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sevenngibbons.blogspot.com

Live. Laugh. Love.

This blog is about our family and our daughter Finley's journey with CHARGE syndrome.

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Live. Laugh. Love. | sevenngibbons.blogspot.com Reviews
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This blog is about our family and our daughter Finley&#39;s journey with CHARGE syndrome.
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1 archives
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Live. Laugh. Love. | sevenngibbons.blogspot.com Reviews

https://sevenngibbons.blogspot.com

This blog is about our family and our daughter Finley&#39;s journey with CHARGE syndrome.

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1

Live. Laugh. Love.: March 2011

http://sevenngibbons.blogspot.com/2011_03_01_archive.html

Live Laugh. Love. I was however still able to run an 8K last weekend. I have set a goal to run at least one race per month until the half marathon in August. Next up is the Shamrock Shuffle on April 10th! Finley working with one of our favorite therapists Debi. We love her! Nate (in his undies of course) helping out during Finley's OT session. Debi working her magic with Finley. And so we wait with baited breath for spring to actually, well.SPRING! Thursday, March 24, 2011. An update on something that I ...

2

Live. Laugh. Love.: February 2011

http://sevenngibbons.blogspot.com/2011_02_01_archive.html

Live Laugh. Love. Yesterday Finley was sprung from the PICU! She now has a room with a "view" on the 7th floor. While figuratively we moved further from the door, technically, this move is a very good thing and boy ph boy is it nice to be out of the PICU! It had gotten VERY busy/crazy down there in the last couple of days. Nate starts ice skating lessons today-should be interesting! I really hope it doesn't wind up like his swimming lessons did where he never even got in the pool! Have a great weekend!

3

Live. Laugh. Love.: August 2010

http://sevenngibbons.blogspot.com/2010_08_01_archive.html

Live Laugh. Love. It that time of the year. This weekend we wrapped up the second of two Roth birthday parties in 13 days. My little helper tuckered out on Friday night as I was busily preparing for the next days festivities (on Finley's lily pad nonetheless). It was a Toy Story affair at the Roth household. Which included this massive Toy Story ball courtesy of Grammy that Nate actually goes inside and gets rolled around. In this picture - his friend Quinn was rolling around inside with him! And so we a...

4

Live. Laugh. Love.: July 2010

http://sevenngibbons.blogspot.com/2010_07_01_archive.html

Live Laugh. Love. I am in a bit of denial these days. Less than two weeks from now my baby is turning 1. One. Year. Old. Where did the year go? Talk about absolute whirlwinds. And thirteen days after Finley's birthday. My little man is turning 4! Holy hell. The feeling of oldness washed over me. All I could do was laugh. And feel old. Just in time for her 1st birthday, Princess Finley got her second tooth! Wednesday, July 28, 2010. It was bound to happen. I accidentally pulled out Finley's g-tube yesterd...

5

Live. Laugh. Love.: The $3200 Garage Sale

http://sevenngibbons.blogspot.com/2011/07/3200-garage-sale.html

Live Laugh. Love. The $3200 Garage Sale. You read that right. $3,200. The garage sale that we kept putting off due to sheer fear of the quantity of "stuff" ended up netting $3200 for the CHARGE Syndrome Foundation! We ended up having the sale on July 8th and 9th. Mike got the pleasure of coming home from his 7 day business trip to Columbia and enduring a two day garage sale! Would be for Finley. Dr. Chin explained that normally they would not surgically correct a hiatal hernia for someone with no...Finle...

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thejellychronicles.blogspot.com thejellychronicles.blogspot.com

The Jelly Chronicles: September 2011

http://thejellychronicles.blogspot.com/2011_09_01_archive.html

Steven our CTICU roomate. This Mom's Gonna Snap! A comment on comments. Not better but no worse. From bad to much much worse. Yesterday, today, and tomorrow. We arent going home today. Some good moments, some bad moments. From bad to much much worse. This morning pus started to leak out from under your dressing. Dr. Bailey held your oxygen treatments, had the dressing changed, and wanted . We aren't going home today. Mason is in Surgery! I really did try. Exactly what I expected I didn't want to hear.

thejellychronicles.blogspot.com thejellychronicles.blogspot.com

The Jelly Chronicles: December 2010

http://thejellychronicles.blogspot.com/2010_12_01_archive.html

Steven our CTICU roomate. This Mom's Gonna Snap! Just for the record. The 6th it is! The stressful Non-stress test. 2 Dr visits today the old and the new. Road built in hope. A letter to Mason. From bad to much much worse. This morning pus started to leak out from under your dressing. Dr. Bailey held your oxygen treatments, had the dressing changed, and wanted . We aren't going home today. Mason is in Surgery! I really did try. Exactly what I expected I didn't want to hear. Friday, December 31, 2010.

thejellychronicles.blogspot.com thejellychronicles.blogspot.com

The Jelly Chronicles: Mason's Milestones

http://thejellychronicles.blogspot.com/p/masons-milestones.html

Steven our CTICU roomate. This Mom's Gonna Snap! Happy BIRTH day Mason! Happy birthday to meeeee! From bad to much much worse. This morning pus started to leak out from under your dressing. Dr. Bailey held your oxygen treatments, had the dressing changed, and wanted . We aren't going home today. We arent going home anytime in the near future. You wound is bad. Real bad. The first few dressing changes it didnt look lik. Mason is in Surgery! I really did try. Exactly what I expected I didn't want to hear.

thejellychronicles.blogspot.com thejellychronicles.blogspot.com

The Jelly Chronicles: July 2011

http://thejellychronicles.blogspot.com/2011_07_01_archive.html

Steven our CTICU roomate. This Mom's Gonna Snap! Getting to the heart of the matter. From bad to much much worse. This morning pus started to leak out from under your dressing. Dr. Bailey held your oxygen treatments, had the dressing changed, and wanted . We aren't going home today. We arent going home anytime in the near future. You wound is bad. Real bad. The first few dressing changes it didnt look lik. Mason is in Surgery! I really did try. Exactly what I expected I didn't want to hear. Most of the e...

thejellychronicles.blogspot.com thejellychronicles.blogspot.com

The Jelly Chronicles: April 2011

http://thejellychronicles.blogspot.com/2011_04_01_archive.html

Steven our CTICU roomate. This Mom's Gonna Snap! People who dont sleep. Ronald McDonald walk for kids 2011. Its good to have friends. From bad to much much worse. This morning pus started to leak out from under your dressing. Dr. Bailey held your oxygen treatments, had the dressing changed, and wanted . We aren't going home today. We arent going home anytime in the near future. You wound is bad. Real bad. The first few dressing changes it didnt look lik. Mason is in Surgery! I really did try. Thursday, A...

thejellychronicles.blogspot.com thejellychronicles.blogspot.com

The Jelly Chronicles: May 2011

http://thejellychronicles.blogspot.com/2011_05_01_archive.html

Steven our CTICU roomate. This Mom's Gonna Snap! From bad to much much worse. This morning pus started to leak out from under your dressing. Dr. Bailey held your oxygen treatments, had the dressing changed, and wanted . We aren't going home today. We arent going home anytime in the near future. You wound is bad. Real bad. The first few dressing changes it didnt look lik. Mason is in Surgery! I really did try. Exactly what I expected I didn't want to hear. Tuesday, May 10, 2011. I've been hesitant to send...

thejellychronicles.blogspot.com thejellychronicles.blogspot.com

The Jelly Chronicles: August 2011

http://thejellychronicles.blogspot.com/2011_08_01_archive.html

Steven our CTICU roomate. This Mom's Gonna Snap! Were back in Loma Linda hospital. Were going to Disneyland! Everyone is well, everyone is tired. All is quite and going well. Not going to get extubated tonight. Surgery day part 1. The bitter and the sweet. A letter to Mason. From bad to much much worse. This morning pus started to leak out from under your dressing. Dr. Bailey held your oxygen treatments, had the dressing changed, and wanted . We aren't going home today. Mason is in Surgery! I didn't want...

thejellychronicles.blogspot.com thejellychronicles.blogspot.com

The Jelly Chronicles: December 2011

http://thejellychronicles.blogspot.com/2011_12_01_archive.html

Steven our CTICU roomate. This Mom's Gonna Snap! From bad to much much worse. This morning pus started to leak out from under your dressing. Dr. Bailey held your oxygen treatments, had the dressing changed, and wanted . We aren't going home today. We arent going home anytime in the near future. You wound is bad. Real bad. The first few dressing changes it didnt look lik. Mason is in Surgery! I really did try. Exactly what I expected I didn't want to hear. Saturday, December 31, 2011. 365 days of my life.

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