teamsanfilippo.blogspot.com

Team Sanfilippo

Monday, May 30, 2011. I moved my blog. I have moved my blog. You can now find us at:. Http:/ www.rallyforreed.com. Links to this post. Tuesday, April 26, 2011. Published with Blogger-droid v1.6.8. Links to this post. Thursday, April 7, 2011. Measuring Up As a Father. Bottom line, Ryan is a grown healthy man and many kids today are better off because of what the Dants accomplished. I was lucky enough to have lunch with Mark on Wednesday and he is an awesome guy. He is so humble and down to Earth. ...That ...

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Team Sanfilippo | teamsanfilippo.blogspot.com Reviews

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Monday, May 30, 2011. I moved my blog. I have moved my blog. You can now find us at:. Http:/ www.rallyforreed.com. Links to this post. Tuesday, April 26, 2011. Published with Blogger-droid v1.6.8. Links to this post. Thursday, April 7, 2011. Measuring Up As a Father. Bottom line, Ryan is a grown healthy man and many kids today are better off because of what the Dants accomplished. I was lucky enough to have lunch with Mark on Wednesday and he is an awesome guy. He is so humble and down to Earth. ...That ...

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Team Sanfilippo | teamsanfilippo.blogspot.com Reviews

https://teamsanfilippo.blogspot.com

Monday, May 30, 2011. I moved my blog. I have moved my blog. You can now find us at:. Http:/ www.rallyforreed.com. Links to this post. Tuesday, April 26, 2011. Published with Blogger-droid v1.6.8. Links to this post. Thursday, April 7, 2011. Measuring Up As a Father. Bottom line, Ryan is a grown healthy man and many kids today are better off because of what the Dants accomplished. I was lucky enough to have lunch with Mark on Wednesday and he is an awesome guy. He is so humble and down to Earth. ...That ...

INTERNAL PAGES

teamsanfilippo.blogspot.com

1

Team Sanfilippo: What is the point of this blog?

http://teamsanfilippo.blogspot.com/2011/02/what-is-point-of-this-blog.html

Monday, February 7, 2011. What is the point of this blog? My name is Roy Zeighami. My son Reed, born in 2007, was recently diagnosed with MPS III or Sanfilippo Syndrome. It is a rare genetic nuerodegenerative disease and its impact is catastrophic. Kids with MPS III die before their second decade of life. We don't accept that fate. This is a picture of Reed and me hanging out on the. Want to do something small today? Subscribe to: Post Comments (Atom). Official Team Sanfilippo Web Site. Elisabeth Lintons...

2

Team Sanfilippo: MPS Societies/Friends

http://teamsanfilippo.blogspot.com/p/mps-societiesfriends.html

Note: If I have left your organization off this list, please post a comment at the bottom of the page with your site name and URL and I will gladly add it. J onah's Just Begun. Sanfilippo Children's Research Fund. Little Mackiek and Great Wizards. US National MPS Society. I rish MPS Society. Simon Ibell's Ibellieve Foundation. Subscribe to: Posts (Atom). Official Team Sanfilippo Web Site. Team Sanfilippo Youtube Page. Team Sanfilippo Ebay Store. A Father's Perspective on His Very Sick Kid. Okay, lets adm...

3

Team Sanfilippo

http://teamsanfilippo.blogspot.com/2011/04/published-with-blogger-droid-v1.html

Tuesday, April 26, 2011. Published with Blogger-droid v1.6.8. Subscribe to: Post Comments (Atom). Official Team Sanfilippo Web Site. Team Sanfilippo Youtube Page. Team Sanfilippo Ebay Store. A Father's Perspective on His Very Sick Kid. 160; This blog entry is for my fellow fathers, those that have had to suffer the pain of hearing that one or more of their beloved children. SCRF Gala: Pictures and Stories of Sanfilippo Families are Needed! What is the point of this blog? The Good Search Challenge. Proble...

4

Team Sanfilippo: SCRF Gala: Pictures and Stories of Sanfilippo Families are Needed!

http://teamsanfilippo.blogspot.com/2011/03/scrf-gala-pictures-and-stories-of.html

Tuesday, March 8, 2011. SCRF Gala: Pictures and Stories of Sanfilippo Families are Needed! Elisabeth Linton's family set up the Sanfilippo Children's Research Foundation (SCRF) 12 years ago when their now almost 17 year old daughter Elisa was diagnosed at age 4. Each year the gala raises several hundred thousand dollars to fund research, most recently that of Dr. Fu from Ohio and Dr. Biggar out of Manchester. You can read more about the gala here. The event is being held on April 7th, so if you can get y...

5

Team Sanfilippo: I moved my blog

http://teamsanfilippo.blogspot.com/2011/05/i-moved-my-blog.html

Monday, May 30, 2011. I moved my blog. I have moved my blog. You can now find us at:. Http:/ www.rallyforreed.com. Subscribe to: Post Comments (Atom). Official Team Sanfilippo Web Site. Team Sanfilippo Youtube Page. Team Sanfilippo Ebay Store. A Father's Perspective on His Very Sick Kid. 160; This blog entry is for my fellow fathers, those that have had to suffer the pain of hearing that one or more of their beloved children. SCRF Gala: Pictures and Stories of Sanfilippo Families are Needed! In fund rais...

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Monday, May 30, 2011. I moved my blog. I have moved my blog. You can now find us at:. Http:/ www.rallyforreed.com. Links to this post. Tuesday, April 26, 2011. Published with Blogger-droid v1.6.8. Links to this post. Thursday, April 7, 2011. Measuring Up As a Father. Bottom line, Ryan is a grown healthy man and many kids today are better off because of what the Dants accomplished. I was lucky enough to have lunch with Mark on Wednesday and he is an awesome guy. He is so humble and down to Earth. ...That ...

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