sdsregistry.org
What is SDS? | Shwachman-Diamond Syndrome Registry
http://sdsregistry.org/about-sds
Promoting science and discovery. You make it possible. What is the SDS Registry (SDSR)? Participating in the SDS Registry. Shwachman-Diamond syndrome can affect multiple additional organ systems. Some patients have many medical issues and some patients may initially appear to be mildly affected. Most patients with Shwachman-Diamond syndrome have a malfunction of a gene called. Gene plays an important role in making ribosomes, which are responsible for producing cellular proteins. The. 2014 Shwachman-Diam...
folksinsgrp.com
Community | Folks Insurance Group
https://www.folksinsgrp.com/community.php
Folks Insurance Group is dedicated to the highest level of professionalism. Organizations We Proudly Support. Diocese of Rockville Center - Leadership Patron Donor. St Lawrence the Martyr Parish. Sayville Library 100 Year Project. Sayville Village Improvement Society. Shwachman Diamond Project, LTD. Better Understanding of Life in Africa. Mercy Center Ministries Past Board Member and Contributor. Sayville Little League Sponsor. 33 Main Street, West Sayville, NY 11796.
dashforacure.org
Gallery – Dash for a Cure – Supporting the Shwachman Diamond Project
http://www.dashforacure.org/category/gallery
Race Info & Map. What is Shwachman-Diamond Syndrome? April 18, 2011. February 18, 2015. April 18, 2011. February 18, 2015. April 18, 2011. June 16, 2016. April 18, 2011. June 16, 2016. April 18, 2011. June 16, 2016. April 18, 2011. June 16, 2016. April 18, 2011. June 16, 2016. April 18, 2011. June 16, 2016. April 18, 2011. June 16, 2016. April 18, 2011. June 16, 2016. April 18, 2011. June 16, 2016. April 18, 2011. June 16, 2016. April 18, 2011. June 16, 2016. April 18, 2011. June 16, 2016. April 18, 2011.
dashforacure.org
Thank You 2012 – Dash for a Cure – Supporting the Shwachman Diamond Project
http://www.dashforacure.org/thank-you-2012
Race Info & Map. What is Shwachman-Diamond Syndrome? And so here we are once again. Our 9th year. We’ve come a long way. You all keep showing up. And so, we will continue to throw this little party and together we will continue to make strides towards a cure. Together we will continue to make a difference. 8211; Leo Buscaglia. 2016 Registration Now Open. Register online at JustFinish.net. For the 2016 Diamond Dash now! Register by mail: Download the form. And send payment by check before June 17. Please ...
dashforacure.org
Sponsors – Dash for a Cure – Supporting the Shwachman Diamond Project
http://www.dashforacure.org/map/sponsors
Race Info & Map. What is Shwachman-Diamond Syndrome? We’d like to thank the sponsors who offered their help as well as their kind words of concern for Dylan. The 5k Run/Walk and 1k Fun Run continues to grow each year. With this increasing attendance comes a great opportunity to promote your business and join us in this worthy cause to help Dylan and all of the other children with bone marrow failure syndromes. 2015 Honorary Event Sponsor ($2500). Company logo on back of T-Shirt ($500). Sayville, NY 11782.
dashforacure.org
Shwachman Diamond Project – Dash for a Cure – Supporting the Shwachman Diamond Project
http://www.dashforacure.org/shwachman-diamond-project
Race Info & Map. What is Shwachman-Diamond Syndrome? Shwachman Diamond Project Ltd. was established in 2005 as a 501(C)3 charitable organization with a mission of fund raising to support research into treatments and a potential cure for Shwachman Diamond Syndrome and other bone marrow failure syndromes. In keeping with this mission, the organization works to encourage cord blood collection and funds research projects related to this area. 2016 Registration Now Open. Register online at JustFinish.net.
dashforacure.org
A Thank-You from Jennifer Kolar – Dash for a Cure – Supporting the Shwachman Diamond Project
http://www.dashforacure.org/featured/a-thank-you-from-jennifer-kolar
Race Info & Map. What is Shwachman-Diamond Syndrome? A Thank-You from Jennifer Kolar. March 26, 2013. February 18, 2015. And so here we are once again. Our 9th year. We’ve come a long way. You all keep showing up. And so, we will continue to throw this little party and together we will continue to make strides towards a cure. Together we will continue to make a difference. Leave a Reply Cancel reply. Your email address will not be published. Required fields are marked *. 2016 Registration Now Open. If yo...
dashforacure.org
Race Info & Map – Dash for a Cure – Supporting the Shwachman Diamond Project
http://www.dashforacure.org/map
Race Info & Map. What is Shwachman-Diamond Syndrome? Race Info & Map. Race Info and Map. Saturday June 18, 2016. 8:30 am 1K FUN RUN. 9:00 am 5K RUN/WALK. Sunrise Drive Elementary School. Sayville, NY 11782. 7:00 am – 8:30 am. 5K (31 mile) fast, flat, USATF sanctioned course. Timed by Just Finish Inc., featuring disposable chip technology. Series and race results provided by and posted on JustRegister.net. 25 Day of Race. T Shirts for all 5K Participants). 8 day of race. 2016 Registration Now Open. With o...
dashforacure.org
What is SDS? – Dash for a Cure – Supporting the Shwachman Diamond Project
http://www.dashforacure.org/what-is-sds
Race Info & Map. What is Shwachman-Diamond Syndrome? It seems we can’t find what you’re looking for. Perhaps searching can help. 2016 Registration Now Open. Register online at JustFinish.net. For the 2016 Diamond Dash now! Register by mail: Download the form. And send payment by check before June 17. With over 1000 people attending last year's event, the Dash for a Cure is a great way to advertise locally while supporting a great cause. Read More. Or Contact us today! Interested in making a donation?
dashforacure.org
Join Us for the 10th Annual 5K Shwachman Diamond Dash for a Cure – Saturday June 15, 2013 – Dash for a Cure – Supporting the Shwachman Diamond Project
http://www.dashforacure.org/slider/photo-adults
Race Info & Map. What is Shwachman-Diamond Syndrome? Join Us for the 10th Annual 5K Shwachman Diamond Dash for a Cure – Saturday June 15, 2013. May 27, 2010. March 27, 2013. 2016 Registration Now Open. Register online at JustFinish.net. For the 2016 Diamond Dash now! Register by mail: Download the form. And send payment by check before June 17. With over 1000 people attending last year's event, the Dash for a Cure is a great way to advertise locally while supporting a great cause. Read More.