sudepglobalconversation.com

sudepaware.org

Campaign materials & events

http://www.sudepaware.org/msos_materials.html

Epilepsy Deaths Register (UK). Stop SUDEP Research Program (US). North American SUDEP Registry (US). Study of Optimal Way to Inform Patients of SUDEP (Canada). The eToolkit is a set of documents designed to improve understanding of SUDEP and to facilitate its discussion among families, healthcare providers, death investigation professionals and researchers. If you would like to add your organizations logo/details to these brochures, please contact us. Rather than download it to your site. The first compo...

qir.bmj.com

Keeping patients with epilepsy safe: a surmountable challenge? -- Shankar et al. 4 (1) -- BMJ Quality Improvement Reports

http://qir.bmj.com/content/4/1/u208167.w3252.full

Making quality improvement simple. Volume 4, Issue 1. BMJ Qual Improv Report. Doi:10.1136/bmjquality.u208167.w3252. BMJ Quality Improvement Programme. Keeping patients with epilepsy safe: a surmountable challenge? Cornwall Partnership NHS Foundation Trust. Rohit Shankar rohit.shankar{at}nhs.net. We are now developing an app so that patients and carers can monitor their own risk factors, thus empowering them and increasing their knowledge and awareness of SUDEP. A central theme of all these reports is a l...

sudepaware.org

SUDEP campaign

http://www.sudepaware.org/msos_your_stories.html

Epilepsy Deaths Register (UK). Stop SUDEP Research Program (US). North American SUDEP Registry (US). Study of Optimal Way to Inform Patients of SUDEP (Canada). Tell us who in your life has inspired you to Make Sense of SUDEP. How did you first come to learn of SUDEP? What are the hurdles youve encountered and what did you do to overcome them? How can others learn from your experience? Why is it important to you to that awareness of SUDEP improves and what suggestions do you have? Photo: Dr Nina Davies.

makingsenseofsudep.org

SUDEP Global Conversation

http://www.makingsenseofsudep.org/global_conversation.html

Epilepsy Deaths Register (UK). Stop SUDEP Research Program (US). North American SUDEP Registry (US). Study of Optimal Way to Inform Patients of SUDEP (Canada). In 2005, Epilepsy Australia. And Epilepsy Bereaved UK. Sudden Unexpected Death in Epilepsy: a global conversation. An updated edition continuing the. Was published in 2011, with SUDEP Aware. This volume, six years after the first edition of. Sudden Unexpected Death in Epilepsy: a global conversation. Solomon L Moshé MD. This new edition of the.

sudepaware.org

SUDEP Campaign: how you can help

http://www.sudepaware.org/msos_you_can_help.html

Epilepsy Deaths Register (UK). Stop SUDEP Research Program (US). North American SUDEP Registry (US). Study of Optimal Way to Inform Patients of SUDEP (Canada). Help us Make Sense of SUDEP. To the Making Sense of SUDEP campaign eNewsletter. And keep up-to-date with the latest:. SUDEP information and campaign news. Upcoming awareness or fundraising events near you. The new Making Sense of SUDEP campaign eBrochures. Young adults with epilepsy. Parents of children with epilepsy. People bereaved by epilepsy.

autisminnb.blogspot.com

Facing Autism in New Brunswick: December 2014

http://autisminnb.blogspot.com/2014_12_01_archive.html

Facing Autism in New Brunswick. Autism News and Opinion. Saturday, December 27, 2014. Autism Society Canada Misrepresents Autism On Its Web Site Makeover By Hiding The Many with Autism AND Intellectual Disability. The Autism Society Canada web site. Of persons with autism disorders also have an intellectual disability:. Q: Do persons with autism always suffer from intellectual disability? World Health Organization, September 2013. Published in 2007 and reaffirmed in 2010 and 2014. Are associated with a h...

emmabursick.org

News

http://www.emmabursick.org/news

Emma Bursick Memorial Fund. My life is my message" Gandhi. Leveling the playing field in the fight against SUDEP and Epilepsy. Partners Against Mortality in Epilepsy (PAME) Conference. This three-day international conference is devoted predominantly to Sudden Unexpected Death in Epilepsy (SUDEP). Medical professionals, researchers, patients, families and advocates will come together to share current understandings of SUDEP. This event is a joint effort of SUDEP Coalition partners. A Storm In The Brain.

epsmon.neurocore.org.uk

EpSMon - Info for Clinicians

http://www.epsmon.neurocore.org.uk/clinicians.html

An introduction for Health Professionals. You may have had a patient tell you they are using EpSMon, heard about it elsewhere or just want to know more about it. Here is a short guide to tell you about EpSMon and how it helps people with Epilepsy monitor and manage their health risks. Why is Epsmon needed? Fatalities including Sudden Unexpected Death in Epilepsy (SUDEP) do happen in some people with epilepsy. The best protection is being aware of these risks and putting steps in place to improve know...

purpledayeveryday.org

SUDEP - Sudden Unexpected Death in Epilepsy - Purple Day, Every Day

http://purpledayeveryday.org/events/sudep-sudden-unexpected-death-in-epilepsy

Downloads & Videos. SUDEP – Sudden Unexpected Death in Epilepsy. The Anita Kaufmann Foundation, together with the editor organizations of the newly launched online resource, ‘ SUDEP Global Conversation. Have joined forces to bring greater awareness of mortality in epilepsy around the world through Purple Day. Nine-year-old Cassidy Megan created the idea of Purple Day. SUDEP materials, and by promoting the SUDEP Global Conversation website www.sudepglobalconversation.com. Sudden Unexpected Death in Epilep...

sudepaware.org

Further SUDEP Information

http://www.sudepaware.org/documentation_general_info.html

Epilepsy Deaths Register (UK). Stop SUDEP Research Program (US). North American SUDEP Registry (US). Study of Optimal Way to Inform Patients of SUDEP (Canada). General information about SUDEP. Targeted to specific audiences. Discusses current understanding with regards to SUDEP, August 2010,. Epilepsy.com, USA. SUDEP questions and answers, March 2010,. Epilepsy Foundation, USA. Sudden Unexpected Death in Epilepsy. ILAE (UK Chapter) and The National Society for Epilepsy, UK. SUDEP information report, Dec ...