com/p/what-is-hlhflh.html
HLH stands for Hemophagocytic Lymphohistiocytosis and is a rare disorder mainly affecting children at an early age. The illness consists of the malfunctioning of the hystiocyte, one of the primary cells to fight infections. Bone marrow produces these cells that then travel throughout the body to fight infections and destroy foreign material. 2) Secondary HLH is none genetic and presents itself when the body's immune system goes into overdrive following a major infection. Secondary HLH is treated with...
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